Seeking Assistance for Ongoing Neck Pain and Related Symptoms Before UC Davis ER Visit
I am a 38-year-old Caucasian woman, standing 5 feet 2 inches tall and weighing 110 pounds, residing in Northern California. My journey through the emergency medical system has been frustrating. Time and again, I've sought help for what feels like a significant crisis, only to be sent home without resolution. Each occurrence fills me with dread as the agony returns, and despite numerous tests showing normal results, I remain uncertain about my health. Recently, imaging of my brain and neck revealed degenerative disc disease involving the C4, C5, and C6 vertebrae but nothing alarming appeared otherwise. Here’s a timeline of my health struggles: - **June 8th**: I enjoyed a swim at Whiskeytown Lake, managing to keep my head above water for brief periods. - **June 9-11**: Following the swim, I suffered from intense migraines accompanied by fluid sensations down my neck leading up to the headaches. Since then, symptoms have fluctuated in intensity and include lightheadedness, dizziness, muscle pain, headaches, photophobia, vertigo, malaise, feelings of faintness, cognitive dissonance, pain localized to the right side of my skull near the occipital region, and pressure buildup on the right side of my head. On **Monday, July 21**, I confronted severe vertigo and alterations to my vision, prompting a visit to physical therapy, which ended with another trip to the ER for vertigo management. The subsequent day, I spent significant time in my office but suddenly experienced a painful neck spasm and felt faint and breathless, leading me back to the emergency room. I opted to rest at home on **July 23**. The following day, a colleague disclosed similar symptoms related to headaches and dizziness; we promptly alerted HR, who inspected the workplace. On **July 28**, I reached out to the executive director and operations manager, elaborating our ongoing distress, yet received no reply. By **July 29**, after reporting ice buildup in our refrigerators that had been addressed, I returned from the morning’s shift at another shelter to begin feeling ill again. I requested that my colleague email our higher-ups since both of us were experiencing adverse symptoms. We were directed to the nurse hotline and advised to file an incident report. Conversations with my physician revealed they could not treat a suspected exposure, directing me to contact poison control. They indicated potential carbon monoxide exposure, urging immediate ER care. At the ER, professionals suggested that given the elapsed time and our prior clear blood test results, we might display reduced toxicity levels, stressing the need for environmental remediation. On **July 30**, PGE assessed our air quality in the morning, and maintenance staff implemented an air filter and adjusted ventilation schedules. By **July 31**, I felt considerably better. The air seemed clearer, so I spent time working at an alternate location before returning to the office later. However, once back in my office on **August 1**, I needed a break shortly after processing data due to head congestion. I took a ten-minute break outdoors before returning to intake, where I continued working despite feeling overwhelmed and developing a headache. After processing cat intake, I sent an email highlighting the unsafe conditions, suggesting OSHA be involved. The operations manager acknowledged my concerns verbally but did not offer solutions. Visibly shaken, I approached HR to discuss reaching out to experts knowledgeable about addressing these environmental hazards. During this conversation, the executive director arrived, promising to follow up on a mold assessment company and determining the next steps. I decided to leave for the day. Later that afternoon, the executive director called to inform me that she had canceled my PTO, compensated me for the day, contacted the insurance carrier, and made inquiries with the facility assessment team. After consulting with my doctor, I suspect possible chemical exposure tied to the drainage system, which I relayed to the executive director for potential resolution.
Answers (1)
8/3/2025, 7:20:52 AM
OpenHealth AI
It sounds like you're experiencing a complex set of symptoms that are causing significant distress and impacting your quality of life. Your history of neck pain, dizziness, headaches, and recent concerns about environmental exposure are understandably overwhelming. Here’s a clear breakdown of your situation and practical next steps.
Main Points:
- Current Symptoms: You are experiencing neck pain, dizziness, headaches, and other neurological symptoms.
- Imaging Results: Findings show degenerative disc disease but no acute issues.
- Environmental Concerns: Potential exposure to environmental toxins may be contributing to your symptoms.
Explanation:
Degenerative disc disease in the cervical spine (C4, C5, C6) can lead to neck pain and may also contribute to referred symptoms like headaches and dizziness due to nerve root irritation. The migraines and other neurological symptoms you are experiencing, such as vertigo and cognitive dissonance, could be related to your cervical spine issues or possibly linked to environmental toxicity.
Given the complexity of your case and the persistence of your symptoms, it is essential to approach this systematically.
Next Steps:
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Symptom Monitoring: Keep a daily diary documenting your symptoms, triggers (like specific environments, activities, or stressors), and any changes in severity. This data can be invaluable for healthcare providers.
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Physical Therapy: Continue or resume physical therapy specifically focused on cervical spine exercises to improve strength and flexibility, which may alleviate some of your neck pain and related symptoms over time.
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Environmental Assessment: Follow up with your executive director regarding the progress of the mold and toxin assessments. Ensure that you receive updates on any actions taken to address potential environmental hazards. This will help determine if your symptoms are linked to workplace conditions.
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Hydration and Rest: Make sure you stay well-hydrated, especially if you are experiencing headaches and dizziness. Consider implementing regular breaks at work to reduce stress and avoid symptom exacerbation.
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Migraine Management: If you have a history of migraines, consider discussing preventative strategies with your healthcare provider, which may include medication or lifestyle changes tailored to your triggers.
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Stress Management Techniques: Engage in stress-reducing activities such as mindfulness, yoga, or deep breathing exercises, which can help manage both physical and emotional symptoms.
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Explore Other Providers: If your symptoms persist or worsen, it may be beneficial to seek a second opinion from specialists, such as a neurologist or a pain management specialist, who can provide further insight into the correlation between your symptoms and your neck issues.
Your health matters, and addressing both the physical and potential environmental aspects will be vital in finding relief. You deserve clear answers and support as you navigate these challenges. Please prioritize your well-being and consider these next steps thoughtfully.
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7-Month-Old Child with Abernethy Malformation - Exploring Treatment Options
# 7-Month-Old Child with Abernethy Malformation - Exploring Treatment Options ## [7-Month-Old] Identified with Abernethy Malformation (Congenital Portosystemic Shunt) - Treatment Methods? **Age:** 7 months **Gender:** Female **Height:** Age-appropriate **Weight:** Currently 9 kg, was 2.8 kg at birth **Ethnicity:** Asian **Duration of Symptoms:** Present since birth **Location:** Uzbekistan **Pre-existing Health Issues:** Abernethy malformation (congenital portosystemic shunt), liver hemangiomas, chronic jaundice, anemia **Current Treatments:** Supportive management --- ## INITIAL PRESENTATION (June 2025 - July 2025) Our daughter arrived on **June 27, 2025**, presenting with: - Birth weight: **2.8 kg** - Marked jaundice (yellowing of skin and sclera) - Pale or clay-colored stools - **Bilirubin level: 245 μmol/L** (typically <20) An immediate ultrasound indicated multiple liver anomalies, initially thought to be hemangiomas. --- ## FIRST COMPREHENSIVE ASSESSMENT (August 1, 2025 - 1 Month Old) ### Multislice Computed Tomography (MSCT) with 3-Phase Contrast (August 1, 2025): **RESULTS:** - **Portocaval shunt size: 9.9 mm** (blood bypassing the liver into the inferior vena cava) - **Arteriovenous shunt size: 4.4 mm** - **Portal vein size: 6.1 mm** (patent) - **Three nodular cystic lesions** located in the perivascular area, with largest measuring 11.6×20.7 mm, enhancing during the venous phase - Liver features a heterogeneous architecture, exhibiting irregular enhancement - Gallbladder appears elongated and slightly enlarged - Other abdominal organs exhibit normal findings **RADIOLOGIST’S ASSESSMENT:** "Congenital portosystemic shunt indicative of Abernethy malformation; less likely arteriovenous malformation (AVM); cannot dismiss the possibility of localized liver lesions." **ADVICE:** Seek consultations with an abdominal and vascular surgeon. ### Blood Tests (August 1, 2025): **Complete Blood Count:** - WBC: 10.44 × 10⁹/L (normal range) - **RBC: 2.1 × 10¹²/L** (LOW - indicating severe anemia) - **Hemoglobin: 69 g/L** (CRITICALLY LOW; normal is 117-166) - Platelets: 403 × 10⁹/L (elevated) **Biochemistry Analysis:** - Urea: 1.80 mmol/L (normal) - Creatinine: 33.4 μmol/L (normal) - **ALT: >1000 IU/mL** (EXTREMELY HIGH - severe liver dysfunction) --- ## FOLLOW-UP IMAGING (December 16, 2025 - 5.5 Months Old) ### Liver Ultrasound: **RESULTS:** - Right lobe: 64 mm, left lobe: 43 mm - Liver capsule appears irregular and vague - **Parenchyma: heterogeneous, showing 7 hypo-isoechoic nodules** (sizes range from 11.5×10.7 mm to 17.6×15.4 mm) - Capsule features uneven contours - Blood flow noted during Doppler examination - No dilation in intrahepatic bile ducts - **Portal vein: 3.9 mm** (decreased from 6.1 mm - indicating improvement) - Common bile duct: 1.4 mm - Gallbladder: measures 43.7×9.2 mm (pear-shaped, wall thickness 2.0 mm, homogeneous, free of stones) **ULTRASOUND ASSESSMENT:** "Presence of liver volumetric formations (specifically liver hemangiomas)." --- ## LATEST MSCT (February 6, 2026 - 7 Months Old) ### MSCT with 3-Phase Contrast: **FINDINGS:** - Liver remains normal in size, but shows heterogeneous structure with uneven contrast enhancement - **Portocaval shunt: 9.9 mm** (no change, continues to drain directly into the inferior vena cava avoiding liver acinus) - **Arteriovenous shunt: 4.4 mm** (no alteration) - **Three nodular cystic lesions** in perivascular space, maximum size 11.6×20.7 mm, enhancing in the venous phase - **Portal vein: 6.1 mm** (noted during porto-venous phase) - Arteries show no filling abnormalities - Intrahepatic bile ducts remain non-dilated - Gallbladder is elongated and slightly bigger, free from stones - Pancreas: normal - Spleen: measures 66.9×38.5 mm (not enlarged), splenic vein is 3.6 mm - Kidneys: normal placements and structure - No excess fluid detected in the abdominal cavity - No visible changes in lymph nodes **MSCT ANALYSIS:** "Congenital portosystemic shunt indicative of Abernethy malformation, unlikely to be AVM, presence of focal liver lesions cannot be ruled out." **RECOMMENDATION:** Engage with an abdominal and vascular surgeon. --- ## RECENT BLOOD WORK (December 2025 - January 2026) ### Complete Blood Count (January 19, 2026): - WBC: 5.8 × 10⁹/L (SHOWS IMPROVEMENT) - **RBC: 2.93 × 10¹²/L** (IMPROVED but still low) - **Hemoglobin: 72 g/L** (SHOWS IMPROVEMENT but still low) - Platelets: 223 × 10⁹/L (BACK TO NORMAL) - Neutrophils: 30.0% - Lymphocytes: 64.8% - Monocytes: 4.6% ### Biochemistry (January 28, 2026): - Total protein level: 67 g/L (slightly deficient) - Creatinine: 20.7 μmol/L - **Total Bilirubin: 242 μmol/L** (STILL HIGH - unchanged) - **Direct Bilirubin: 142 μmol/L** (VERY HIGH) - **ALT: 50 IU/mL** (DRASTICALLY LOWER from >1000!) --- ## OVERVIEW OF PROGRESS OVER 6 MONTHS | Parameter | August 2025 | January 2026 | Change | |------------------|-------------|---------------|--------------------------| | **Hemoglobin** | 69 g/L | 72 g/L | ↗ Slight improvement | | **RBC** | 2.1 | 2.93 | ↗ Improved | | **ALT** | >1000 | 50 | ✓✓ MAJOR IMPROVEMENT | | **Bilirubin** | 245 | 242 | → Unchanged (still elevated) | | **Portal vein** | 6.1 mm | 3.9 mm (US) | ↗ Decreased | | **Platelets** | 403 | 223 | ↘ Normalized | | **Shunt size** | 9.9 mm | 9.9 mm | → No Change | --- ## CURRENT SITUATION (February 2026 - 7 Months Old) - **Weight:** 9 kg (good growth rate in spite of condition) - **Jaundice:** Continues to be present (yellow skin) - **Stools:** Remain pale/clay-colored - **Development:** Achieving appropriate milestones - **Energy:** Appears to have a good energy level - **Feeding:** Normal appetite --- ## QUESTIONS FOR r/AskDocs We have been informed this is **Type 2 Abernethy malformation** (portal vein present). **Three treatment avenues have been proposed:** ### Option 1: **Endovascular Coil Embolization** (minimally invasive approach) - A catheter is inserted via the leg vein to access the shunt and deploy coils/plugs to close the abnormal vessels - Pros: No surgical incision, minimal discomfort, short hospital stay (2-4 days), no scars, enhanced safety - Duration: 1-2 hours - Recovery: 2-4 weeks for jaundice to show improvement ### Option 2: **Open Surgical Intervention** - An incision in the abdomen to ligate abnormal vessels and redirect blood to the liver - Pros: Direct visualization, effective results - Cons: Surgical scar, longer recovery time (7-14 days in hospital) - Duration: 2-4 hours ### Option 3: **Liver Transplantation** - We have been advised this is not necessary as the portal vein is functional and liver health is improving. --- ## SPECIFIC QUESTIONS TO CONSIDER: 1. **With a functional portal vein (6.1 mm) and improving liver function (ALT normalized), is it advisable to pursue endovascular closure as the preferred treatment?** 2. **Despite ALT levels improving, the bilirubin remains consistently high (242). Should this be a cause for concern? Is there a prospect for it to normalize post shunt closure?** 3. **Are the hemangiomas/nodules (11.6×20.7 mm) linked to the shunt? Will they likely resolve following shunt repair?** 4. **How urgent is the proposed intervention? Is immediate action required, or is there flexibility to wait a few months?** 5. **What complications should we be vigilant for during the waiting period?** 6. **Regarding endovascular closure - what is the average success rate for infants aged 7 months? Are there concerns regarding the shunt size (9.9 mm)?** 7. **The measurement of the portal vein has shown improvement from 6.1 mm to 3.9 mm; should this be perceived as a positive sign or a reason for concern?** 8. **Are there special directives (diet modifications, medications) we should consider while awaiting the procedure?** 9. **Post-procedure, how long should we expect it might take for:** - Normalization of bilirubin levels? - Return of stool color to normal? - Resolution of jaundice? - Regression of hemangiomas? 10. **Can you recommend any specialized centers for pediatric Abernethy malformation treatments? We are located in Uzbekistan but are prepared to travel (to Turkey, Russia, South Korea, etc.)** --- ## ADDITIONAL INFORMATION - No family history of hepatic diseases - Pregnancy and delivery were normal - No additional congenital defects identified - Immunizations up to date - No history of bleeding disorders - No signs indicative of encephalopathy - Child is alert and engaged --- **I can supply actual MSCT images and comprehensive lab reports if they would be of assistance.** We sincerely appreciate any insights you can provide. We are striving to make the most informed decision regarding our daughter’s care and highly value expert medical opinions. **TL;DR:** 7-month-old diagnosed with Abernethy Type 2 malformation (9.9 mm portocaval shunt, patent portal vein). Liver functionality is improving (normalized ALT) while bilirubin remains elevated (242). Evaluating options between endovascular coil embolization and open surgery. 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