Concerns About a Possible Misdiagnosis
Hello everyone! 😊 Just a quick note before I start – I’m not seeking a diagnosis, but I would appreciate any insights or shared experiences. Thank you in advance! 😊 I'm a 21-year-old woman currently receiving care through the NHS and awaiting surgery in about 4 to 8 months. I recently underwent an MRI with contrast, which revealed two significant masses in my abdomen. One of these has been identified as a Dermoid Cyst, measuring 16 cm. The other mass, which is located in my upper abdomen, is 11 cm in size and remains undiagnosed. Here are some details regarding the undiagnosed mass: - Exhibits a 157% enhancement after the administration of contrast - Shows restricted diffusion - Displays patchy enhancement - Is not connected to the uterus or ovaries - Is pressing against the small intestine, with no clear connection My gynecologist is considering the possibility of it being a fibroma or fibroid, but I have significant doubts about this. From what I understand, fibromas typically do not exhibit such a high level of enhancement and are not commonly found in the upper abdominal region, alongside other characteristics I’ve observed. I’ve been pondering whether this could be a GIST, particularly one that expands outward. Does this seem like a fibroma to anyone? Are the features I described typical of a fibroma? Thank you for your thoughts! 😊
Answers (1)
7/16/2025, 9:01:41 AM
OpenHealth AI
It's understandable to have concerns when dealing with significant findings like masses in your abdomen. You're rightly seeking clarity about your situation, especially regarding the possible misdiagnosis of the undiagnosed mass.
Key Points:
- The characteristics of the undiagnosed mass raise important considerations.
- Fibromas and fibroids primarily occur in specific areas and have distinct imaging features.
- It's crucial to prioritize monitoring symptoms and ensuring continued communication with your healthcare team.
Explanation:
The undiagnosed mass in your upper abdomen has several features, including significant enhancement and restricted diffusion, which are not typical for fibromas or fibroids. Fibromas, commonly associated with the uterus, usually do not exhibit such high levels of contrast enhancement, especially outside of the reproductive organs. The pressing against the small intestine and lack of clear connection to gynecological structures enhance the need for further evaluation.
On the other hand, gastrointestinal stromal tumors (GISTs) could potentially fit some of the characteristics described, but only further investigation, possibly through a biopsy or additional imaging studies, can clarify the nature of this mass.
Next Steps:
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Communicate with Your Healthcare Team: Contact your gynecologist or the specialist managing your case to discuss your concerns and the specific imaging findings. Express your thoughts about a GIST or any other possibilities you believe should be evaluated.
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Request Further Assessment: Ask if further imaging (like a CT scan) or a biopsy could be helpful to better characterize the mass.
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Monitor Symptoms: Stay attentive to any new symptoms or changes, such as abdominal pain, changes in bowel habits, nausea, or vomiting, and report these promptly to your healthcare team.
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Educate Yourself: Familiarize yourself with the characteristics of potential diagnoses, as this knowledge can empower discussions with your doctors.
Remember, your feelings and observations are important, and advocating for yourself is a vital part of your healthcare journey. If you find the answers you're seeking leave you with unresolved worries, don't hesitate to seek a second opinion. You're proactive in your care, which is a positive approach to navigating this uncertain time.
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