Concerns Regarding HTLV and Ongoing Symptoms
On October 11, 2024, I engaged in unprotected intercourse with a new partner, and we both have herpes simplex virus type 2 (HSV-2). The following morning, I experienced unusual sensations in my vaginal area. Subsequently, my partner underwent testing on October 12, 2024, which showed negative results for: - Chlamydia - Gonorrhea - Hepatitis A - Hepatitis B - Hepatitis C - HSV 1 - HIV - Syphilis By the end of that week, I faced severe irritation, inflammation, and painful urination. My physician prescribed Metrogel, which alleviated some of the burning sensations, but the irritation lingered. In November 2024, I was diagnosed with infections caused by Mycoplasma hominis and Mycoplasma genitalium. My partner tested negative for Mycoplasma genitalium. I completed the treatment for both infections by April 6, 2025. On May 5, 2025, during a visit to my OB, I underwent swabs for various STIs and also submitted a urine sample. The results indicated no signs of: - Chlamydia - Gonorrhea - Syphilis - Mycoplasma genitalium - Mycoplasma hominis - Ureaplasma - HIV - Hepatitis A - Hepatitis B - Hepatitis C - Trichomoniasis - Bacterial vaginosis (BV) including Atopobium vaginae, BVAB 2, Megasphaera 1 - Candida albicans - Candida glabrata The urine analysis was generally normal, with the exception of ketones, likely due to fasting. A genital culture revealed a minor presence of Group B Streptococcus, which was successfully treated with amoxicillin. Despite these treatments, I continue to experience pelvic pain, ongoing vaginal discomfort, and recently, a small quantity of white-gray discharge without any odor. Two weeks after completing the amoxicillin treatment for Strep B, I took an Evvy test, which showed virtually no beneficial bacteria and complete disruption: - 70.95% Gardnerella Swidsinskii - 12.35% Gardnerella Vaginalis - 5.43% Megasphaera Lorne - 4.56% Gardnerella Leopoldii - 4.16% Prevotella Bivia - 1.37% Gardnerella Piotii - 1.19% other Gardnerella I intend to begin a course of boric acid for 5 to 7 days, followed by another 5 to 7 days of Metrogel, and then I plan to use probiotic suppositories. In addition, I have growing concerns about HTLV, which I only recently learned about from an online conversation. This STI is known to potentially lead to neurological symptoms. Since late February, I've been experiencing symptoms on my right side including swelling and tingling in my leg, tightness in my clothing, and by April, sensations of coldness, heaviness, and numbness. Emergency room visits have ruled out blood clots and stroke through normal blood tests, ultrasounds, EKG, chest X-ray, and CT scans. Symptoms have intensified throughout May and June and now include tingling and numbness in my right arm, pressure behind my right eye, tightness in my breathing, muscle twitching, balance issues, mild swallowing difficulties, and intermittent pressure in my right ear. Additionally, I now feel cramps and tightness in both calves. A neurologist has ordered MRIs of my brain, orbits, and cervical/thoracic spine with and without contrast; all came back normal, showing no evidence of stroke or multiple sclerosis. I have an EMG scheduled for this week. Furthermore, I have undergone a comprehensive immunology and thyroid panel (both normal) as well as a gastrointestinal workup including colonoscopy and endoscopy (results normal), and RA/ANA testing which was negative. I have consulted my immunologist about the possibility of testing for HTLV and am currently awaiting further guidance. I was previously unaware of this condition and now it has become a source of concern for me.
Answers (1)
6/29/2025, 2:01:23 AM
OpenHealth AI
It sounds like you are experiencing a complex set of symptoms and health concerns, which can understandably be quite distressing. You have done a thorough job of seeking medical evaluations and treatment for various infections, and it's good that you are being proactive about your health. Let's break down your concerns and provide a clear action plan moving forward.
Main Points
- You are experiencing ongoing pelvic pain and neurological symptoms, while undergoing thorough testing and treatment.
- You have concerns about HTLV and its potential neurological effects.
- You are planning to use boric acid and Metrogel for vaginal discomfort, and are awaiting further HTLV testing guidance.
Explanation
Your journey has already involved significant medical evaluation, which is essential in identifying any underlying conditions. The symptoms you describe—such as tingling, numbness, and pressure—could stem from several different causes, and it's wise that you've consulted with a neurologist to rule out major conditions. Normal imaging and blood tests are reassuring, but the persistent symptoms can be frustrating.
Your plan to start boric acid and Metrogel is a reasonable approach to restore vaginal flora and alleviate irritation, given the disruption indicated by the Evvy test. Continued monitoring of your symptoms, especially those that could relate to possible neurological concerns, is crucial.
Action Steps
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Continue Current Medication and Treatment:
- Start the boric acid treatment as planned for 5 to 7 days, followed by the Metrogel for another 5 to 7 days. These steps can help address any lingering vaginal discomfort.
- Use probiotic suppositories afterward aiming to restore healthy vaginal flora.
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Monitor Symptoms:
- Keep a detailed diary of your symptoms, noting any changes, patterns, or triggers related to the tingling, numbness, and pressure sensations.
- Record any additional symptoms or changes during your treatments to share with your healthcare team.
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Follow-Up on HTLV Testing:
- Stay in close communication with your immunologist regarding HTLV testing. As this is a rare infection, they can provide you guidance on appropriate testing based on your risk factors.
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Engage with Specialists:
- Continue to follow up with your neurologist regarding the EMG results and any further evaluations needed to interpret your neurological symptoms accurately. Ensure you express any worsening or frequent symptoms to them.
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Lifestyle Considerations:
- Maintain a healthy diet and hydration, as overall wellness can support your immune health. Managing stress through relaxation techniques like yoga or meditation could also help alleviate some symptoms.
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Educate Yourself:
- While waiting for results, educate yourself about HTLV and its implications. Knowledge can reduce anxiety and help you engage in informed discussions with your healthcare providers.
By pursuing these action steps and maintaining open communication with your healthcare providers, you can manage your current symptoms while awaiting a thorough understanding of your health concerns. Remember, you are not alone in this, and the medical community is here to support you through these challenges.
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