Seeking Answers for My Daughter's Silent Seizures
Since December 2024, my daughter, aged 3, has experienced three episodes of what are termed silent seizures, with all medical evaluations returning normal results. With an appointment scheduled with a new pediatrician for tomorrow, I’m preparing to ask a few questions. These peculiar episodes occur exclusively after she falls; during these instances, her body becomes limp, her eyes roll back, and although she remains conscious, she is evidently not in control of her movements. Each spell generally lasts less than a minute, and post-seizure, she seems quite fatigued. After some coaxing, I can keep her awake, but within a few minutes, she fully regains her usual self. Thus far, she has undergone an MRI, a 12-hour EEG, and several blood tests, all of which yielded normal outcomes. Previous pediatricians have suggested that there is no treatment necessary, sometimes indicating that these occurrences are simply a common phenomenon among young children. The most recent seizure took place this morning after she fell and bumped her head. However, based on the advice I had received before, I did not take her to the emergency room. I firmly believe that these episodes are not typical and am eager to pursue a proper diagnosis and possible treatment options, which prompted me to seek a consultation with a different pediatrician. Currently, she is not on any long-term medications and has no chronic health conditions. She does have a runny nose, reminiscent of a common cold, but today her only medication has been a nasal decongestant spray.
Answers (1)
7/2/2025, 3:01:45 PM
OpenHealth AI
It’s understandable to be concerned about your daughter’s episodes, especially since they are unusual and distressing. Silent seizures can be perplexing, particularly when all medical evaluations yield normal results. Your commitment to seeking clarity is commendable, and it's essential to address your concerns effectively during your upcoming pediatrician appointment.
Understanding Silent Seizures: Silent seizures, often referred to as absence seizures in children, can present with symptoms like staring, rolling of the eyes, and body limpness. While these episodes may sometimes be benign, your daughter’s symptoms—especially the fatigue afterward—indicate that further investigation is warranted, particularly since they occur after falls.
Next Steps to Consider:
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Document Detailed Observations: Before your appointment, write down every detail of her episodes: frequency, duration, any triggers (like falling), recovery time, and any other noticeable behaviors during and after the episode. This can provide valuable insights for the pediatrician.
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Prepare Questions for the Pediatrician:
- Since she experiences these after falling, could there be a connection between her falls and the seizures? Should she be examined for any potential head injuries?
- What specific types of additional tests or evaluations (like genetic testing or prolonged EEG monitoring) might be helpful?
- Given the normal results of previous tests, what steps should we take if episodes continue or worsen?
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Monitor and Manage Symptoms: Continue observing and recording any other symptoms she might have, like the runny nose. A common cold can sometimes exacerbate neurological symptoms in children, but maintaining hydration and ensuring she's comfortable during these times is important.
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Understand When to Seek Emergency Care: If your daughter’s episodes show any signs of changing—such as longer duration, increased frequency, or postictal confusion (difficulty waking up or unusual behavior afterward)—seek immediate medical attention. If she ever shows signs of distress or has difficulty breathing after an episode, it’s crucial to get help right away.
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Stay Informed and Supportive: Encourage your daughter and reassure her that she is safe, especially after a seizure. Emotional support can greatly help her confidence as she navigates her experiences.
It's a tough situation to be in, but with continuous observation and the right questions prepared for your pediatrician, you're taking proactive steps toward understanding and addressing your daughter’s health needs. You're advocating well for her, and that is an essential part of her care. Let me know if you need more specific information or support.
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