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Seeking Insights on a Recent Medical Condition

7/16/2025, 10:50:46 AMMale25-34

Greetings Everyone, I am a 21-year-old female currently receiving treatment under the NHS, with surgery scheduled in the upcoming months. Standing at 5 feet 2 inches tall and weighing 10 stone 12 pounds, I recently underwent an MRI with contrast. The results revealed two significant masses. The lower mass, measuring 16 centimeters, has been confirmed as a Dermoid Cyst. The upper mass, located in the mid-abdomen and measuring 11 centimeters, remains undiagnosed. Its features include: - 157% enhancement post-contrast - Soft tissue composition - Patchy enhancement observed - Restricted diffusion - Indenting the small intestine, yet no apparent attachment - No association with the uterus or ovaries In addition to this, I have been experiencing severe constipation, and I'm currently using 6-8 sachets of CosmoCol daily alongside pain relief for intermittent side discomfort. My gynecologist suspects that it could be a Fibroma; however, I have significant doubts regarding this, as my understanding is that Fibromas are typically not located in the abdominal area and do not usually exhibit such pronounced enhancement. With my surgery approaching, I'm eager to discuss the potential of a Gastrointestinal Stromal Tumor (GIST) with my gynecologist. However, I have faced repeated dismissals whenever I raise concerns that deviate from the Fibroma diagnosis. I would appreciate any guidance or thoughts on this situation. Is it feasible that this could be a Fibroma, and do the characteristics align with that possibility? Please note, I am not seeking a diagnosis, but rather some constructive advice and perspectives. Thank you!

FibromyalgiaCrohn's DiseaseRheumatology

Answers (1)

Cony

7/16/2025, 10:51:04 AM

OpenHealth AI

It's understandable that you're feeling anxious about the discovery of the masses and the upcoming surgery. Your situation involves a complex medical condition that warrants careful consideration. Let’s break this down.

Key Points

  1. You have a confirmed dermoid cyst and an undiagnosed upper mass with specific MRI characteristics.
  2. Severe constipation and discomfort are significant concerns.
  3. You’re seeking clarity about the possibility of a fibroma versus other conditions, like a GIST, and looking for constructive advice.

Explanation

The characteristics of the upper mass and your current symptoms suggest that it could be a variety of things; however, it’s good to approach this with some knowledge. Fibromas (often referred to as fibroids when related to the uterus) are typically benign tumors and primarily arise in the uterine region. Based on your description, particularly the mass’s location in the mid-abdomen and its imaging features, a fibroma might be less likely. Gastrointestinal stromal tumors (GISTs) can occur in the stomach or intestines and might align more closely with your concerns, given the mass's features.

Prioritized Next Steps

  1. Document Symptoms: Keep a detailed record of your symptoms (constipation severity, pain location, etc.) and how they have progressed. This information can be valuable during your next appointment.

  2. Prepare for Discussions: Write down specific questions and concerns related to the diagnosed conditions and potential alternatives like GIST. If you feel dismissed in discussions, consider requesting a second opinion or asking for a referral to a specialist who focuses on abdominal or gastrointestinal masses.

  3. Manage Constipation: While waiting for your surgery, continue using CosmoCol as directed, but also incorporate additional hydration and consider dietary changes (like increased fiber) to aid bowel movements. Discuss any added medications or supplements with your healthcare professional.

  4. Follow-Up on Surgery: Stay engaged with your healthcare team regarding details about the surgery, including what to expect and how they plan to address the undiagnosed mass.

  5. Seek Support: Connect with support groups or resources related to your symptoms and conditions. Engaging with others who have similar experiences can provide comfort and useful perspectives.

Reassurance

It’s completely normal to have concerns about your health, especially with uncertain diagnoses. Remember, your voice is important in your care journey. If you feel your concerns are not being addressed, it is within your rights to seek further opinions. You are advocating for your health, and that’s an essential part of the process.

Feel free to share any additional updates or concerns, and I wish you the best with your upcoming surgery and management of your symptoms.

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