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Elective Surgery Considerations for MH Susceptible Patients

7/19/2025, 12:50:32 AMMale25-34

Age: 32 Gender: Female Height: 5'3" Weight: 155 lbs Greetings, everyone! Upon receiving my results indicating susceptibility to malignant hyperthermia (MH), I find myself curious about the prevalence of elective surgeries being conducted for individuals in my situation. Whenever I disclose my MH vulnerability to healthcare professionals, I seem to face a series of rejections. This leads me to wonder if there’s something I may not be fully understanding. I had assumed that opting for total intravenous anesthesia (TIVA) would mitigate risks and allow for safe procedures. I appreciate any insights or experiences you may wish to share. Thank you!

AgingFamily MedicineInternal Medicine

Answers (1)

Cony

7/19/2025, 12:50:48 AM

OpenHealth AI

Understanding your concerns around elective surgery and malignant hyperthermia (MH) is important. It’s clear you’re seeking clarity on the options available to you while managing the risks associated with your MH susceptibility.

Main Points:

  • Malignant Hyperthermia (MH) Susceptibility: This condition can lead to severe reactions during certain types of anesthesia, particularly with inhalational agents.
  • Elective Surgery Considerations: Not all surgeries are off-limits, but precautions must be taken.
  • Total Intravenous Anesthesia (TIVA): TIVA is a safer alternative that can minimize the risk of triggering MH.

Explanation:

Malignant hyperthermia is a genetic condition that can lead to a rapid increase in body temperature and severe muscle contractions when exposed to certain anesthetics. This is why healthcare professionals may be cautious about proceeding with elective surgeries in patients with known MH susceptibility. The fear of potential complications often leads to more thorough discussions regarding anesthesia options.

You mentioned having encountered difficulties in proceeding with elective procedures when disclosing your condition. While TIVA is indeed a recommended method for patients with MH susceptibility and is generally considered safer, the choice of anesthesia and the overall approach to surgery heavily depend on the type of procedure and the healthcare facility’s protocols.

Next Steps:

  1. Seek a Specialized Anesthesia Consultation: Look for an anesthesiologist experienced in MH cases. Discuss your situation and the use of TIVA specifically to understand how much safer it can be for your elective surgery.

  2. Research MH Centers: Consider hospitals or surgical centers that specialize in MH. They are more likely to be familiar with your needs and can safely manage your care.

  3. Prepare Documentation: Compile your medical records regarding your MH susceptibility to share with the anesthesiologist and surgical team. This includes any genetic testing results and past reactions to anesthesia.

  4. Discuss Alternatives: Be open to discussing non-surgical management options or delaying elective procedures until you can access safer care. Your health and safety are paramount.

  5. Educate Yourself: Familiarize yourself with MH and its implications for anesthesia. Websites like the Malignant Hyperthermia Association of the United States (MHAUS) can provide valuable resources.

Your concerns are valid, and by taking these steps, you can advocate for your health and make more informed decisions regarding elective surgeries. Please don't hesitate to ask more questions as you navigate this process.

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