My Journey with Gross Hematuria Over Two Months
**Week 1:** It all commenced when I noticed visible blood at the end of my urine stream in April. Surprisingly, there was no accompanying pain or other symptoms. **Week 2:** Concerned, I visited a clinic where they performed a urine examination and an ultrasound of my kidneys. The tests ruled out a urinary tract infection and kidney stones due to the absence of bacteria and a clear ultrasound. I was subsequently referred to a urologist. As I anxiously awaited my urologist appointment, the notion of cancer, fueled by internet searches, lingered in my mind. Over the next three weeks, the gross hematuria escalated to occurring once or twice daily. Initially, my urine appeared mostly normal, but by that time it was tinged with about 20% dark coloration, reminiscent of light cola or a pinkish hue. **Week 5:** Following my visit with the urologist, I was scheduled for additional urine and blood tests, along with a CT urography and cystoscopy, all set for the next 2 to 3 weeks. At that moment, I was convinced that bladder cancer was likely, with potential issues in my prostate or kidneys, since the hematuria persisted without symptoms pointing towards a UTI or kidney stones. **Week 7:** The CT urography returned clear results, effectively ruling out the presence of any significant tumors in the kidneys, ureters, or bladder. This procedure involved a dual scan using a large donut-shaped machine: first without contrast, and then with it delivered through an intravenous line. The entire process took about 10-20 minutes. I felt a renewed sense of hope, believing that even if cancer was present, it might only be in the earliest stages, making it treatable. However, it was disheartening to witness blood in my urine every day. Facing this reality became increasingly distressing. Despite my research indicating that gross hematuria is typically not life-threatening—unless clots obstruct urination—the sight of blood was constantly unsettling, even if it was painless, allowing me to maintain a semblance of normalcy. **Week 9:** Undergoing the cystoscopy brought relief; the results were clear, indicating no bladder cancer. I felt an immense sense of gratitude, realizing that with such a substantial amount of blood in my urine, it couldn't be a minuscule, inconspicuous tumor. The doctor observed bleeding near the prostate but attributed it to an enlarged prostate (BPH). In that moment, I expressed my thanks to every conceivable entity for what felt like a second chance at life, promising myself to practice kindness moving forward. The cystoscopy involved inserting a camera through the urethra, following an application of a numbing agent. I experienced anxiety that led to physical discomfort, but it wasn't painful, more akin to the sensation of an IV insert yet localized to the urethra. Miraculously, after the cystoscopy, the gross hematuria ceased. I pondered whether my anxiety had been affecting my symptoms or if the procedure had somehow treated undetected lesions. Regardless, the cessation brought unexpected happiness. **Week 10:** I opted for further tests, including STD and HIV screenings, all of which returned negative. Additionally, no blood was found in my urine, even in microscopic amounts. While I found this surprising, I was elated that both gross and microscopic hematuria had stopped. I expressed my worries to the urologist about potential cancers in the prostate or kidneys. He reassured me that we could repeat the CT urography in a month to ease my concerns. Seeking a second opinion from another urologist yielded similar feedback: further invasive testing wasn’t necessary unless new symptoms arose, although I could request follow-up tests in six months for monitoring. **Week 12:** As of now, I've been free of gross hematuria and have started dutasteride for BPH. Plans are in place for a follow-up every three to six months to monitor my situation and schedule future blood and urine tests accordingly.
Answers (1)
7/10/2025, 8:40:46 AM
OpenHealth AI
It's reassuring to hear that you are currently free of gross hematuria, and it's understandable that this journey has been quite anxiety-provoking. I appreciate your detailed recounting of your experiences; it helps in understanding your concerns.
Main Points
- You have successfully navigated through various tests and appointments that have ruled out serious conditions, and you are now monitoring your health with a new medication for BPH (Benign Prostatic Hyperplasia).
- The cessation of hematuria and your proactive approach to monitoring your health are positive developments.
Explanation
Gross hematuria, or visible blood in the urine, can arise from a variety of causes. Although it can be alarming, especially with the uncertainty of possible serious conditions like cancer, you have proceeded through multiple evaluations which have significantly ruled out these concerns. Your urologist's feedback regarding the bleeding near the prostate due to BPH is a common occurrence and often manageable through medication as it can reduce prostate size and alleviate symptoms.
Next Steps
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Continue with Follow-Up Appointments: Keep scheduled follow-ups every three to six months as discussed. Regular monitoring is crucial for managing BPH and any potential changes in your urinary health.
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Observe Any Changes: Stay vigilant for any new symptoms, such as changes in urination patterns, recurring blood in urine, pain, or discomfort. If experienced, make note of when they occur to discuss with your healthcare provider.
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Medication Adherence: Take your prescribed dutasteride as directed. This medication helps manage symptoms of BPH and could prevent further complications like urinary retention or infections.
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Mental and Emotional Health: Given the anxiety you experienced during the diagnosis, consider finding supportive resources, whether through counseling or support groups, to help navigate the emotional aspects of health concerns.
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Healthy Lifestyle Choices: Continue to maintain a balanced diet, stay hydrated, and engage in regular physical activity. These habits support overall health and can positively impact prostate health.
Conclusion
Your journey has been challenging, but the resolution of your symptoms is encouraging. Keep up the good communication with your healthcare team, stay informed about your health, and prioritize both your physical and mental well-being. If at any point new symptoms arise or you feel uncertain, don’t hesitate to reach out to your healthcare provider for guidance. You're doing great, and it's commendable that you are taking steps to monitor your health closely.
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