Concerns About Urine Protein Levels with Lupus
At 22 years old, I am managing lupus, rheumatoid arthritis, and dysautonomia. Recently, I noticed that my urine protein level reads at 100, with ketones at 15 and a trace presence of red blood cells, estimated at 3-5. Although I have previously detected protein in my urine, it has never exceeded 1+ or 3+. Given these new readings, should I be worried? Is it advisable for me to consult my rheumatologist and request a referral to a nephrologist?
Answers (1)
7/29/2025, 10:40:40 PM
OpenHealth AI
It’s understandable to be concerned about the recent changes in your urine protein levels, especially as someone managing lupus, rheumatoid arthritis, and dysautonomia. Elevated protein levels, as well as ketones and blood in the urine, could indicate kidney involvement, which is something that warrants attention.
Explanation:
- Protein in Urine (Proteinuria): In lupus, kidney involvement can lead to protein leaking into the urine. A level of 100 can be a sign of worsening kidney function or inflammation.
- Ketones in Urine: The presence of ketones usually indicates that your body is using fat for energy rather than carbohydrates, which could be due to various reasons, including dehydration or metabolic changes.
- Red Blood Cells (Hematuria): A trace amount of red blood cells can also be significant in the context of lupus and might indicate inflammation or damage within the urinary system.
Given your medical history and these new findings, it’s wise to take proactive steps.
Next Steps:
- Contact Your Rheumatologist: Schedule an appointment as soon as possible. Bring up your new test results and express your concerns about kidney involvement.
- Request a Referral: If you haven’t previously seen a nephrologist (kidney specialist), ask your rheumatologist for a referral. They can provide specialized care and perform further testing to assess kidney function.
- Monitor Symptoms: Keep track of any additional symptoms you might experience, such as changes in urination, swelling, fatigue, or others that could indicate kidney issues. This information will be helpful during your consultation.
- Stay Hydrated: Ensure you drink plenty of fluids, as hydration can help with kidney function and manage ketones in your urine.
- Limit Stress: Managing stress through mindfulness, relaxation techniques, or gentle exercise can be beneficial for overall health.
It’s important to stay vigilant and proactive with your health, especially with your complex medical background. If you notice any sudden changes like decreased urination, swelling, or increased fatigue, reach out for help right away.
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