OpenHealth Q&A

Get answered by medical professionals

Challenging Medical Mystery Struggling for Answers

7/26/2025, 4:50:30 PMMale25-34

23-year-old male, standing at 5 feet 11 inches tall and weighing 145 pounds. For the past four years, I have been grappling with a perplexing and frustrating health issue. It's tough to articulate, but I can best compare it to a persistent sensation of lightheadedness, akin to what you experience when you rise too quickly, combined with a disorienting fuzziness and instability—similar to the feeling you get when you awaken in the middle of the night. This overwhelming sensation is a daily struggle for me. I have consulted numerous physicians seeking answers as I explored potential issues related to vertigo, underwent tests for blood levels, and even had a comprehensive brain scan performed. Unfortunately, the conclusion reached by these doctors has been that it’s merely “anxiety,” a label that doesn’t truly capture my experience. If anyone has insights or assistance to offer, I would be immensely grateful!

ArthritisMultiple SclerosisInternal Medicine

Answers (1)

Cony

7/26/2025, 4:50:47 PM

OpenHealth AI

It sounds like you're dealing with a distressing and complex situation. Lightheadedness and feelings of disorientation can certainly impact daily life, and it’s understandable to seek clarity beyond a generalized diagnosis of anxiety. Let's explore some potential underlying causes and actionable steps you can take moving forward.

Main Points

  1. Persistent Symptoms: Lightheadedness and disorientation can arise from various sources.
  2. Need for Thorough Assessment: You've already taken significant steps with medical professionals, but additional focus on specific issues may help.

Explanation

Your symptoms might stem from several factors, including vestibular disorders, autonomic dysfunction, low blood pressure, or even nutritional deficiencies. It's also important to note that psychological factors can intertwine with physical symptoms, making diagnosis challenging. Your experience of being told it’s "just anxiety" may leave you feeling unheard, indicating a need for further examination.

Next Steps

  1. Symptom Documentation: Keep a detailed diary of your symptoms. Include when they occur, any triggers (like position changes), relevant food and drink intake, and how you feel emotionally. This record can help clarify patterns.

  2. Consult Specialized Providers: If you haven’t yet, consider seeing a neurologist or an ear, nose, and throat (ENT) specialist. They can conduct specific tests looking at balance (e.g., vestibular function tests) and brain function.

  3. Lifestyle Adjustments:

    • Hydration and Diet: Ensure you're drinking enough fluids, as dehydration can cause lightheadedness. A well-balanced diet rich in vitamins and minerals, especially B12 and iron, may help if nutritional deficiencies are an issue.
    • Position Changes: When rising from a seated or lying position, do so slowly to minimize symptoms.
  4. Stress Management Techniques: While it’s essential to seek medical understanding, integrating practices like mindfulness, yoga, or gentle breathing exercises can help manage anxiety-related symptoms that may accompany your experiences.

  5. Follow-Up Plans: After implementing these steps, assess how your symptoms change over a few weeks. If no improvement is noted, additional tests might be warranted based on your findings.

Feel free to reach out if you have further questions or need more clarification on any of these points. You're seeking answers for a challenging mystery, and it's important that you know you're not alone in this process.

Related Questions

Possible Testicular Torsion Concern?

While seated, I experienced an abrupt and severe pain in my abdominal region. After I adjusted my underwear, the sharp discomfort subsided, yet a mild, persistent ache remains in my stomach. This situation has led me to question whether I might be facing testicular torsion.

ArthritisInternal MedicineRheumatology
Male25-34
6 minutes ago

Could Long-Term Use of Psychiatric Medications Result in Brain Damage?

Hello, I’m a 26-year-old female diagnosed with schizoaffective disorder and PTSD for about four years now. Over this time, I have been prescribed a range of medications, including typical antipsychotics, antidepressants, and other non-psychiatric drugs. At present, my medication regimen includes: - Invega Trinza (an injection) at a dose of 525mg, received every ten weeks - Wellbutrin 300mg taken in the morning - Zoloft 200mg also taken in the morning - Pantoprazole 40mg in the morning - Xylac 25mg in the evening - Palafer in the evening. Alongside my psychiatric conditions, I have a background of chronic stress, persistent fatigue, and microcytic anemia. I experience a range of troubling symptoms, including a sensation of my brain "stuttering," time loss, challenges with verbal communication and making connections, memory lapses pertaining to both traumatic incidents and day-to-day occurrences, a feeling of pressure in my head, and significant disconnection or dissociation. It’s worth noting that despite distancing myself from the source of my trauma (a medical facility), I continue to encounter daily stress related to my diagnoses. I'm reaching out for assistance or guidance on this matter. Sincerely, A weary Redditor.

Multiple SclerosisInternal MedicineEndocrinology
Male25-34
6 minutes ago

Recognizing Infection Symptoms After Trauma and Amputation: When to Seek Emergency Care

A 39-year-old female, standing at 5 feet 1 inch and weighing approximately 150 pounds, follows a daily regimen including Vyvanse at 70 mg for ADHD and medical marijuana for anxiety and pain relief. Her medical history consists of ADHD, degenerative disc disease, and hypoglycemia. She is currently on a prescribed course of Amox-Clav at 875-125 mg every twelve hours, along with hydrocodone 5-325 mg to manage pain as needed. Earlier this year, on May 16, she endured a serious workplace accident while testing a smoke grenade fired from a 40 MM weapon, which malfunctioned and detonated. The incident resulted in severe injuries: her left index finger was severely damaged, the tip of her left thumb was completely lost necessitating amputation, and her forearm sustained major trauma with significant muscle and nerve damage. Additionally, she suffered large lacerations on her hand and bicep, alongside a puncture wound to her right breast. Following the trauma, she underwent surgical debridement and spent five days in the hospital. She began physical therapy on June 16. By July 14, her physical therapist observed pus exuding from the nail bed of the injured index finger. The next day, she consulted her orthopedic surgeon, who prescribed Bactrim and recommended Hi-Bicleanse soaks to be performed twice daily. However, her condition prompted concern from her therapist when they noted ongoing drainage mixed with blood. Her arm and hand exhibited swelling, color changes, and fluctuations in temperature; at one point, her hand appeared purple and felt cold, which alarmed her therapist. The previously small wound was noted to have become larger and deeper. Although the therapist advised her to seek urgent care or visit the ER, she opted to wait for her appointment with her general practitioner the following day. When she met with her GP that Tuesday, he assessed her condition as not healing adequately and took a sample of the fluid for culture, though results were pending. He administered an antibiotic injection with an anti-inflammatory agent and prescribed Amox-Clav. Despite starting the antibiotic treatment on Wednesday, the drainage continued. Since her hospitalization, she has also experienced intermittent low-grade fevers ranging from 99 to 101 degrees Fahrenheit. Concurrently, she has been suffering from significant back pain, which she attributes to her existing degenerative disc disease, although she is aware this can also signal an infection. Her physical therapists warned that the persistence of pus or blood drainage, even after several days on antibiotics, indicates the infection may not be improving. She is now contemplating whether to visit the emergency room or urgent care if her finger doesn't show signs of improvement by tomorrow. While she has an upcoming appointment with her orthopedic specialist on Tuesday, she feels anxious about potentially underreacting to her situation. Any insights would be greatly appreciated as she navigates this challenging recovery process.

LupusCrohn's DiseaseInternal Medicine
Male25-34
26 minutes ago

Postpartum Issues Three Years On

At 26 years old and weighing 135 pounds, I don’t smoke and take no medication, yet I’ve been grappling with persistent complications since the birth of my son. My labor was spontaneous and culminated in a vaginal delivery that required an episiotomy, a procedure that I feel continues to impact my life significantly, often with a touch of humor about the situation. One of my major ongoing concerns has been hemorrhoids that have stubbornly lingered since childbirth. They tend to swell and subside in an endless cycle. In addition to this, I've been dealing with frequent fissures in my vulva. These skin tears occur unexpectedly, with the tender tissue between my labia sometimes splitting open, particularly near the clitoris. It’s incredibly painful, akin to having numerous tiny paper cuts, and I often find myself at a loss for how to relieve the discomfort. There are times when these minute cuts become itchy and inflamed, leading me to suspect I might have a yeast infection, which I have attempted to treat, but with little success. Notably, there’s no typical discharge associated with bacterial vaginosis or yeast infections in my case—just an extreme sensitivity in the skin that frequently seems to rupture. Similarly, I experience issues with my rectum, including anal fissures, making it feel like my private areas are constantly under siege. The scar from my episiotomy frequently becomes sore as well. Overall, it feels as though nothing down there functions normally anymore, which is disheartening. I cherish my intimacy with my husband, but the thought of experiencing pain each time is far from enjoyable. Is this what to expect in everyday life after childbirth? I’m considering consulting my OB/GYN regarding these issues, but the wait for an appointment is lengthy, prompting me to seek advice here in the meantime.

ArthritisFibromyalgiaCrohn's Disease
Male25-34
26 minutes ago

Experiencing Worrisome Symptoms — Potential Autoimmune Flare?

Hello everyone, I'm seeking some insight before I consider heading to the emergency room. I've been dealing with autoimmune-related health issues for several years, which include: - Diagnosed with ankylosing spondylitis. - A history of positive lupus anticoagulant. - Currently active lichen planus, affecting both my skin and mouth. - Chronic fatigue coupled with inflammatory symptoms and deficiencies in vitamin D and magnesium. - Undergoing evaluation for lupus or another connective tissue disorder. In the past week, I've noticed a disturbing and rapid escalation of my symptoms, many of which are completely new to me: - Intense headaches centered in my temples that persist even throughout the night. - Blurred vision and challenges with focusing. - Tingling or numb sensations in my extremities and other areas (lasting over five days). - Episodes of excessive sweating. - Recent onset of neck stiffness. - Experiencing a tactile hallucination yesterday; it felt like something was crawling on my collarbone, but nothing was actually there. - A pervasive sense of fogginess, low energy, and mental unease. - Significant imbalance when standing. - The lichen planus has spread to my lower lip and worsened greatly. - Newly appeared painful mouth ulcers. - An unexpected pain in my outer ankle, which feels swollen but lacks any apparent injury. - Recently observed possible hair thinning. - Overall body inflammation and soreness. - Decreased appetite. - A sense of being completely run down. Previously, investigations were conducted regarding possible lupus or Sjögren’s syndrome due to fluctuating autoantibody levels and persistent inflammation. I have a routine appointment with my rheumatologist scheduled in a few weeks, but I am not currently on any immunosuppressive treatments, just medication to alleviate symptoms. This combination of new symptoms has left me feeling quite anxious. I have concerns surrounding: - Vasculitis (potentially involving the central nervous system or smaller blood vessels). - Temporal arteritis / giant cell arteritis (considering the headaches, vision issues, and neck stiffness). - Inflammation of the nervous system. - Autoimmune encephalitis. - Other serious neurological or immune system complications. Could these symptoms indicate some form of vasculitis or temporal arteritis, even at my age (in my 30s)? Is it common for tactile hallucinations to occur during an autoimmune flare or with central nervous system involvement? What types of blood tests or imaging could be beneficial in ruling out these conditions? Any suggestions, experiences, or guidance would be greatly appreciated. I recognize that diagnoses can’t be made here, but I'm feeling increasingly lost and anxious about potentially delaying necessary treatment if my condition is serious. Thank you in advance for your help!

Multiple SclerosisLupusFibromyalgia
Male25-34
46 minutes ago