Overcoming Medical-Related Trauma
At 40 years old, I'm currently prescribed 30 mg of Vyvanse, 2.5 mg of LDN, and occasionally take Naproxen. I've been diagnosed with adenomyosis and a small, deep lesion of endometriosis located on my left uterosacral ligament, as well as mild to severe degenerative disc disease affecting multiple levels of my lumbar spine. My downward spiral began nearly eight years ago when I first experienced debilitating pain in my left sciatic nerve. It was accompanied by bouts of extreme fatigue, joint discomfort after sun exposure, and intense chest pain, culminating in a confusing mix of symptoms that have since blurred together in my memory—perhaps intentionally as a coping strategy. In my effort to simplify my situation without going into a long-winded narrative, I've consulted various healthcare professionals, attempted numerous treatments, undergone extensive testing, and faced a series of frustrating experiences. Despite a few positive encounters, the negative ones have certainly left a mark. I suspect I am grappling with medical-related post-traumatic stress disorder (PTSD). Nowadays, attending any medical appointment feels overwhelmingly disheartening, stirring up memories of past events, regardless of whether the provider treats me well. I recognize that stress and mental health challenges may have exacerbated some of my symptoms, but it raises the constant question: what came first? Over these eight years of struggle, my conclusion has been that the anxiety surrounding doctor visits often outweighs any potential benefit. However, there is one final referral that I feel is essential, one that has even been suggested by another physician. I am exhausted from the relentless cycle of appointments. My reluctance to schedule this visit stems from a deep-seated dread of encountering more unnecessary stress and disappointment without thorough investigation. I worry that endometriosis may be affecting my sciatic nerve, or at least irritating some nearby nerves, as I now experience random periods of tingling and numbness from my waist down while walking. Doctors often point to my lumbar spine as the source of my troubles, but they can't truly understand the sensations I am experiencing. Is there any guidance on how to move past this fear and the PTSD that feels tied to my medical journey, or am I merely perceived as an overly concerned patient? Though I acknowledge that not all medical professionals are negative influences, the bad experiences have certainly etched themselves into my mind. I'm just so weary.
Answers (1)
7/29/2025, 8:10:50 PM
OpenHealth AI
First, I want to acknowledge that navigating a complex medical history can be incredibly overwhelming and emotionally exhausting. It's understandable to feel apprehensive about medical appointments, especially in light of your past experiences. Here are some key points to consider and actionable steps you can take to address both your health concerns and the anxiety associated with medical visits.
Main Points:
- It's important to address both your physical symptoms and the stress related to medical experiences.
- Strategies are available to help you manage anxiety around appointments.
- Self-advocacy and preparation may empower you in seeking the care you feel you need.
Explanation:
Your history suggests that both your physical symptoms—related to adenomyosis, endometriosis, and degenerative disc disease—and the emotional toll from medical experiences are intertwined. The feelings of anxiety and dread regarding doctor visits can indeed be exacerbated by prior traumatic interactions, potentially leading to a cycle of avoidance that impacts your overall well-being.
Understanding that your feelings are valid is an essential first step. Medical-related PTSD can manifest through avoidance behaviors, flashbacks, and anxiety in situations reminiscent of previous traumatic encounters. This can make seeking care feel daunting, even for necessary appointments.
Specific, Prioritized Next Steps:
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Journal Your Feelings: Begin keeping a journal to express your feelings about medical experiences. This can help clarify your concerns and identify triggers related to anxiety.
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Prepare for Appointments: Before the appointment you're apprehensive about, write down your main concerns and questions. Bring a supportive friend or family member if possible, who can help advocate for your needs and ensure you feel heard.
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Communicate with Healthcare Providers: At the start of your next appointment, consider openly sharing your feelings about medical visits. Acknowledging your anxiety can help create a supportive environment where the provider is more attentive to your needs.
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Coping Strategies: Explore stress-reducing techniques, such as deep breathing exercises, mindfulness, or gentle yoga, which can promote relaxation and help mitigate anxiety when you feel overwhelmed.
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Consider Professional Support: If possible, seek support from a therapist or counselor experienced with medical PTSD. They can provide coping strategies, help reframe your experiences, and offer emotional support tailored to your journey.
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Identify Positive Influences: Take note of any healthcare professionals who have treated you well. Prioritize those who are empathetic. Establishing a rapport with a provider can make a significant difference in your experience.
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Simple Follow-up Care: Don't hesitate to break down your visits into shorter, focused appointments. This can prevent feeling overwhelmed and allow for thorough discussions without the pressure of extensive examinations.
Remember, your health journey is just that—yours. Taking it one step at a time can gradually ease your concerns and empower you to seek the care you deserve. You are not alone in feeling weary; it's a significant struggle, and seeking support is a positive and courageous step towards finding relief. Let's focus on working through this together, and know that it’s okay to prioritize your well-being on your terms.
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