Is it Acceptable to Share an AI-Created List of Health Issues with My Physician?
I am a 21-year-old female dealing with a multitude of diagnoses that contribute to significant chronic pain. Expressing my health concerns can be quite challenging, so I utilized AI technology to compile a report, detailed below. Would it be appropriate for me to present this to my doctor? ### Patient Information - Request for Comprehensive Assessment and Treatment **Name:** [Insert your name here] **Date:** 12/07/2025 #### Current Diagnoses: - Polycystic Ovary Syndrome (PCOS) - Postural Orthostatic Tachycardia Syndrome (POTS) - Familial Mediterranean Fever (FMF) - Ehlers-Danlos Syndrome (EDS) - Pituitary Macroadenoma - Fibromyalgia - Peripheral Neuropathic Pain #### Symptoms and Concerns: - Continuous and widespread discomfort, particularly severe in the left back of the head, accompanied by episodes of intensifying pain in the arms and legs. - Experiences of tingling and numbness, along with heightened pain sensitivity. - Struggles with bearing body weight, often feeling unsteady or faint. - Issues with balance, frequent dizziness, and light-headed sensations. - Cognitive challenges including forgetfulness, inability to concentrate, and brain fog. - Sleep disturbances due to pain, restlessness, and a sense of imbalance. - Noticeable decline in well-being during pain episodes characterized by heightened discomfort, tachycardia, and fainting spells. - Episodes of excessive sweating, palpitations, hypocrisy with saliva production, and swallowing difficulties during meals. - Unquenchable thirst and near-fainting experiences. - Persistent bloating and issues with constipation. - An urgent need to urinate but face difficulties reaching the restroom in time. - Profuse sweating that leaves marks where I sit, as well as dripping from my hair, neck, and forehead. - Extreme sensitivity to temperature variations, both hot and cold. - Unexpected chills and shivering after prolonged stillness. - Experiencing excessive perspiration even with minimal physical activity. - Distorted perception of temperature with sweating occurring even in cool conditions. ### Important Considerations: During my numerous clinic appointments, my complaints are often assessed solely regarding a single diagnosis (for instance, addressing just abdominal pain linked to FMF or only fibromyalgia symptoms associated with EDS). However, the interplay among my existing conditions gives rise to a complicated systemic issue. A coordinated, holistic evaluation is essential instead of fragmented assessments. ### My Personal Reflection: I am monitored across various outpatient clinics, including endocrinology, rheumatology, physical medicine and rehabilitation, and gynecology, each providing distinct treatment plans. For instance, I am prescribed colchicine for FMF and Lyrica for neuropathic pain stemming from Ehlers-Danlos. Ongoing endocrinological assessments reveal low thyroid hormones, and follow-up procedures such as an MRI, visual field tests, and ACTH suppression studies are scheduled. The gastroenterology department has organized a colonoscopy, while urology has requisitioned tests for urinary complications; unfortunately, I was unable to complete these tests as I’m unable to urinate in front of medical personnel. Essentially, I am exerting every effort and adhering to all treatment protocols, yet my condition continues to hinder a normal lifestyle. Frequently, I find myself too unwell to even get out of bed.
Answers (1)
7/12/2025, 3:40:41 AM
OpenHealth AI
Yes, it is absolutely acceptable to share your AI-created list of health issues with your physician. In fact, your proactive approach demonstrates a commitment to your health and can facilitate a more comprehensive evaluation of your conditions.
Explanation:
You’ve compiled a detailed account of your chronic health issues, symptoms, and treatments, which reflects a comprehensive understanding of your health challenges. Since managing multiple chronic conditions often requires seeing various specialists, sharing this report can help your doctor see the bigger picture. It provides context and may lead to more integrated care, addressing the interplay between your diagnoses instead of treating them in isolation.
Next Steps:
- Prepare for Your Appointment:
- Print or summarize your AI-generated report for your physician.
- Organize your symptoms by severity and frequency to highlight the most pressing issues.
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Communicate Effectively:
- Explain your reasons for creating the report, emphasizing your desire for a holistic evaluation.
- Ask your doctor if they can help coordinate between the different specialists to ensure a more integrated treatment approach.
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Set Goals:
- Define what you wish to achieve from your appointment (e.g., an overall treatment strategy, symptom management, or referrals to additional services).
-
Follow-Up:
- After your appointment, discuss any adjustments or new plans that may arise with your healthcare team.
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Self-Care Management:
- Track your symptoms and any new developments in a diary or app, making it easier for both you and your doctor to manage and evaluate your health over time.
By clearly communicating your challenges and actively participating in your care, you foster a supportive environment that can lead to better management of your health conditions. Remember, your health journey is uniquely yours, and advocating for yourself is key to achieving the best possible outcomes.
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