OpenHealth Q&A

Get answered by medical professionals

Frustrating Health Struggles Doctors Dismiss as Normal

7/13/2025, 11:40:24 AMMale25-34

At 19 years old, my health took a significant downturn last October, which has left me feeling completely overwhelmed. My hair has turned excessively greasy, and my face exhibits noticeable swelling. I went from having clear skin to suffering from severe breakouts, and I'm experiencing what I suspect are episodes of low blood sugar. Additionally, I’ve developed insomnia, and my menstrual cycle has shortened to just 22 days. I've invested around $5,000 in consultations with various specialists in hopes of uncovering the underlying issue affecting my health, and I'm determined to continue seeking answers. Unfortunately, I have not been taken seriously by any medical professionals, as they claim that these symptoms are simply a part of normal hormonal changes, recommending only that I increase my food intake. I have undergone comprehensive blood tests and have consulted with two gynecologists as well as an endocrinologist. The results generally came back normal, except for slightly elevated prolactin levels and low DHEA, which the endocrinologist dismissed as not concerning. Discussing my health complications is difficult, particularly since they began after my first experience with sexual intercourse, which was extremely painful. I've been continuously reassured by medical practitioners that there is nothing they can do, yet I felt perfectly well prior to that experience. Shortly after, I began experiencing unexpected allergies, persistent fatigue, a decrease in libido, and trouble sleeping at night. Lately, my symptoms have escalated. My skin condition has worsened; despite attempts to manage it with Accutane, there have been no improvements. My moods have plummeted, and the most distressing aspect of my situation is an unrelenting hunger that doesn’t diminish, often accompanied by feelings of dizziness and lightheadedness. It’s not the usual hunger that comes from needing food; rather, even eating doesn’t alleviate this sensation. I'm at a loss and long for a return to normalcy. My ability to concentrate has been severely affected, and I’ve had to withdraw from university because I can only manage work, eating, and sleeping. In August of last year, I was told I had a cyst in my pouch of Douglas, but I’ve since learned that it has resolved, leaving me with 22cc of free fluid in that area; I’m unsure if this detail is pertinent. Presently, I maintain a healthy diet, consuming four meals a day and trying to eat within half an hour of waking. I avoid caffeine and limit alcohol to perhaps twice a month. My diet consists of whole foods, plenty of vegetables, lean meats, and whole grains. I also drink about 3 to 4 liters of water daily and have an active job. Furthermore, I don't have polycystic ovary syndrome or endometriosis. Any suggestions or guidance would be greatly appreciated.

Thyroid DisordersEndocrinologyRheumatology

Answers (1)

Cony

7/13/2025, 11:40:40 AM

OpenHealth AI

I'm sorry to hear about the difficult health challenges you're facing. It sounds incredibly overwhelming and frustrating, especially given the significant effort and resources you've already invested in seeking answers. Your symptoms and concerns are valid, and it’s essential to address them systematically.

Main Points:

You’re experiencing multiple distressing symptoms, including greasy hair, facial swelling, severe breakouts, short menstrual cycles, insomnia, and feelings of unrelenting hunger with dizziness. With normal test results, it's crucial to focus on potential underlying conditions and lifestyle adjustments while continuing to seek specialist guidance.

Explanation:

Your symptoms could arise from various causes, including hormonal imbalances, stress, dietary insufficiencies, or conditions that haven’t yet been identified. The elevated prolactin and low DHEA can indicate hormonal fluctuations that might need further exploration. Persistent fatigue, changes in your skin, and issues with hunger could suggest underlying metabolic or hormonal functions that aren’t fully diagnosed yet.

It's particularly concerning that your symptoms escalated after a specific event; it may be worth investigating any potential trauma or physical implications from that experience. Given the central role hormones play in numerous bodily functions, particularly regarding your reproductive health, it’s essential to maintain an open dialogue with your healthcare providers about all your symptoms, including psychological impacts.

Next Steps:

  1. Keep a Detailed Symptom Diary: Track your daily symptoms, mood changes, appetite variations, sleep patterns, and any potential triggers (like stress or food). This will help identify potential correlations or patterns.

  2. Consider Nutritional Feedback: Since you're already eating a healthy diet, consult with a nutritionist who specializes in hormonal health. They can help tailor your diet further to address energy levels and hunger issues, perhaps focusing on stabilizing blood sugar levels and increasing nutrient variety.

  3. Stress Management Techniques: Incorporate stress-relief practices such as mindfulness, yoga, or meditation, which can help with hormonal balance and mental wellbeing. Even brief daily practices can be effective.

  4. Explore Alternative Therapies: Since traditional medicine hasn’t yielded satisfactory results, consider exploring integrative medicine options, such as acupuncture or herbal supplements, under the guidance of a knowledgeable practitioner.

  5. Request Further Evaluation: If symptoms persist or worsen, you might want to seek a second opinion from a different specialist, such as a functional medicine doctor, who can take a more holistic view of your health concerns.

  6. Follow Up on Hormonal Tests: Ensure you discuss the implications of elevated prolactin and low DHEA with your endocrinologist. Sometimes, low DHEA can be linked to mood and energy changes, warranting further exploration.

Conclusion:

You’re doing well by seeking help and maintaining a healthy lifestyle. Keep advocating for yourself and your health; persistent symptoms are worth exploring until you find a solution. Please keep track of any changes or new symptoms, and stay in touch with any support networks available to you. Don't hesitate to reach out for further guidance or updates on your progress. You deserve to feel better and reclaim your quality of life.

Related Questions

Identifying Skin Marks on My Child

My 5-year-old daughter, who has no history of allergies, has developed peculiar skin marks over the past four to five days. Each morning, I observe these blemishes, which mysteriously disappear by the next day, only to reappear in different locations. The majority of these spots are located on her lower back, buttocks, and the back of her thighs, although I've also seen some on her upper back and a single one on her cheek. As an additional note, she began exhibiting mild cold symptoms last night, including a cough, some mucus, and a slight increase in body temperature. To provide further context: she mentioned that the marks are somewhat itchy, but she hasn’t been scratching them excessively.

COPDInternal MedicineEndocrinology
Male25-34
34 minutes ago

Impact of Tegretol Overdose at Age 7

As a woman now in her late thirties, I reflect back on a significant event from my childhood. At just seven years old, I accidentally ingested a large quantity of Tegretol, a medication prescribed to my brother for his epilepsy. Without realizing the danger, I swallowed a handful of those pills and fell asleep on the couch next to my mother. To my surprise, I regained consciousness a week later in a hospital bed. My mother recounted that I had suffered a seizure, at which point she found herself unable to awaken me, leading to a state of coma. Once I awoke, the emotional shift was profound; I transitioned from sadness to experiencing a tumultuous range of feelings. I am now curious about how such an overdose could have impacted my brain function. I attempted to search online for insights but came up empty-handed. Any information or shared experiences related to brain effects from similar situations would be greatly appreciated. Thank you in advance!

Multiple SclerosisInternal MedicineEndocrinology
Male25-34
54 minutes ago

Unexplained Symptoms Over the Past Few Years

Greetings, Around three years ago, I started to experience a variety of symptoms that appeared quite abruptly. They seemed to improve briefly, only to return later. This initial onset threw me into a panic, leading me to suspect something severe, like cancer. After consulting my physician, I underwent tests through a neurologist and had multiple lab analyses, yet no definitive diagnosis emerged. Frustrated by the ongoing uncertainty, I ceased my attempts to find answers and have not revisited the doctor for these issues in years. This situation dates back to approximately 2021, coinciding with my time as a nursing student. While I can't be sure if there's a connection, it was around this period that I contracted COVID-19 for the first time and also received my annual flu shot as part of my nursing curriculum. Additionally, I was treated for melanoma during this time, undergoing a Mohs procedure to eliminate it, which was part of the initial anxiety surrounding my symptoms. Below are the symptoms I’ve documented: The first change I noticed was an unrelenting muscle fatigue. Simple tasks such as carrying groceries or working outdoors left me feeling immensely winded. I began to realize that the muscles in my neck felt excessively weak, and my arms and legs, although still functional, felt distinctly weaker than before. Although I could still perform my usual activities, I often felt unsteady, especially when descending stairs. Shortly thereafter, I began suffering from frequent muscle cramps at night and persistent twitching in my muscles during the day, particularly in my legs. I also observed involuntary movements in the inner arches of my feet, which, while somewhat common, were consistently present and unusual for me. Another concerning symptom was the onset of intermittent blurred vision. This issue varies in intensity, making it particularly troublesome during episodes that seem to flare up, often exacerbated by bright lighting, like that from screens or sunlight streaming through open windows. I found myself increasing the font size on screens and printed material because reading became quite challenging. While I haven’t seen an eye care professional yet, the suddenness of these vision problems caught me off guard. Additionally, I observed a significant size disparity between the muscles in my arms; my left arm appeared noticeably bulkier than my right. As a left-handed individual, I had never paid much attention to this before, though it’s possible it’s been like this for some time. The most perplexing symptom, one that’s been difficult to research, involves my right shoulder area. The deltoid region developed an odd squishy sensation. This prompts me to mention the flu and COVID-19 vaccinations. I’ve found no information on this symptom, and inquiries yield little guidance. Initially, it felt as if a lump had developed beneath my deltoid. Gradually, the entire area became squishy, resembling fibrous, lumpy tissue rather than muscle. In contrast, when I flex my left arm, it feels muscular and firm, whereas the right arm feels substantially softer. This strange condition raises questions—could a flaw in the vaccine administration by classmate healthcare students have contributed to this issue, or is it related to my other unexplained symptoms? As for medical evaluations, my Basic Metabolic Panel and Magnesium levels were unremarkable, as was my Complete Blood Count. Further inflammatory markers including CRP, CK, and ESR all returned normal results. My hemoglobin A1c was towards the high end of normal but did not classify as pre-diabetic. Autoimmune tests yielded no significant findings, and a nerve conduction study did not reveal any abnormal results either. The results from an EMG suggested mild increased insertional activity in several tested muscles, though it was deemed possibly normal, yet it might indicate an EMG disease. Unfortunately, I was unable to undergo MRI imaging due to insurance challenges at that time. I am a 42-year-old male with no significant past medical history beyond the prior melanoma and not currently using medication, aside from over-the-counter Benadryl for sleep issues. Apologies for the detailed narrative, but I felt this could be a valuable forum for seeking perspectives. I appreciate your time. It’s important to clarify that I am not prone to hypochondria; prior to these developments, I rarely sought medical care and, oddly enough, didn’t even have a primary care provider when these symptoms began.

FibromyalgiaThyroid DisordersInternal Medicine
Male25-34
1 hour ago

Inquiry Regarding FDG-PET Scan Findings

I recently underwent an FDG-PET/CT scan for my brain to investigate some cognitive difficulties I've been experiencing. Although the report is now available on My Chart, my follow-up appointment with the doctor is scheduled for three weeks from now. I have a query regarding the standard deviation scale presented in the report, which lists values from -2 to -4.6. What does the lowest value signify? Is the scale graded on a 1-5, 1-10, or perhaps 1-100 basis? I appreciate your assistance with this! Notable regions noted for decreased metabolic activity include: - Left Inferior frontal gyrus, triangularis: SD "4.6" - Left Heschl gyrus: SD "3.8" - Left Superior temporal gyrus: SD "3.6" - Left Middle temporal gyrus: SD "3.4" - Left Supramarginal gyrus: SD "2.6" - Left Inferior parietal lobule, supramarginal area: SD "2.1" Other areas displaying low metabolism are: - Right Superior frontal gyrus, medial: SD "3.2" - Left Superior frontal gyrus, medial: SD "2.2"

Thyroid DisordersInternal MedicineEndocrinology
Male25-34
1 hour ago

Seeking Clarity on a Pediatric Surgical Experience

One of my earliest recollections involves surgical gauze wrapped around my genitals and being cautioned to exercise caution regarding my circumcision. This incident dates back to around 1972, when I was roughly three years old. My brother, who was eleven at the time, corroborates this memory and recalls that the bandage remained in place for "a few weeks." His recollection is a bit unclear, but he does remember seeing me running around without pants and with a gauze dressing. He believes the dressing wasn't overly bulky and doesn't recall any stent being used. However, I am aware that his memory may not be completely accurate based on other conversations we've had. He recalls being informed that I underwent surgery for an undescended testicle, yet was never made aware of a circumcision being involved. Later, a physician indirectly confirmed that I had undergone an early orchidopexy. This memory piques my curiosity, particularly since my parents have never brought it up with me. I have knowledge of having glanular/coronal hypospadias, and the details of my situation appear to align with images I’ve encountered depicting partial hypospadias corrections. This leads me to wonder if my circumcision might have actually been related to hypospadias surgery. Unfortunately, any tangible proof of these events was lost when I underwent gender confirmation surgery as a trans woman three decades ago. It's conceivable that the standard circumcision procedure typically performed at birth could have been postponed, given that I was born slightly premature and had significant Rh disease and hypoxia. But could it have been deferred until I reached the age of three? I have made attempts to obtain my medical records, but unfortunately, they have been destroyed over the years. While I understand that definitive answers may be elusive, I would greatly appreciate any insights or thoughts on this matter.

ArthritisCrohn's DiseaseRheumatology
Male25-34
1 hour ago