Seeking Clarity on My Lab Results and Hospital Recommendations
Hello everyone, I’m a 29-year-old female dealing with a significant flare-up of Crohn’s disease. Recently, I’ve also tested positive for C. difficile, confirmed by my test results this morning, and I’m currently awaiting approval from my insurance for antibiotic treatment. I’m suffering from anemia and had to receive two units of blood back in May when my hemoglobin plummeted to a dangerously low level of 6.8. I subsequently received an iron infusion. I underwent a colonoscopy last month, which revealed severe inflammation and a C. diff infection. I have visited the hospital on two occasions: the 14th and the 18th. Unfortunately, my experience on the 14th was frustrating; the medical staff seemed indifferent, didn't perform any lab tests due to issues accessing my port, and simply administered a morphine injection before sending me home. On my second visit to a different hospital on the 18th, I faced long waits only to be dismissed again. The medical team told me there was "nothing to worry about" and neglected to provide me with a copy of my lab results. Once again, I received only a morphine shot and was discharged. I recently accessed my lab results online, and they do not look promising. I’m reaching out to see if anyone would be willing to help me interpret these results and advise me on whether a return trip to the hospital is necessary. I am in a great deal of pain, and even simple movements have become problematic. Moreover, I already consulted with my gastroenterologist, who advised me to seek hospital care if the pain worsens. However, once there, the staff suggests I contact my GI specialist for guidance, which has been quite confusing. Any assistance in understanding my situation would be immensely appreciated. Thank you!
Answers (1)
7/24/2025, 11:40:41 PM
OpenHealth AI
I'm sorry to hear that you're dealing with such a challenging situation with your Crohn's disease and a C. difficile infection. Your experiences in the hospital sound frustrating, especially given the amount of pain you're in. Let’s break down your situation and discuss some steps you can take.
Main Points:
- You have a significant flare-up of Crohn's disease with a confirmed C. difficile infection and are experiencing severe pain.
- Your anemia and past blood transfusions indicate a need for close management.
- Communication with healthcare providers has been confusing and frustrating.
Explanation:
- Crohn's Disease: This is an inflammatory bowel disease that can cause severe gastrointestinal inflammation, leading to symptoms like abdominal pain, fatigue, and anemia.
- C. difficile (C. diff): This infection can worsen gastrointestinal symptoms and often requires specific antibiotics for treatment.
- Anemia: Given your history of low hemoglobin levels, ongoing management is crucial, especially as it can cause fatigue and weakness.
Next Steps:
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Immediate Pain Management: If your pain has worsened or becomes unmanageable, do not hesitate to return to the hospital. Consider keeping a detailed record of your symptoms (pain levels, when they occur, and any changes in bowel habits) to share with the medical staff.
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Follow Up on Antibiotics: Stay in close contact with your insurance and healthcare provider to expedite your antibiotic treatment for C. difficile. This is essential for managing your infection and preventing further complications.
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Communicate with Your Gastroenterologist: Since you have already consulted your gastroenterologist, ensure you provide them with any updates on your condition, especially changes in pain or new symptoms. Request a follow-up appointment if your condition is not improving or if you feel your concerns were not fully addressed.
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Get Copies of Your Lab Results: Request a copy of your lab results if you haven't already. Understanding these results can empower you in discussions with your healthcare team. If they're confusing, consider asking your gastroenterologist's office for a clear interpretation.
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Consider a Supplement: If not already advised, discuss with your GI specialist whether you should continue iron supplements to help with your anemia, especially if you aren't receiving adequate nutrition due to Crohn's.
Remember that your pain is valid, and seeking help is crucial. Your health is the priority, and you deserve clear communication and support from your healthcare team. Please be proactive about monitoring your symptoms and don’t hesitate to seek help if you feel your condition is worsening. If you have specific lab results you'd like to discuss or need clarity on, feel free to share them within the scope of this conversation.
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