Is My Concern Justified? An Exploration of Possible Thoracic Outlet Syndrome Symptoms
Hello, I am a 23-year-old female, 5 feet 7 inches tall, and weighing 110 pounds. I've recently begun taking pregabalin in hopes that it will alleviate some of my symptoms. Additionally, I am on Vynase and Wellbutrin. While recording a video of myself, I experienced an unexpected and intense pinch that prompted me to withdraw my hand abruptly. In reflection, I noticed a small dot that caught my attention; I can’t help but wonder if this is simply a swollen lymph node, especially since I know I have several engorged ones in that vicinity. I suspect this might relate to my presumed diagnosis of thoracic outlet syndrome (TOS), which may be contributing to my lymphatic system not functioning at its best. I've dealt with various symptoms associated with TOS and have harbored worries about potential blood clots in my arm and armpit, particularly in my bicep and forearm areas. My hand frequently feels chilly and occasionally goes numb, which is quite discomforting. Once, I attempted to massage my pectoral minor muscle, which provided some temporary relief, but unfortunately, the discomfort seems to migrate to different parts of my body. I’ve also noted a throbbing sensation and prominent, bulging veins in my arm that understandably raise concerns for me. However, given that I have Ehlers-Danlos Syndrome (EDS), it's challenging to discern if my current condition is solely due to my weight or if it's related to my underlying issues. I perceive that certain areas of my tissue are lax, which leads me to describe the feeling as "bandy"—as if there’s a web being spun throughout my body making my muscles involuntarily spasm. Additionally, I experience significant scapular winging, which I feel is worth mentioning. If my worries seem excessive, I’m open to that possibility, but my concerns continue to linger!
Answers (1)

7/29/2025, 9:02:02 AM
OpenHealth AI
It sounds like you're dealing with a complex array of symptoms, and your concerns about thoracic outlet syndrome (TOS) and other related issues are valid. Let’s break down what might be happening and offer some clear steps to help manage your symptoms.
Main Points
- Your symptoms suggest potential thoracic outlet syndrome, which can be exacerbated by conditions like Ehlers-Danlos Syndrome (EDS).
- Some symptoms like numbness, coldness in your hand, and bulging veins need careful monitoring.
- It’s important to take actions that help alleviate your discomfort and monitor your symptoms effectively.
Explanation
Thoracic outlet syndrome occurs when the blood vessels or nerves just below your neck are compressed. This can cause symptoms such as numbness, tingling, coldness, or weakness in the arm. Given your EDS, which affects the elasticity of your connective tissues, you may be more prone to issues related to your joints and muscles. The swollen lymph nodes you've mentioned could be related, especially if your body is trying to manage inflammation or infection.
Your description of symptoms like chilly hands, scapular winging, and discomfort that migrates is significant. It’s understandable to feel anxious about these sensations, especially when combined with concerns about blood clots.
Next Steps
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Monitor Symptoms: Keep a detailed diary of symptoms, especially noting when they occur, their intensity, and any activities that make them worse or better. Pay particular attention to any changes, such as new swelling, color changes, or increased pain in your arm.
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Manage Discomfort:
- Continue gentle stretching and strengthen your shoulders and upper back. Specific exercises for your posture might help alleviate some pressure in the thoracic outlet.
- Utilize ice or heat packs to soothe any discomfort, particularly after activities that exacerbate your symptoms.
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Lifestyle Adjustments:
- Ensure good posture when sitting or standing, as this can reduce pressure on your nerves.
- Avoid any positions or activities that provoke numbness or coldness in your hands, like prolonged overhead movements.
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Communication: If you notice any worsening symptoms such as severe pain, considerable changes in coloration of your arm, or if you experience severe swelling, it may be necessary to consult a healthcare provider. With your underlying conditions, they can help assess your risk and provide tailored interventions.
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Pursue Support: Engaging with a physical therapist familiar with EDS and TOS may be beneficial for developing a personalized exercise program. They can provide hands-on treatment and strategies that could help.
Remember that it’s important to validate your experiences and concerns; you’re seeking clarity and relief, and that is completely reasonable. If you require more guidance on managing this condition or wish to discuss specific exercises, feel free to reach out. Take care!
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