Concerns Regarding Adenomyosis at 27 Years Old
I am a 27-year-old female currently navigating some health concerns regarding potential adenomyosis. After experiencing midcycle bleeding, I underwent a transvaginal ultrasound in July 2024. The radiology report labeled the pelvic ultrasound as "normal" without delving into further details, only providing measurements of my ovaries. I have a long-standing history of severe menstrual cramps and have dealt with excessively heavy periods in the past. For the last 15 years, I was on birth control until April 2024, as I am currently trying to conceive (TTC). Unfortunately, I've had four chemical pregnancies and am now consulting a reproductive endocrinologist due to unexplained infertility. I can't shake the feeling that the dark cyst-like areas observed in my ultrasound could indicate adenomyosis. Do these ultrasound findings seem aligned with what is commonly seen in adenomyosis? What specific inquiries should I make to gain more clarity on this issue?
Answers (1)
7/14/2025, 11:01:36 PM
OpenHealth AI
It sounds like you're experiencing understandable concerns regarding your health, particularly around the possibility of adenomyosis and its impact on your fertility journey. Adenomyosis can indeed present itself through symptoms like severe menstrual cramps and heavy bleeding, but let's explore this situation further together.
Understanding the Issue
Adenomyosis occurs when the tissue similar to the lining of the uterus begins to grow into the muscular wall of the uterus. This condition can lead to symptoms like heavy menstrual bleeding, pain, and discomfort. Ultrasound findings in adenomyosis can sometimes show cyst-like areas or certain changes, but a "normal" ultrasound report does not definitively rule it out. The presence of dark areas on ultrasound can be due to other benign conditions too, so it's important to gather more information.
Prioritized Next Steps
Here are some steps you can take to gain clarity and progress towards addressing your concerns:
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Request Detailed Imaging Review:
- Ask your reproductive endocrinologist to clarify the ultrasound findings. Request an explanation of what the “dark cyst-like areas” might indicate. Sometimes imaging can be subtle in showing signs of adenomyosis, and a specialist can offer better insights.
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Inquire About Additional Diagnostic Options:
- Discuss potential further testing options, such as MRI, which can provide clearer images of the uterus and help assess for adenomyosis or other conditions.
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Discuss Your Symptoms:
- Clearly outline all your symptoms to your endocrinologist, including past menstrual issues, and any changes you've noticed since stopping birth control, including the impact of your chemical pregnancies.
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Explore a Comprehensive Fertility Evaluation:
- Share your concerns regarding unexplained infertility. Ask about a full fertility evaluation that could include hormone tests, assessments for ovulation, and any structural concerns that could affect conception.
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Seek Support:
- Consider joining support groups or speaking with a counselor specialized in reproductive health. This can be emotionally beneficial as you navigate these challenges.
Moving Forward
Keep a symptom diary that details your menstrual cycles, any pain, and other symptoms. This information can help your doctor better understand your condition. Remember, it's important to advocate for yourself, and gathering information is key to feeling empowered in your healthcare decisions. You're taking important steps by seeking clarity on these issues. If you need further assistance or encouragement, feel free to reach out.
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7 Months Old) - **Weight:** 9 kg (good growth rate in spite of condition) - **Jaundice:** Continues to be present (yellow skin) - **Stools:** Remain pale/clay-colored - **Development:** Achieving appropriate milestones - **Energy:** Appears to have a good energy level - **Feeding:** Normal appetite --- ## QUESTIONS FOR r/AskDocs We have been informed this is **Type 2 Abernethy malformation** (portal vein present). **Three treatment avenues have been proposed:** ### Option 1: **Endovascular Coil Embolization** (minimally invasive approach) - A catheter is inserted via the leg vein to access the shunt and deploy coils/plugs to close the abnormal vessels - Pros: No surgical incision, minimal discomfort, short hospital stay (2-4 days), no scars, enhanced safety - Duration: 1-2 hours - Recovery: 2-4 weeks for jaundice to show improvement ### Option 2: **Open Surgical Intervention** - An incision in the abdomen to ligate abnormal vessels and redirect blood to the liver - Pros: Direct visualization, effective results - Cons: Surgical scar, longer recovery time (7-14 days in hospital) - Duration: 2-4 hours ### Option 3: **Liver Transplantation** - We have been advised this is not necessary as the portal vein is functional and liver health is improving. --- ## SPECIFIC QUESTIONS TO CONSIDER: 1. **With a functional portal vein (6.1 mm) and improving liver function (ALT normalized), is it advisable to pursue endovascular closure as the preferred treatment?** 2. **Despite ALT levels improving, the bilirubin remains consistently high (242). Should this be a cause for concern? Is there a prospect for it to normalize post shunt closure?** 3. **Are the hemangiomas/nodules (11.6×20.7 mm) linked to the shunt? Will they likely resolve following shunt repair?** 4. **How urgent is the proposed intervention? Is immediate action required, or is there flexibility to wait a few months?** 5. **What complications should we be vigilant for during the waiting period?** 6. **Regarding endovascular closure - what is the average success rate for infants aged 7 months? Are there concerns regarding the shunt size (9.9 mm)?** 7. **The measurement of the portal vein has shown improvement from 6.1 mm to 3.9 mm; should this be perceived as a positive sign or a reason for concern?** 8. **Are there special directives (diet modifications, medications) we should consider while awaiting the procedure?** 9. **Post-procedure, how long should we expect it might take for:** - Normalization of bilirubin levels? - Return of stool color to normal? - Resolution of jaundice? - Regression of hemangiomas? 10. **Can you recommend any specialized centers for pediatric Abernethy malformation treatments? We are located in Uzbekistan but are prepared to travel (to Turkey, Russia, South Korea, etc.)** --- ## ADDITIONAL INFORMATION - No family history of hepatic diseases - Pregnancy and delivery were normal - No additional congenital defects identified - Immunizations up to date - No history of bleeding disorders - No signs indicative of encephalopathy - Child is alert and engaged --- **I can supply actual MSCT images and comprehensive lab reports if they would be of assistance.** We sincerely appreciate any insights you can provide. We are striving to make the most informed decision regarding our daughter’s care and highly value expert medical opinions. **TL;DR:** 7-month-old diagnosed with Abernethy Type 2 malformation (9.9 mm portocaval shunt, patent portal vein). Liver functionality is improving (normalized ALT) while bilirubin remains elevated (242). Evaluating options between endovascular coil embolization and open surgery. Seeking expert advice on optimal treatment strategy and timing.