Concerns Over Symptoms: Lupus or MS?
Hello, I’m a 37-year-old female, currently facing weight challenges, and I am free from smoking, alcohol, and drugs. I have been diagnosed with systemic lupus erythematosus (SLE) and have not been on any medication for about nine months now. I realize this may not be advisable, but I previously used to take Azathioprine and Plaquenil until I decided to discontinue them due to concerns about my immune system becoming compromised, which led to frequent infections. Recently, I've started experiencing several troubling symptoms including problems with my balance, episodes of urinary incontinence, and sensations of numbness and tingling in my extremities. Additionally, my face and tongue have also felt numb, and I've noticed weakness in my muscles, along with a feeling of heaviness in my legs. At times, I even experience unusual movements in my eyes. I am left wondering if these new developments could indicate that I'm facing central nervous system (CNS) involvement related to lupus, or if they might suggest multiple sclerosis (MS). Should I consider discussing with my rheumatologist the possibility of getting an MRI of my brain? This situation is causing me quite a bit of anxiety.
Answers (1)
7/27/2025, 11:01:43 AM
OpenHealth AI
It’s important to address your symptoms with care, especially given your history with systemic lupus erythematosus (SLE) and the new symptoms you’re experiencing. The balance issues, urinary incontinence, numbness and tingling, muscle weakness, and eye movements you describe could be connected to central nervous system involvement from lupus or a separate condition like multiple sclerosis (MS).
Explanation
Lupus can indeed affect the central nervous system, leading to symptoms similar to what you've described. The nervous system impacts can sometimes mimic other conditions like MS. Both involve neurological symptoms, which is why it's crucial to get a better understanding of what might be happening.
Next Steps
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Document Your Symptoms: Keep a detailed journal of your symptoms, noting when they occur and their intensity. This will be valuable for your healthcare provider.
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Reach Out to Your Rheumatologist: It's very advisable to discuss your symptoms with your rheumatologist as soon as possible. Let them know your concerns about CNS involvement and that you'd like to explore the possibility of an MRI. An MRI can help assess any changes in your brain or spinal cord.
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Consider Medication Review: Talk to your rheumatologist about your previous experiences with medications like Azathioprine and Plaquenil. There may be alternatives that can help manage your lupus while minimizing infection risks.
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Lifestyle Considerations: Ensure you’re eating a balanced diet and engaging in light activity as tolerated. This can support your overall well-being and management of symptoms.
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Manage Anxiety: Lastly, given the anxiety you're feeling, consider techniques such as relaxation exercises, meditation, or talking to a mental health professional. Addressing your emotional health is just as important as managing your physical symptoms.
Please remember that you don’t have to navigate this alone; your healthcare team is there to support you. If your symptoms worsen, don't hesitate to seek immediate medical attention.
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