Enduring Severe Urethral and Kidney Pain for Six Months Without Answers
At 30 years old, my health challenges began in February, when I initially suspected a kidney infection due to the unmistakable symptoms of a urinary tract infection (UTI) alongside acute pain in my right flank. Upon consulting my doctor, a urinalysis revealed the presence of E. coli, leading to a course of antibiotics. Unfortunately, the discomfort persisted, prompting another visit to my physician a few weeks later. This time, the urinalysis indicated no E. coli, but rather the presence of protein and blood. A medical professional suggested the possibility of a kidney stone, writing me a prescription for ciprofloxacin, which I soon discovered I was allergic to. Since then, I have been engulfed by a relentless burning sensation at the urethral opening, a torment that never ceases. The agony remains constant, not solely during urination but also intensifies dramatically post-coitus. To self-soothe, I have consumed excessive cranberry juice and explored various remedies in an effort to alleviate my distress. My condition drove me to urgent care in May due to excruciating pain. The urinalysis returned mostly normal aside from some epithelial cells. Nevertheless, they arranged for a CT scan and ultrasound to be performed. Despite these efforts, the pain was unyielding. On a particularly excruciating day—pain rating an 8 out of 10—I realized I hadn’t received any updates about my CT scan referral. After following up, I was informed it had never been submitted. This revelation prompted a visit to the emergency room that night, where a CT scan yielded no findings, yet the urinalysis revealed blood, bacteria, and elevated white blood cell counts. The ultrasound conducted two days later indicated a 3mm echogenic focus with no observable right jet, confirming the existence of a kidney stone. I returned to urgent care post-results, but even with a clean urine sample, the healthcare provider prescribed medication to relax the urethra and suggested AZO for the discomfort. Navigating my access to a urologist proved to be a cumbersome ordeal. Both my general practitioner and the ER physician submitted referrals to the same clinic, but I was denied due to not meeting culture criteria. Subsequently, my GP referred me to a urogynocologist, who also declined my case, specializing only in prolapses. Eventually, I secured an appointment with a urologist, which I attended today. During this consultation, the doctor failed to inquire about my medical background, did not discuss my ongoing pain, nor did he take a urine sample. He swiftly dismissed the idea of kidney stones due to the initial CT results. Although he briefly mentioned the rare possibility of urethral diverticulum, he downplayed it. Instead, he suggested a referral for physical therapy and implied he would prescribe an antidepressant but stated I needed to consult my psychiatrist first. Feeling dismissed and frustrated, I broke down in my car after the appointment, still grappling with unrelenting pain. I’m at a point of desperation seeking answers, planning to attend another urology appointment at a different facility at the end of the month. After suffering for six months, my tolerance is waning. Additional medical background includes: - One live birth, - A monitored 3mm ovarian dermoid cyst via ultrasound, - Persistent urgency when urinating, - Frequent nocturia, - A sensation of incomplete bladder emptying, - Intermittent difficulty in fully expelling urine, and - Dull flank pain paired with discomfort during and after intimacy. As someone living with bipolar disorder, I also harbor concerns about being misjudged by medical professionals. The knowledge that I take lithium amplifies my fears that they may view my reports of pain as exaggerated or fabricated. However, the depth of my distress is genuine and profound.
Answers (1)
7/4/2025, 6:31:00 AM
OpenHealth AI
I'm truly sorry to hear about the distressing and prolonged symptoms you're experiencing. Your journey has been challenging, and it's understandable to feel frustrated and desperate for answers. It’s important to know that your pain is valid, and you deserve support to address it fully. Let's break this down and explore what might help moving forward.
Summary of Key Points
- Chronic Pain: You’ve been experiencing severe urethral and kidney pain for six months, with various investigations so far yielding inconclusive results.
- Symptoms: These ongoing symptoms include burning sensations, flank pain, urinary urgency, nocturia, and difficulties with urination.
- Previous Medical Experiences: You’ve faced challenges getting timely care and feel your concerns are often dismissed.
Explanation
Your ongoing symptoms, including the burning sensation and urinary difficulties, may stem from several potential issues, including ongoing infections, a possible urethral diverticulum, or complications stemming from kidney stones. The presence of blood, bacteria, and protein in your urine suggests some underlying issue that needs further exploration.
The stressful nature of your symptoms combined with your mental health background could impact how healthcare providers perceive your pain. However, your symptoms should be addressed without bias, and communication is key.
Next Steps
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Keep a Symptom Diary: Document your symptoms in detail, including pain levels, urinary frequency, any triggers (like intimacy), and overall impact on your daily life. This can provide your next healthcare provider with concrete evidence to better understand your situation.
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Clarify Your Needs with New Providers: When you attend your next urology appointment, express your frustrations with previous visits clearly. Ask for a thorough evaluation, including:
- Another urinalysis and possibly a culture to check for chronic infections.
- A discussion about imaging options, possibly including an MRI or repeat ultrasound if stones or other anatomical issues are suspected.
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Inquire About Other Conditions: Since a urethral diverticulum was mentioned, ask your urologist about a cystoscopy. This procedure allows direct visualization of the urethra and bladder to identify any abnormalities that may be causing your pain.
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Pain Management Strategies: In the interim, consider exploring pain management techniques that can help alleviate discomfort. Managing hydration and using over-the-counter medications, such as AZO, may assist with symptoms; however, ensure to consult your doctor before any new regimen, especially because of your lithium use.
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Support Resources: Join a chronic pain support group or mental health community to alleviate feelings of isolation and frustration. Connecting with others who understand your situation can provide emotional support while you seek medical solutions.
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Advocate for Your Mental Health Needs: When discussing treatment options like antidepressants with your psychiatrist, clearly articulate how your physical health is impacting your mental well-being. Advocacy is key to receiving holistic care.
Conclusion
It's vital to remain proactive in advocating for your health. Keep documenting your experiences and symptoms, clarify your needs during consultations, and seek to explore comprehensive evaluations with your healthcare providers. You deserve care that acknowledges your pain and works toward your well-being. Let me know how else I can support you or if you need further information!
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