Facing a Crohn's Flare-Up: My Ongoing Battle
I recently experienced an intense episode of pain, which led me to seek immediate medical attention at the emergency room. The discomfort was unbearable, rated at a 10 out of 10, and affecting my bowel function significantly. Following a CT scan, the results indicated: - Narrowing of the small intestine (small bowel stenosis) - Dilation within the small bowel - Presence of liquid in certain sections of my small intestine, alongside a slightly twisted appearance of nearby mesenteric vessels. Additionally, my report included concerning blood results: Neutrophils at 89.8%, Lymphocytes at 6.1%, and an unexpected cystic formation near my left ovary, measuring approximately 25mm. Curiously, I found out I possess what is termed an "accessory spleen" – am I really dealing with two spleens? In the ER, I was given a series of treatments that provided substantial relief, including: - Butylscopolamine 20mg IV/IM/SC - Sodium chloride solutions (both 10ml ampoule and 100ml bag) - Hydrocortisone 100mg IV/IM - Ondansetron 8mg IV - Pantoprazole 40mg IV - Electrolyte and glucose solution (500ml IV) - Tramadol 100mg IV/IM - Diazepam 5mg orally (I was quite anxious as a solo foreign student in Portugal) - Methylprednisolone 125mg IV/IM I have been referred for an urgent MRI to assess the progression of my condition, scheduled for tomorrow. The prospect of my Crohn's disease returning is daunting, especially after being told for months that my symptoms were simply anxiety or IBS leading up to this. Historically, my diagnosis has been approached with caution. Crohn's is hereditary in my family, and I exhibited severe symptoms as early as 16, culminating in findings of microgranulomas and cryptitis in my terminal ileum and colon at 17, though these issues were never apparent on imaging until now—now that the pain has become unbearable. As a 27-year-old American student pursuing my master’s degree in Portugal, I was already planning to return to the US for my research, but I felt overwhelmed by the intense discomfort over the past months, wishing for more time here. This situation now dictates that I return to my gastroenterologist at home. Will my condition improve? Is this the end of normalcy for me? I feel utterly disheartened and undeserving; a burden to those around me. The prospect of escalating medical costs looms, and I have been warned that if Budesonide is ineffective, biologics may become necessary. I’m anxious about finding a job back in the US amid these uncertainties, especially with concerns about Medicaid stability. Though I secured COBRA coverage for now, it’s a temporary solution. Previously, Budesonide caused severe mood swings during treatment, raising concerns since I might have to manage it alone in Portugal until I return home. However, the doctors believe my reaction could differ now that I am older and have a bit more weight, despite my recent significant weight loss. Could anything about this whole scenario possibly be exaggerated? I sincerely hope that’s the case. I am a 27-year-old woman, weighing approximately 45 kg and standing about 1.6 m tall. My medication regimen is shifting, but I’m still managing with Pantoprazole 20mg, preparing to begin Budesonide, dealing with Crohn's disease, and questioning the state of my IBS now.
Answers (1)
7/28/2025, 9:31:11 PM
OpenHealth AI
I'm really sorry to hear about the challenges you're facing with your Crohn's disease. It sounds like a very difficult time, both physically and emotionally. Your concern about managing your condition while being far from home is completely understandable. I want to provide you with some insights and actionable steps to consider.
Key Points:
- Your symptoms and recent imaging findings suggest a significant flare-up of Crohn's disease, which may require close monitoring and management.
- The presence of an accessory spleen is usually benign and doesn't typically cause complications, but it’s good to keep your doctors informed.
- The emotional burden and anxiety associated with your health condition are valid and important to address.
Explanation:
Crohn's disease can sometimes present with intense symptoms like you experienced. The narrowing of the small intestine (stenosis) is common in Crohn's and can lead to pain and bowel function issues. The medication regimen you received in the ER shows that your healthcare team is taking your situation seriously and addressing your acute symptoms.
It’s also natural to feel anxious about the diagnosis, potential treatments (like Budesonide and possibly biologics), and the change in your life plans due to health concerns. Mood swings from medications can be tough, so it’s vital to stay in close contact with healthcare providers about your experiences with new treatments.
Actionable Steps:
- Monitor Your Symptoms: Keep a symptom diary noting pain levels, bowel habits, and any side effects from medications. This will help your doctors tailor treatment effectively.
- Hydration and Nutrition: Stay well-hydrated and consider small, easy-to-digest meals if you can tolerate them. Avoiding high-fiber foods during flare-ups can help reduce symptoms.
- Establish a Support System: Since you may feel isolated, try to connect with support groups online or join forums for students managing chronic illnesses. Sharing your experiences can be very helpful.
- Prepare for Your MRI: When you go for your MRI, express any concerns to your healthcare team—ask them about the urgency of your situation and what they recommend. This can clarify your mind and help reduce anxiety.
- Plan Your Next Steps: Discuss with your doctors any concerns regarding your medication, mobility, and potential work opportunities in the US. Knowing your options may alleviate some anxiety about the future.
It's completely understandable to feel overwhelmed right now. Focus on each day, seeking the support you need from friends or health professionals. You are not a burden to those around you, and taking care of your health is your priority. Should you need more specific advice about aspects of your condition or treatment, please let me know.
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