Understanding Kakuchi Syndrome
Greetings! I hope you're doing well and feeling good. I appreciate you taking the time to read this. I'm a 36-year-old male weighing 179 pounds, using marijuana around four to five times a week, in addition to smoking roughly a pack of 25 cigarettes weekly. I’ve never had any serious medical encounters or hospitalizations, and aside from the occasional seasonal flu, I consider myself generally healthy, though I'm always looking for ways to improve. Recently, in May 2025, I spent a week in the hospital. Leading up to my admission, I suffered from persistent daily fevers for about two to three weeks, coupled with a lack of appetite which resulted in a weight loss of approximately 30 pounds, dropping from 210 to 174 pounds at the time of my admission. During that period, I visited the hospital and a local clinic on several occasions but was not improving. Noticing some swelling in a lymph node under my left arm, I finally pushed for an admission. As a child, I experienced swollen lymph nodes occasionally, but they would resolve quickly, which I attributed to my active lifestyle filled with sports and constant movement. While hospitalized, medical professionals conducted a variety of tests, including a biopsy of the swollen lymph node. However, everything returned negative. I had daily evaluations by multiple specialists, and finally, on May 17, the fever subsided, I felt an improvement, and I was discharged the following day. The diagnosis I received was Kikuchi syndrome, identified as a fever of unknown origin. Since returning home, my weight has fluctuated between 174 and 185 pounds, most recently settling at 179, which has raised some concerns for me. Additionally, my B12 levels were alarmingly low, leading to daily injections during my hospitalization. Now, I have follow-up appointments with my primary care physician every two weeks. There are days when I feel exceedingly weak and fatigued with painful legs and aching feet, while on other days I feel completely normal. Although I've reduced my smoking, I still don’t feel like my usual self. Have you ever been diagnosed with Kikuchi syndrome? Do you know others with this condition? Have you treated anyone with it?
Answers (1)
7/8/2025, 12:02:28 AM
OpenHealth AI
Thank you for sharing your situation and concerns. It sounds like you have been through a lot recently with your health, particularly with your Kikuchi syndrome diagnosis and the challenges it brings.
Main Points:
- Kikuchi syndrome is a rare condition often characterized by fever and swollen lymph nodes.
- You're experiencing fluctuating symptoms, including weakness and fatigue, which can be common post-recovery.
- It's crucial to monitor your health closely and continue your follow-ups with your primary care physician.
Explanation:
Kikuchi syndrome, also known as Kikuchi-Fujimoto disease, is generally a benign condition that often resolves on its own, but it can lead to significant symptoms like fever and lymph node swelling. The fact that your biopsy was negative is a good sign, suggesting that more serious conditions are unlikely. It's not uncommon for individuals recovering from such illnesses to experience fatigue and fluctuating well-being as your body heals.
Next Steps:
-
Continue Follow-ups: Keep your regular appointments with your primary care physician. They can monitor your B12 levels and overall health effectively.
-
Nutrition: Focus on a balanced diet rich in vitamins, particularly B12, to help improve your energy levels. Foods like lean meats, fish, dairy, eggs, and fortified cereals can be beneficial.
-
Hydration and Rest: Ensure you’re drinking enough fluids and getting ample rest to support your recovery. Fatigue can often improve with adequate hydration and sleep.
-
Gradual Activity: While it's good to engage in light activities, listen to your body. If you feel weak or fatigued, consider taking breaks or shortening your activity times.
-
Smoking Reduction: Since you’ve acknowledged the need to cut back on smoking, continue to work on this goal. Reducing tobacco use can significantly improve your overall health and energy levels.
-
Monitor Symptoms: Keep a log of your symptoms (fatigue, any new aches, etc.) and discuss these in your follow-ups. This can help your physician determine if there’s anything further that needs to be addressed.
Remember, healing can take time, and it’s important to be kind to yourself during this period. If your symptoms worsen or you have new concerns, do let your healthcare provider know. You're doing a great job by staying proactive about your health!
Related Questions
Seeking Guidance for My Mother's Sudden Hearing Loss Case
I am looking for advice regarding my mother's situation with sudden sensorineural hearing loss (SSNHL). **Patient Overview:** - **Age:** 48 years - **Gender:** Female - **Medical Issues:** Hypothyroidism and overweight (approximately 95 kg at the onset) - **Treatment:** Thyroid medication (25 mcg taken daily) **Medical Background:** In November 2025, my mother experienced an abrupt hearing loss in her right ear accompanied by dizziness and nausea. We consulted several ENT specialists within approximately 36 hours following the onset of her symptoms. She received a diagnosis of SSNHL but unfortunately, she did not undergo intratympanic steroid injections during the critical first 24 hours that could have aided her recovery. Despite receiving subsequent treatment, she has not regained hearing in her affected ear. **Examination Results:** - **Audiogram:** Loss of approximately 100 dB in the right ear; left ear shows normal hearing. - **Brain MRI:** A normal scan was conducted previously, ruling out tumors. - **Laboratory Tests:** Recent blood tests (including thyroid function, HbA1c, renal and liver function tests, CBC, etc.) show elevated TSH (6.73) and a HbA1c of 8.5%. We are currently preparing for a contrast MRI to eliminate the possibility of a vestibular schwannoma or nerve issues. **Current Condition:** The hearing loss persists in her right ear. She is feeling anxious about the upcoming contrast MRI, which involves gadolinium injection. However, she has started making positive lifestyle changes and has lost about 4.5 kg over the past two months, adhering to a protein-rich diet and a walking regimen. **My Inquiries:** 1. Is it still beneficial to perform a contrast MRI several months after the initial SSNHL diagnosis, considering that a normal MRI has already been completed? 2. For cases such as this—severe SSNHL with delayed steroid intervention—are there realistic prospects for hearing recovery at a later date? 3. Are there any additional tests or treatments that should be taken into account at this stage? 4. For family gatherings where loud music will be present, would high-quality earplugs or noise-canceling earbuds be a good option to safeguard her healthier ear? 5. Is it advisable for her to continue with whey protein supplementation and the weight-loss plan? 6. What should we prioritize for long-term management: hearing aids, rehabilitation, regular monitoring, etc.? I recognize that the chances of recovery may be slim, but I want to ensure we are covering all bases and that her care plan is appropriate. I appreciate any insights or suggestions you can offer. Thank you for your assistance!
Seeking Clarity on Medical Notes
Greetings, I’ve chosen to use a throwaway account to keep my medical details private from my main one. My daughter, a 3-year-old with cerebral palsy, is prescribed baclofen, gabapentin, senna, and occasionally, Miralax. She is raised in a smoke-free and alcohol-free environment. Recently, my daughter has exhibited instances of staring and being unresponsive, which we discussed with her pediatric neurologist. These episodes occurred multiple times over three weeks. Concerned about potential seizure activity, we recorded some incidents and shared them with the doctor. He advised us to schedule an EEG, which was set for the soonest available time a week later, while instructing us to call if more episodes occurred. When another episode took place, we reached out to the neurologist, who practices at a children’s hospital approximately two hours away. He recommended that we go to our local emergency room. Upon arriving there, the attending physician reviewed her history but seemed skeptical. After a lengthy wait and attempts to clarify our situation, the on-call neurologist eventually came to see us—although he showed little interest in the video evidence we provided. He proceeded with an EEG that lasted only 15 minutes during which my daughter did not have any episodes. Unfortunately, this neurologist was rather abrupt and seemed dismissive, ultimately sending us home without satisfactory answers. Now, I find myself puzzled. In the EEG report, the neurologist mentioned something called a "teddy bear sign." As I had never encountered this term before, I did some research and discovered that it may suggest that seizure activity is not genuine if the patient is in possession of a stuffed animal or similar item. Is this a legitimate observation? My daughter indeed had her beloved baby doll, which she takes with her everywhere. I fail to comprehend how this could be relevant or why it might indicate that her potential seizure activity is fabricated. I plan to reach out to her primary neurologist to gain deeper insight into the meaning of this "teddy bear sign." Thank you for your help!
Evaluating the Reliability of Blood Tests for Liver Disease
As a 30-year-old man who has indulged in heavy drinking during weekends for the past decade, I recently sought to understand the health of my liver through a blood test conducted at a laboratory. Initially, I felt a wave of relief when I received my results indicating that all my liver enzyme levels were within normal limits. However, my sense of security was short-lived as I stumbled upon information suggesting that some forms of liver disease might not be detectable through standard blood testing. This has prompted me to question the extent to which I can rely on my test results. Is it possible that underlying issues might still exist despite what the blood work revealed?
Mysterious Health Decline
My uncle, a 64-year-old man, is experiencing a steep decline in health, yet the physicians he has consulted seem baffled by his condition. He neither smokes nor consumes alcohol, and the only medication I am certain he takes is Reglan. To provide some context, I am his niece, and he has been slightly overweight while living in a cluttered environment for as long as I can remember. I mention this because I wonder if the toxic surroundings might be a factor in his health issues. Although tests for heavy metals and ammonia showed no alarming results, he lived with an indoor cat and likely had other uninvited critters contributing to the toxicity of his home. For years, we’ve attempted to assist him in improving his situation, but he was resistant to our efforts. In September 2025, he underwent gallbladder removal surgery. Prior to this, he was capable of functioning independently. Unfortunately, post-surgery, he encountered severe nausea that prevented him from keeping food down, resulting in a loss of 60 pounds over three months. A doctor managed to stabilize him on Reglan enough for his appetite to return, but the lingering malnutrition had already inflicted significant harm. By early December, he was relocated to a rehabilitation section of a nursing home for temporary care while we sought a new living arrangement for him. Since that time, he has lost all mobility in his legs and his left arm. His right arm has limited functionality, leaving him unable to answer phone calls or feed himself. Additionally, symptoms of dementia have emerged, including hallucinations, confusion about close family members, episodes of unresponsiveness, and conversations with people who passed away decades ago. Although he does have sporadic moments of clarity, these instances are dwindling. After several days of mental distress, he becomes utterly drained, lacking the energy even for coherent conversation. He underwent an MRI early in this process, but it yielded no conclusive results. Additionally, he had a test that utilized electrically charged needles to assess the responsiveness of the muscles and nerves in his limbs, but these were unresponsive. Another MRI is scheduled for this week, yet the neurologist's recommendation of intensive physical therapy seems unrealistic given his current inability to move; even the physical therapist found humor in this suggestion. Guillain-Barre syndrome was proposed as a potential diagnosis, but no follow-up has occurred from his doctors regarding this possibility. Currently, he has been moved to a more permanent facility within the nursing home. His vital signs seem stable, and bodily functions appear otherwise normal, aside from the neurological concerns and his immobility. Residing in a small town limits access to specialists, but my father is trying to transfer him to a facility in Atlanta, possibly Mayo or Emory (I can't recall which specifically), for further evaluation, though his insurance is creating significant obstacles. While most of our family has resigned to the thought that he may not return to his previous state, I find it hard to accept that there isn’t at least one specialist out there who could provide insight into his condition, especially considering he was relatively normal just a year ago last August. Any thoughts or suggestions for additional testing would be greatly appreciated. Thank you for taking the time to read this lengthy message.
ENT Inquiry: Can Nasal or Sinus Cancer Develop in 3 Months Post-Normal Endoscopy?
Subject: 62 Years Old Gender: Female Background: Long-standing nasal and sinus issues My mother has grappled with persistent nasal blockages, sinus discomfort, and ear pressure for a considerable period. Approximately three months prior, she underwent a flexible fiberoptic nasal endoscopy, which revealed signs indicative of chronic rhinitis and sinusitis. The examination showcased features such as inflamed and discolored mucosa, enlarged nasal turbinates, and the presence of clear mucus. Importantly, no masses or concerning lesions were identified during this evaluation. Additionally, her oropharyngeal examination yielded normal results. However, during a recent ENT consultation, a “suspicious lesion above the middle turbinate” was identified via endoscopy, which prompted a referral for an “urgent” CT scan (scheduled for three weeks from now, as we reside in Croatia). Currently, she does not exhibit any worsening symptoms such as facial swelling, altered vision, or recurring nosebleeds (two notable nosebleeds occurred around a year ago, but she has not experienced any since then). I have a few inquiries: 1. Is it feasible for a malignant tumor in the nasal or sinus region to arise or become significant within a mere three months, given that a fiberoptic endoscopy conducted three months earlier revealed no alarming findings? 2. Considering this clinical scenario, how much more likely could this be a nasal polyp or chronic inflammatory reaction as opposed to a cancerous growth? 3. Is there a possibility that such a lesion existed three months prior but eluded detection during the fiberoptic endoscopy? I greatly appreciate any guidance you can provide regarding these concerns.