Concerns About My CKD Diagnosis and Ultrasound Findings
Summary: Experiencing left kidney discomfort leading to a diagnosis of chronic kidney disease (CKD). Could my ultrasound results shed light on the underlying cause of my CKD? Are there any indicators that I should address with my healthcare providers? I’m a 28-year-old female, standing at 5'2" and weighing 115 pounds, with prior posts detailing fluctuations in my kidney function that seem to have reached a plateau. Out of nowhere, I began suffering from persistent pain in my left side, extreme fatigue, and a significant lack of energy. My estimated Glomerular Filtration Rate (eGFR) plummeted to as low as 50 during a particularly concerning period. Each medical professional I consulted acknowledged something was amiss yet offered little more than vague reassurances—my nephrologist even mentioned, "There’s an issue with your kidneys, but I cannot pinpoint it. Let’s reconvene in six months." After approximately four months, I noticed a gradual improvement in my energy and stamina, coupled with a reduction in the pain in my left kidney, resulting in an improvement of my eGFR to 60. Now, nearly a year later, I still face ongoing flank pain, my creatinine levels remain high, and my eGFR is still concerningly low. Upon reviewing my doctor's notes, I discovered that I have been diagnosed with CKD without any prior discussion or referral about this condition. I am eager to understand the specifics of my condition, or, at a minimum, the potential origins of my CKD. Regarding the kidney ultrasound, I have ongoing inquiries about the findings, but every physician merely cites the radiology report, often neglecting the actual images. Upon reviewing the ultrasound myself, the difference between my left and right kidneys is striking. I believe that analyzing these ultrasound images might provide critical insights or guide me toward the next steps in addressing my health issues. Any input regarding potential concerns or suggestions on what I should explore next would be immensely appreciated! Health Conditions: Diagnosed with hypermobility Ehlers-Danlos syndrome, polycystic ovary syndrome (PCOS), Raynaud's phenomenon, postural orthostatic tachycardia syndrome (POTS)/dysautonomia, mast cell activation syndrome (MCAS), atopic dermatitis, and a potential diagnosis of mixed connective tissue disease (MCTD) that is still under evaluation by my doctor. Medications: Currently taking 100 mg of Spironolactone and 15 mg of Adderall.
Answers (1)
7/13/2025, 12:02:19 AM
OpenHealth AI
Thank you for sharing your concerns regarding your Chronic Kidney Disease (CKD) diagnosis and ultrasound findings. It’s understandable to seek clarity about your condition and its underlying causes, especially given your complex health background.
Main Points
- Your ultrasound results can indeed provide valuable insights into your CKD and potential causes.
- Ongoing monitoring and understanding your symptoms and lab results are crucial steps you can take.
- Direct communication with your healthcare team about your ultrasound findings is essential.
Explanation
Chronic Kidney Disease can occur for various reasons, including congenital issues, infections, or structural abnormalities, which may be identifiable through imaging like an ultrasound. The observation of significant differences in size or appearance between your left and right kidneys may indicate problems such as obstruction, scar tissue, or cysts, particularly since you have other health conditions that can impact your kidney function.
Furthermore, fluctuations in your eGFR and creatinine levels suggest that you may need a careful review of factors that could contribute to these changes, such as your diet, medication regimen, and overall hydration status.
Next Steps
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Review Ultrasound Findings: Request a detailed discussion with your nephrologist or a radiologist about the ultrasound images. Ask specifically about any noticeable differences in your kidneys and how they might relate to your CKD. A visual understanding can provide more context than the written report alone.
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Keep a Symptom Journal: Document your flank pain, energy levels, and any other symptoms you experience. Tracking these over time will be beneficial when discussing them with your healthcare provider.
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Explore Further Testing: Inquire if additional tests such as blood tests for inflammation markers or a 24-hour urine collection would be recommended to gather more information regarding potential underlying issues or changes in your kidney function.
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Nutritional Considerations: Work on a balanced diet that supports kidney health. Reducing sodium intake and staying hydrated can be helpful. Consider consulting a dietitian who specializes in kidney disease for personalized advice.
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Join Support Groups: Since you have a complex medical history, connecting with communities or support groups for individuals with CKD or related conditions can help you navigate your experiences and gain insights from others.
Lastly, stay proactive in your follow-ups. If you feel that your concerns aren't being addressed adequately, consider seeking a second opinion from another nephrologist for further clarity on your CKD and management options. Your health and peace of mind are paramount, and you deserve a thorough understanding of your condition.
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