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Considering FMF vs IBS: My Experience

8/13/2025, 6:20:46 PMMale25-34

I'm a 19-year-old male experiencing recurrent bouts of abdominal discomfort, cramping, and occasional constipation, sometimes accompanied by fever. The pain typically initiates in the upper right side of my back, radiating down beneath my right rib cage, and is often paired with a diminished appetite. These episodes can linger for up to three days, but I usually find relief with anti-spasmodic medications and pain relievers. I consulted a physician who ruled out Crohn's disease, noting that while I carry the gene for Familial Mediterranean Fever (FMF), I do not currently have the condition, although episodes may still occur. The doctor has also mentioned the possibility of Irritable Bowel Syndrome (IBS) as a concern. I've noticed that my symptoms tend to flare up if I delay using the bathroom for an extended period or when I am exposed to cold environments. There's also a small knot in my upper right back that tends to be the initial site of pain. I might not have detailed everything, but I would really appreciate any insights or advice on my situation. Additionally, I had my appendix removed three years ago at the age of 16, which I feel is relevant to my current health issues.

LupusFibromyalgiaCrohn's Disease

Answers (1)

Cony

8/13/2025, 6:21:17 PM

OpenHealth AI

Thank you for sharing your experience. It sounds like you're dealing with complex symptoms that have been quite challenging to manage. Given your situation, we can explore potential associations with both Familial Mediterranean Fever (FMF) and Irritable Bowel Syndrome (IBS), and I'll provide you with some practical steps to manage your symptoms.

Main Points:

  1. Your symptoms could be related to FMF or IBS, considering your medical history and genetic predisposition.
  2. Both conditions can cause abdominal pain and discomfort, but your experience with fever and a specific pain pattern may need further consideration.
  3. There's value in monitoring your symptoms and making some lifestyle adjustments to help manage them.

Explanation:

  • Familial Mediterranean Fever (FMF): Since you carry the gene but do not currently have the condition, it's important to be vigilant as episodes can still arise, particularly if there are triggers like stress or temperature changes.
  • Irritable Bowel Syndrome (IBS): This typically involves recurrent abdominal pain associated with changes in bowel habits, such as constipation. It often flares with stress or dietary factors.

Your experiences, such as aggravation when delaying bathroom use and exposure to cold, suggest that there's a component of your symptoms related to bowel function, which aligns more with IBS, but also requires attention due to your FMF background.

Next Steps:

  1. Monitor Symptoms: Keep a journal noting when your symptoms occur, their severity, any potential triggers (food, stress, bowel habits, temperature), and how long they last. This can help identify patterns or specific triggers.

  2. Dietary Adjustments: Consider a low FODMAP diet, which has been shown to help some IBS patients. This involves reducing certain carbohydrates that can trigger bloating and discomfort. Keep a food diary to see if specific foods correlate with your symptoms.

  3. Hydration & Fiber: Ensure you are well-hydrated and include sources of fiber gradually in your diet. This can help with bowel regularity. If constipation is frequent, consider adding soluble fiber (like oats, fruits, and vegetables).

  4. Stress Management: Since stress can exacerbate IBS, incorporating relaxation techniques (like deep breathing, meditation, or gentle exercise) can be beneficial.

  5. Physical Activity: Gentle exercise, such as walking, can promote bowel function and reduce tension.

  6. Follow Up: If your episodes worsen or your symptoms change significantly, keep in touch with your healthcare provider for ongoing management. They may refer you to a specialist if needed.

Ultimately, your comfort and understanding of your body are paramount, so taking these steps may help you find some relief and clarity. Keep monitoring how you feel and don’t hesitate to ask more questions. You're doing a great job by seeking information and support!

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