Health Issues since February 2025
Hello everyone, I’ll aim to keep this brief and to the point. I am a 42-year-old female with a moderate activity level, averaging 15,000 to 20,000 steps daily and engaging in weight training two to three times a week. - On February 7, 2025, I woke up feeling extremely unwell, experienced vomiting, and subsequently slept for 36 hours without getting out of bed. - Since that day, my ability to eat has significantly diminished, resulting in a 75-pound weight loss. - Although I manage to eat small amounts occasionally, I often find myself in a considerable calorie deficit due to intense cramping when I eat. My daily intake typically ranges from 800 to 1200 calories, focusing on fruits, proteins, and healthy fats. - A CT scan performed on February 27 showed no abnormalities. - Lab tests and a stool sample were conducted, and all results came back "normal." - An EGD was done on March 13, which revealed a higher white blood cell count, but again, everything else appeared "normal," with no signs of celiac disease. - I was prescribed anti-nausea medication and drugs for stomach cramping but have experienced little to no relief, despite being advised to manage my acid reflux. - My gastroenterologist suggested taking Pepcid AC for three months and to provide feedback. If symptoms persist, a colonoscopy will be the next step. - Bowel movements occur daily, but they tend to lack shape and often stick to the bowl. - Along with the weight loss, reduced appetite, and stomach pains during or after meals, I have recently noticed significant hair loss. I’m feeling quite disheartened. It seems my doctors are not fully engaged in diagnosing my condition or outlining the next steps. They have mentioned the colonoscopy, yet they struggle to articulate its purpose and what they aim to rule out with it. I feel uncertain about where to turn next. Any insights, advice, or suggestions would be greatly appreciated. The only long-term medication I am currently taking is Eliquis, at a dosage of 5 mg daily, which I have been on for over a decade.
Answers (1)
7/30/2025, 7:20:50 PM
OpenHealth AI
I'm sorry to hear about the challenges you're facing. Based on your description, you've been through significant health issues, including severe weight loss, appetite changes, and gastrointestinal symptoms. Here are the main points and actionable steps to consider:
Main Points:
- You are experiencing significant gastrointestinal symptoms alongside weight loss and fatigue.
- Current medical tests, including a CT scan and EGD, have shown mostly normal results, but symptoms persist.
- Hair loss and ongoing discomfort are additional concerns.
Explanation:
The symptoms you're experiencing may stem from various causes, including dietary intolerances, gastrointestinal disorders, or even stress and anxiety due to your health situation. The cramping and reduced appetite are noteworthy, especially combined with the weight loss. The results from your tests can provide some reassurance, but the persistent nature of your symptoms suggests that further investigation is warranted.
Next Steps:
-
Focus on Nutrition:
- Caloric Intake: Aim to gradually increase your caloric intake. Consider soft foods that are easier to digest, like smoothies, soups, or yogurt, which can provide calories without being hard on your stomach.
- Small, Frequent Meals: Instead of three large meals, try eating smaller, more frequent meals throughout the day to minimize cramping and discomfort.
-
Record Symptoms:
- Keep a Detailed Diary: Document your food intake, symptoms (including timing and intensity of cramping), and any other changes in your health. This can help your healthcare team better understand your condition.
-
Communication with Your Gastroenterologist:
- Clarify the Purpose of the Colonoscopy: Request a clearer explanation about the colonoscopy from your gastroenterologist. Understanding what they are looking for can help you feel more engaged in your care.
- Discuss Unmanaged Symptoms: Make sure to express that the current treatment isn't helping. Sometimes, a second opinion or a referral to a different gastrointestinal specialist can provide new insights.
-
Consider Stress Management:
- Given that these health issues can be emotionally taxing, incorporating stress-reducing activities like mindfulness or gentle exercise may help improve your overall well-being.
-
Monitor Hair Loss:
- If hair loss continues or worsens, consider discussing this with your doctor. Nutritional deficits or underlying health conditions could be contributing factors.
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Follow-Up:
- Stay on top of follow-up appointments and be proactive about your health concerns. If symptoms persist beyond the current treatment plan, discussing other options with your healthcare provider is essential.
Your health journey is important, and it's crucial to advocate for yourself. If you need more specific recommendations or further clarification on any point, don't hesitate to ask. You deserve to feel supported and heard during this challenging time.
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# 7-Month-Old Child with Abernethy Malformation - Exploring Treatment Options ## [7-Month-Old] Identified with Abernethy Malformation (Congenital Portosystemic Shunt) - Treatment Methods? **Age:** 7 months **Gender:** Female **Height:** Age-appropriate **Weight:** Currently 9 kg, was 2.8 kg at birth **Ethnicity:** Asian **Duration of Symptoms:** Present since birth **Location:** Uzbekistan **Pre-existing Health Issues:** Abernethy malformation (congenital portosystemic shunt), liver hemangiomas, chronic jaundice, anemia **Current Treatments:** Supportive management --- ## INITIAL PRESENTATION (June 2025 - July 2025) Our daughter arrived on **June 27, 2025**, presenting with: - Birth weight: **2.8 kg** - Marked jaundice (yellowing of skin and sclera) - Pale or clay-colored stools - **Bilirubin level: 245 μmol/L** (typically <20) An immediate ultrasound indicated multiple liver anomalies, initially thought to be hemangiomas. --- ## FIRST COMPREHENSIVE ASSESSMENT (August 1, 2025 - 1 Month Old) ### Multislice Computed Tomography (MSCT) with 3-Phase Contrast (August 1, 2025): **RESULTS:** - 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