Seeking Guidance on Unexplained Symptoms and Lack of Clarity on Health Referral
Hello everyone, I realize that nobody here can provide a diagnosis, and I must adhere to the guidance of my healthcare professional; however, I would greatly value any insights or support from those who might have faced similar issues or can share helpful advice regarding next steps. In 2022, I underwent my last cervical smear test, which returned a negative result for HPV. By November 2024, I began experiencing unexpected bleeding between my menstrual cycles and after intercourse, as well as discomfort during sexual activity. I consulted my doctor in February 2025, but was reassured that my symptoms were probably harmless, given my young age in my early twenties and the prior negative smear test. However, by March, I noticed a considerable, unintentional weight loss without any changes to my diet or physical activity, which I attributed to pressure from work. As May approached, my symptoms escalated: I experienced heavy bleeding post-intercourse that made me think my period arrived prematurely by 12 days. When my actual period eventually started, it was rather heavy and predominantly composed of dark brown blood. Additionally, I began to suspect urinary leakage or potentially a significant amount of watery discharge accompanied by a strong odor, leaving me uncertain about the exact nature of the issue. Upon my return to the doctor, he concurred that further exploration was warranted. He observed irregularities on my cervix, prompting an urgent referral through the NHS for suspected cervical cancer under their two-week wait protocol. He also performed swab tests to rule out possible infections, all of which returned negative. The day after, I underwent a transvaginal ultrasound, which I appreciated, but I have been unable to access the results as they are locked in my medical records. A few days after the scan, I was contacted to arrange a biopsy appointment based on the findings, with instructions to take pain relief beforehand due to anticipated discomfort. Upon my arrival, however, the consultant determined that a biopsy was not necessary. She ordered another round of swabs (despite my recent clear results) and inquired about my plans regarding children, all without providing any follow-up strategy or explanation for her decisions. I left the appointment feeling bewildered and anxious, still lacking clarity about my situation, and uncertain about the next steps. Currently, I continue to have bleeding between my periods, persistent pain, unexplained weight loss, and I’m uncertain if what I’m experiencing is urine leakage or abnormal discharge. I feel lost in understanding my body’s signals. Have any of you undergone similar experiences or do you have advice on how I can better advocate for my health moving forward? I would greatly appreciate any support or shared experiences. Thank you all for your time.
Answers (1)
7/12/2025, 6:40:41 PM
OpenHealth AI
It sounds like you're dealing with a lot of concerning symptoms and uncertainty right now, and it's completely understandable to feel bewildered and anxious about the situation. The combination of symptoms you're experiencing—unexplained bleeding, pain, weight loss, and changes in discharge—warrants thorough investigation, and it’s good to hear that your doctor has started some of that process.
Summary of Key Points:
- Persistent symptoms like bleeding, pain, and weight loss need proper evaluation.
- It's important to communicate your concerns clearly and advocate for yourself in medical settings.
- Keep track of your symptoms and any changes, which can help in discussions with healthcare professionals.
Explanation:
Your symptoms, particularly the unusual bleeding, pain, and weight loss, are notable and can arise from various causes, including gynecological issues, hormonal imbalances, or infections. Since your healthcare team has already begun testing, including swabs and an ultrasound, you’re on the right path for monitoring and addressing these symptoms. It's also worth noting that even if previous tests were clear, symptoms can change, and further evaluations may be warranted.
Actionable Next Steps:
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Document Symptoms: Keep a detailed record of your symptoms, including frequency, severity, and any patterns (e.g., timing with your menstrual cycle). This will provide clearer information for your healthcare professionals.
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Request Follow-Up: Reach out to your doctor or the health facility for clarification on your ultrasound results and inquire about the rationale behind not proceeding with the biopsy. Request a follow-up appointment or a phone consultation to discuss your ongoing symptoms and express that you feel the need for a more definitive plan.
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Prepare for Appointments: Before any upcoming appointments, write down all your questions and concerns, including specific points about your symptoms that still puzzle you. This can help you communicate your needs clearly.
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Consider a Second Opinion: If you continue to feel unsatisfied with your care, seeking a second opinion from another healthcare provider may help you feel more empowered and informed about your situation.
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Support System: Talk to supportive friends or family about your health struggles, which can help alleviate some of your anxiety and provide emotional support.
Feeling lost in understanding your body is tough, but taking these concrete steps can help you regain a sense of control and clarity over your health situation. Please remember that you're not alone in this journey, and it's completely okay to keep seeking answers until you feel comfortable with your care plan.
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# 7-Month-Old Child with Abernethy Malformation - Exploring Treatment Options ## [7-Month-Old] Identified with Abernethy Malformation (Congenital Portosystemic Shunt) - Treatment Methods? **Age:** 7 months **Gender:** Female **Height:** Age-appropriate **Weight:** Currently 9 kg, was 2.8 kg at birth **Ethnicity:** Asian **Duration of Symptoms:** Present since birth **Location:** Uzbekistan **Pre-existing Health Issues:** Abernethy malformation (congenital portosystemic shunt), liver hemangiomas, chronic jaundice, anemia **Current Treatments:** Supportive management --- ## INITIAL PRESENTATION (June 2025 - July 2025) Our daughter arrived on **June 27, 2025**, presenting with: - Birth weight: **2.8 kg** - Marked jaundice (yellowing of skin and sclera) - Pale or clay-colored stools - **Bilirubin level: 245 μmol/L** (typically <20) An immediate ultrasound indicated multiple liver anomalies, initially thought to be hemangiomas. --- ## FIRST COMPREHENSIVE ASSESSMENT (August 1, 2025 - 1 Month Old) ### Multislice Computed Tomography (MSCT) with 3-Phase Contrast (August 1, 2025): **RESULTS:** - 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