OpenHealth Q&A

Considering Medication for Epilepsy: What Should I Do?

As a 20-year-old female, I recently had a significant experience while on vacation—I suffered a clonic-tonic seizure that lasted approximately ten minutes. During the incident, I lost consciousness twice, likely due to a head injury I sustained when I fainted. An ambulance took me to the hospital, where I regained consciousness the second time. I have no recollection of coming around the first time, but my mother said I didn’t recognize anyone at that point, which was quite out of character for me. While at the hospital, I underwent both an MRI and a CT scan. Thankfully, the doctor informed me that there was no evidence of brain damage resulting from the fall. Subsequently, I had an EEG performed. However, since we were overseas, language differences made communication challenging, and we had to rely on Google Translate. The overseas doctor indicated that the EEG showed "irregular brain waves," but given that I had just experienced a seizure in the morning, drawing conclusions from the results proved difficult. As a precaution, he prescribed Levetiracetam 500mg (though it carried a different name in Turkey), but my parents hesitated to let me take it, fearing the reliability of the healthcare system there, so I opted not to begin this treatment. Upon returning home, I consulted a neurologist who recommended a sleep-deprived EEG along with another MRI as part of the epilepsy assessment protocol. While I have yet to undergo the second MRI, my EEG was completed recently. The neurologist expressed concern regarding my EEG results, noting the presence of irregular brain spikes during the test. He also prescribed Levetiracetam 500mg, warning that I face a high risk of having another seizure within the next six months. Since the seizure, I have occasionally experienced involuntary jerking movements while sleeping and have suffered from some severe headaches, though these may not be directly related to the previous event. This situation has left me feeling quite puzzled. The neurologist indicated that my results point toward epilepsy, yet my parents question this diagnosis. For context, both my brother and father have had their first seizure in the last two years. When my brother underwent his EEG, the doctor noted irregular brain spikes but stated that as he had not experienced another seizure within two weeks following his initial one, he did not have epilepsy. I haven’t had the opportunity to review my complete medical report, so I’m wondering why my doctor’s interpretation seems different from my brother’s. My parents consulted a family friend who is a neurologist (though he hasn't reviewed my results), and he advised against medication, suggesting that having experienced only one seizure does not qualify as epilepsy and that irregular brain spikes can be quite common. As a university student, my parents typically cover my medical expenses, which influences my decision-making regarding treatment. It's important to note that my parents are particularly apprehensive about me starting medication due to potential mood-related side effects.

Answers (1)

8/2/2025, 4:02:08 AM

OpenHealth AI

It's understandable to feel confused and concerned about your recent seizure experience and the subsequent medical advice you've received. Let's break down the key points regarding your situation and provide you with some actionable steps.

Main Points:

1. You have been diagnosed with irregular brain waves following a seizure, which suggests a potential epilepsy diagnosis.
2. The neurologist has recommended medication (Levetiracetam) to lower your risk of further seizures.
3. Your family is apprehensive about medication, particularly regarding mood-related side effects, and there are differing opinions on your diagnosis.

Explanation:

A seizure lasting ten minutes is considered a medical emergency, and it's good that you received prompt care. The EEG showing irregular brain waves can indicate seizure activity, even if you have only had one seizure. In some cases, having just one seizure plus EEG abnormalities is enough for a diagnosis of epilepsy, especially since seizures can occur without prior warning.

The hesitation about medication is common, especially concerning potential side effects. However, controlling seizures is crucial to preventing potential injuries or further complications, especially if there are indicators suggesting a high risk of recurring seizures.

Your family's experience with similar medical issues raises valid concerns, but it's essential to remember that each individual's case can differ significantly. The neurologist’s recommendation is based on your current symptoms and test results.

Next Steps:

1. Review Your Medical Report: Request a copy of your EEG and MRI results to better understand your condition. This will help clarify the situation and assist in discussions with your healthcare provider.

2. Medication Discussion: Consider discussing the option of starting Levetiracetam with a focus on potential side effects. Ask about monitoring for mood changes, and discuss if dosage adjustments are possible. The goal is to find a balance between managing seizures and minimizing adverse effects.

3. Seek a Second Opinion (if needed): If uncertainties remain, consider seeking a second opinion from another neurologist who specializes in epilepsy. They can review your complete medical history and EEG results to provide personalized guidance.

4. Track Symptoms: Keep a journal of any seizures, jerking movements, headaches, and mood changes. This log can be invaluable during medical consultations and to ensure the best management of your condition.

5. Educate Yourself and Your Family: Understanding epilepsy and its treatment can alleviate some fears and uncertainties. Use reputable sources such as the Epilepsy Foundation or National Institutes of Health (NIH) for reliable information.

Remember, you are not alone in this, and it's okay to seek clarity and comfort regarding your health. Addressing your parents' concerns and involving them positively in your decision-making can also help in navigating this process. If you have more questions or need support alongside these steps, feel free to ask.