Considering Medication for Epilepsy: What Should I Do?
As a 20-year-old female, I recently had a significant experience while on vacation—I suffered a clonic-tonic seizure that lasted approximately ten minutes. During the incident, I lost consciousness twice, likely due to a head injury I sustained when I fainted. An ambulance took me to the hospital, where I regained consciousness the second time. I have no recollection of coming around the first time, but my mother said I didn’t recognize anyone at that point, which was quite out of character for me. While at the hospital, I underwent both an MRI and a CT scan. Thankfully, the doctor informed me that there was no evidence of brain damage resulting from the fall. Subsequently, I had an EEG performed. However, since we were overseas, language differences made communication challenging, and we had to rely on Google Translate. The overseas doctor indicated that the EEG showed "irregular brain waves," but given that I had just experienced a seizure in the morning, drawing conclusions from the results proved difficult. As a precaution, he prescribed Levetiracetam 500mg (though it carried a different name in Turkey), but my parents hesitated to let me take it, fearing the reliability of the healthcare system there, so I opted not to begin this treatment. Upon returning home, I consulted a neurologist who recommended a sleep-deprived EEG along with another MRI as part of the epilepsy assessment protocol. While I have yet to undergo the second MRI, my EEG was completed recently. The neurologist expressed concern regarding my EEG results, noting the presence of irregular brain spikes during the test. He also prescribed Levetiracetam 500mg, warning that I face a high risk of having another seizure within the next six months. Since the seizure, I have occasionally experienced involuntary jerking movements while sleeping and have suffered from some severe headaches, though these may not be directly related to the previous event. This situation has left me feeling quite puzzled. The neurologist indicated that my results point toward epilepsy, yet my parents question this diagnosis. For context, both my brother and father have had their first seizure in the last two years. When my brother underwent his EEG, the doctor noted irregular brain spikes but stated that as he had not experienced another seizure within two weeks following his initial one, he did not have epilepsy. I haven’t had the opportunity to review my complete medical report, so I’m wondering why my doctor’s interpretation seems different from my brother’s. My parents consulted a family friend who is a neurologist (though he hasn't reviewed my results), and he advised against medication, suggesting that having experienced only one seizure does not qualify as epilepsy and that irregular brain spikes can be quite common. As a university student, my parents typically cover my medical expenses, which influences my decision-making regarding treatment. It's important to note that my parents are particularly apprehensive about me starting medication due to potential mood-related side effects.
Answers (1)
8/2/2025, 4:02:08 AM
OpenHealth AI
It's understandable to feel confused and concerned about your recent seizure experience and the subsequent medical advice you've received. Let's break down the key points regarding your situation and provide you with some actionable steps.
Main Points:
- You have been diagnosed with irregular brain waves following a seizure, which suggests a potential epilepsy diagnosis.
- The neurologist has recommended medication (Levetiracetam) to lower your risk of further seizures.
- Your family is apprehensive about medication, particularly regarding mood-related side effects, and there are differing opinions on your diagnosis.
Explanation:
A seizure lasting ten minutes is considered a medical emergency, and it's good that you received prompt care. The EEG showing irregular brain waves can indicate seizure activity, even if you have only had one seizure. In some cases, having just one seizure plus EEG abnormalities is enough for a diagnosis of epilepsy, especially since seizures can occur without prior warning.
The hesitation about medication is common, especially concerning potential side effects. However, controlling seizures is crucial to preventing potential injuries or further complications, especially if there are indicators suggesting a high risk of recurring seizures.
Your family's experience with similar medical issues raises valid concerns, but it's essential to remember that each individual's case can differ significantly. The neurologist’s recommendation is based on your current symptoms and test results.
Next Steps:
-
Review Your Medical Report: Request a copy of your EEG and MRI results to better understand your condition. This will help clarify the situation and assist in discussions with your healthcare provider.
-
Medication Discussion: Consider discussing the option of starting Levetiracetam with a focus on potential side effects. Ask about monitoring for mood changes, and discuss if dosage adjustments are possible. The goal is to find a balance between managing seizures and minimizing adverse effects.
-
Seek a Second Opinion (if needed): If uncertainties remain, consider seeking a second opinion from another neurologist who specializes in epilepsy. They can review your complete medical history and EEG results to provide personalized guidance.
-
Track Symptoms: Keep a journal of any seizures, jerking movements, headaches, and mood changes. This log can be invaluable during medical consultations and to ensure the best management of your condition.
-
Educate Yourself and Your Family: Understanding epilepsy and its treatment can alleviate some fears and uncertainties. Use reputable sources such as the Epilepsy Foundation or National Institutes of Health (NIH) for reliable information.
Remember, you are not alone in this, and it's okay to seek clarity and comfort regarding your health. Addressing your parents' concerns and involving them positively in your decision-making can also help in navigating this process. If you have more questions or need support alongside these steps, feel free to ask.
Related Questions
Hydroxychloroquine Prescription Following Low C4 Levels: Should I Continue?
Demographic Information: 19 years old, Assigned Female at Birth. Medical History: Diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), reactive gastropathy of unknown origin, obsessive-compulsive disorder (OCD), autism spectrum disorder (ASD), and major depressive disorder (MDD). Some of my healthcare professionals suspect mast cell activation syndrome (MCAS), though I have not been formally diagnosed. Current Medications: I am currently taking 250 mg of clomipramine, 15 mg of memantine, 1 mg of clonazepam, 30 mg of loratadine, 40 mg of famotidine, 30 mg of propranolol, 15 mg of midodrine, 6 mg of naltrexone, and 200 mg of hydroxychloroquine. Additionally, I use iron and vitamin C supplements to address low ferritin levels and take 3 mg of melatonin as needed for sleep. Several months back, I consulted a rheumatologist upon recommendation due to unexplained rashes, joint swelling, and discomfort that couldn't be attributed to my current conditions (I initially believed they were linked to ME/CFS, but my ME specialist had doubts). Despite blood work showing no indicators of autoimmune disorders—such as normal levels for ESR, CRP, ANA, and RF—I was still referred to rheumatology. The rheumatologist conducted further extensive blood testing and subsequently prescribed hydroxychloroquine. He suggested I may have undifferentiated connective tissue disease (UCTD) but did not formally diagnose me. While I value his expertise, I want to ensure that I am only taking necessary medications. My apprehension stems from the fact that, among 18 blood tests performed, complement C4 was the only abnormality, which was recorded as slightly low. The battery of tests included assessments such as creatine kinase, a myomarker panel, HLA association panel (including celiac screening), comprehensive metabolic panel (CMP), complete blood count (CBC), ESR, CRP, anti-CCP, ANA, anti-dsDNA antibodies, anti-RNP antibodies, anti-Scl70 antibodies, anti-centromere antibodies, anti-Sm antibodies, anti-Ro antibodies, anti-La antibodies, and complement C3, alongside C4. I have been on hydroxychloroquine for three months and have noticed some improvements: although my fatigue persists, the rashes on my hands and wrists appear less severe, my fingers look slimmer, and joint pain has diminished. This does lend some reassurance about continuing the medication; however, I am concerned that these benefits could be attributed to either a placebo effect or the low-dose naltrexone rather than the hydroxychloroquine itself. My primary worry is the potential adverse effects of using hydroxychloroquine if it is not warranted for my condition. Are there specific signs I should monitor or indications suggesting that this medication might not be necessary? Should I alleviate my concerns, or is there reason to be cautious? Any insights would be immensely helpful, thank you!
Seeking Guidance on Hormonal Treatment as a Trans Man
I am a 21-year-old transgender man (FTM). About a year ago, I began receiving testosterone injections using a product called Testoviron, administered at a dosage of 125mg biweekly. During my most recent appointment with my endocrinologist, we chose to switch to an alternative injection called Nebido, which is a 250mg dose given every 12 weeks. My concern is whether extending the interval between these injections will slow my overall progress. Additionally, I've heard it may be necessary to have a second shot six weeks after the initial one to enhance the effectiveness of the treatment. After reading some online, I noticed that this advice is common; however, I feel uncertain as my endocrinologist appears to have limited experience working with transgender patients. This has left me anxious about the potential effects of the hormonal therapy. I would greatly appreciate any insights or advice on this matter.
Inquiry About Conception Timing
The child arrived on January 19. Throughout the course of the pregnancy, several ultrasounds were conducted, which regularly confirmed the gestational age with measurements taken at 25 weeks, 32 weeks, and 36 weeks on various occasions. These assessments led medical professionals to approximate the ovulation and fertility period between April 8 and April 17. It is well known that sperm can last in the female reproductive tract for about five days. Notably, intercourse took place on April 26, a date that falls beyond the predicted fertile period. Considering the ultrasound results and standard ovulation patterns, could April 26 reasonably be identified as a possible date for conception?
Chest Discomfort with Red Marks
Over the past year, I have developed red patches predominantly on my upper chest and occasionally on my neck. My physician suspects that this could be linked to anxiety. These marks often become painful upon contact and sometimes provoke an itch. Although I’m uncertain if it’s connected, I also experience occasional discomfort in my chest, particularly around the sternum and collarbone areas. I’m concerned that there might be a misdiagnosis and that an underlying issue could be present. Has anyone else faced a similar situation or discovered the underlying cause of their symptoms? I’m a 24-year-old male who does not smoke, consume alcohol, or use drugs.
Concerns About Charcoal Toothpaste and Birth Control
Hi there! I’m a 20-year-old female currently using charcoal toothpaste and I've just started my second pack of birth control pills, which I take consistently at the same time every morning. Recently, I stumbled upon some information that raised my concerns: it appears that charcoal might diminish the effectiveness of birth control. The toothpaste packaging mentions only a tiny amount of charcoal, equivalent to a pea-sized portion, yet I'm still anxious about it since I brush my teeth each morning right before I take my pills. Can anyone offer advice or reassurance? I’m feeling quite worried!