Concerns Regarding Neck Pain and MRI Results
At the age of 23, standing at 5 feet 3 inches and weighing 122 pounds, I am currently taking Buspar. I struggle with hypermobile Ehlers-Danlos Syndrome (hEDS) along with multiple unresolved issues related to muscles, nerves, and circulation. Recently, I underwent an MRI for my neck due to several troubling symptoms including muscle weakness, episodes of vertigo, pain in my neck and occipital region, frequent headaches, and discomfort radiating to my arms. The results indicated a ‘nonspecific loss of vertebral artery flow voids.’ My primary care physician, who tends to be rather inattentive, reviewed my scan and stated that everything appeared normal, merely suggesting I consult a neurologist regarding my headaches. I’m deeply concerned by their comment that there’s nothing significant; this feels like it could be a critical factor in understanding my other health issues. My neck is persistently painful, regardless of the position I’m in, and I sometimes struggle to support it. I find that even minor movements can easily lead to discomfort or pain, such as simply turning my head down or sideways, which triggers neck pain and headaches in the occipital area. I’m apprehensive about scheduling a neurology appointment only to face dismissal once more. What steps should I take next?
Answers (1)
7/21/2025, 3:31:04 PM
OpenHealth AI
It sounds like you’re dealing with a number of complex symptoms and a lack of clarity about your MRI results, which can certainly be distressing. The loss of vertebral artery flow voids noted in your MRI may be related to your hypermobile Ehlers-Danlos Syndrome (hEDS) and could contribute to your symptoms, but it’s important to gather more information.
Main Points:
- Understand your MRI results better.
- Address your ongoing symptoms with clear strategies.
- Find a way to communicate your concerns effectively to healthcare providers.
Explanation
Your diagnosis of hEDS can complicate symptom management due to the nature of the condition affecting connective tissues, which can lead to issues like joint instability and nerve compression. Muscle weakness, vertigo, neck pain, and radiating discomfort can occur for numerous reasons, including nerve irritation or vascular concerns linked to the structure of your vertebrae.
The mention of "nonspecific loss of vertebral artery flow voids" suggests possible disruption in blood flow but does not always correlate with immediate neurological risk. However, these findings should not be ignored, especially considering your symptoms.
Next Steps
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Symptom Diary: Start keeping a detailed diary of your symptoms, noting when they occur, their intensity, what activities preceded them, and any other relevant factors (e.g., fatigue, stress). This can help clarify patterns and triggers which you can present to your neurologist.
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Consult a Neurologist: Despite your apprehension about being dismissed, it is prudent to seek a second opinion, especially from a neurologist who has experience with hEDS. Prepare to discuss your symptoms in detail, reference your MRI results, and express your concerns about how these might relate to your quality of life.
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Consider Physical Therapy: A physical therapist who specializes in hEDS can work with you on strengthening exercises and strategies to manage pain and improve neck stability. Even gentle movements and stretching, when done correctly, may assist with alleviating discomfort.
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Pain Management: Depending on your situation, explore non-pharmacological approaches like heat therapy, relaxation techniques, or cognitive behavioral strategies for pain management. These can complement your current treatment plan.
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Education and Support: Look for support groups or online communities for individuals with hEDS, where you can share experiences and advice. Knowing you’re not alone can provide emotional support and practical tips.
Try to advocate for yourself during appointments. If you feel like you’re not being taken seriously, don’t hesitate to seek another professional's opinion. Your health concerns are valid, and it's important that you feel heard and understood.
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