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Rash Around Port A Cath: Seeking Guidance

6/30/2025, 6:40:31 AMMale25-34

22-year-old female, Weight: 170 lbs, Height: 5’3”, Location: United States Medical history includes: - POTS (Postural Orthostatic Tachycardia Syndrome) - Vascular Ehlers-Danlos Syndrome - May-Thurner Syndrome - Nutcracker Syndrome - Fibromyalgia - Antiphospholipid Syndrome - Aquagenic Urticaria Medications currently prescribed: - Metoprolol - Cardizem - Corlanor - Zoloft - Valium - Midodrine - Oxycodone - Protonix - Rexulti - Fludrocortisone - Lyrica - Plavix - Vitamin D - Iron - Vitamin B12 - Folic Acid - Xolair - Lovenox I'm feeling quite overwhelmed, so I’m reaching out for advice. Four days ago, I discovered a rash forming on the exterior of my port dressing. Since September, I have consistently used the same two types of dressings: the hypoallergenic HP dressing utilized by the infusion center and IV3000. Recently, upon receiving a new shipment of IV3000, I noticed it now features orange borders, which is unusual as I’ve previously used them without borders without any issues. During a recent hospital stay, I used the orange bordered dressing without problem. Regrettably, I believe this rash is a reaction to the adhesive, so I decided to replace it with the HP dressing used at the infusion center. I've been applying moisturizers throughout the day to combat the itching. However, last night, while deep in sleep, I awoke to an intense burning sensation accompanied by itching that I had never experienced before. The rash has spread to the area where the needle is situated under the dressing. I am confused about the situation since it is uncomfortably itchy and I feel quite helpless, particularly concerning the potential for further spreading. Thankfully, it had remained confined to the dressing’s edge, but now it has started to extend underneath. I hadn’t initially worried about infections or issues with the port itself, given that my flushing and blood return have been exceptionally good, even better than I’ve previously experienced. However, my anxiety is increasing as the entire area surrounding the port is now noticeably red. The outer part of the dressing shows raised bumps typical of a rash, yet beneath, it appears as one large red area. I'm unsure who to reach out to for assistance. Should I contact the Interventional Radiology department that placed my port? I do have a follow-up with them regarding an iliac stent as well. Alternatively, should I speak with my primary care physician? My concern is that he lacks familiarity with the specifics of my port, as he only ordered the procedure at the request of my other doctors. For the record, the only substances administered through my port are 0.9% sodium chloride (1000 mL daily) or 1000 mL of lactated ringers, alternating, along with heparin locks and IV Zofran. Two weeks ago, I was prescribed oxycodone, and aside from that medication, nothing has changed. Though if this were an allergic reaction, I would expect symptoms to manifest elsewhere, yet I also have begun to notice a small rash forming under my breastbone and above my buttocks.

ArthritisLupusFibromyalgia

Answers (1)

Cony

6/30/2025, 6:40:49 AM

OpenHealth AI

It sounds like you're dealing with a frustrating and uncomfortable rash around your port, which can understandably lead to feelings of overwhelm and concern, given your complex medical history. A rash in this area could stem from several factors, including an allergic reaction to the adhesive on the dressing or even irritation from the dressing itself. Let’s break down some steps to address this while managing your anxiety.

Main Points:

  1. Prioritize assessing the rash: Monitor the severity of the rash and any changes.
  2. Use soothing treatments: Apply gentle, non-irritating moisturizers and consider over-the-counter antihistamines for itching.
  3. Seek appropriate medical guidance: Contact the right healthcare provider to address your concerns effectively.

Explanation:

The rash could be an allergic reaction to the adhesive, especially since you noticed a change in the dressing with the new orange borders. It’s also possible that the rash is due to irritation from the dressing or is influenced by moisture if sweating occurs, particularly under dressings.

Although your flushing and blood return are good, which is reassuring about your port, the spreading rash and burning sensations should be addressed. Here's what to consider:

Next Steps:

  1. Continue to replace the dressing: Since you've already switched back to the HP dressing, keep it clean and dry. Watch for any signs of infection (increased redness, warmth, or drainage).

  2. Apply soothing treatments:

    • Use a gentle, fragrance-free moisturizer to help with dryness and itching.
    • Consider an over-the-counter antihistamine like cetirizine or loratadine, which may help reduce itching.
  3. Monitor closely: Keep an eye on the rash and note any changes over the next few days. Document any new symptoms, including the area’s color, size, or if the burning sensation persists.

  4. Contact healthcare providers:

    • Given the complexity of your medical history and the port's situation, it would be best first to reach out to the Interventional Radiology department that placed your port. They are most familiar with the port's specifics and can evaluate if the rash may require a different management approach.
    • You can also inform your primary care physician, but ensure to mention your recent hospital visit and the changes with the dressing to underline its potential relevance.

Reassurance:

You are taking the right steps by seeking help and self-managing aspects of your care, like switching the dressing. This is a common and manageable issue, and by closely monitoring and reaching out to providers, you can find the right solution. Remember that your comfort and health are the priorities, and there's support available for you during this time. If your symptoms worsen or if you're feeling significantly anxious, don't hesitate to seek immediate medical advice.

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