Update on Sudden Vision Loss and Concerns
A sudden loss of vision can be alarming, especially when it manifests quickly in one eye. Regarding my mother, who is 52 years old, stands at 5 feet tall, and weighs around 100 pounds: she has a troubled past marked by two overdoses due to meth, but she has been sober for the past seven years. She also struggles with anorexia and orthorexia, dedicating significant time to yoga and exercise, often working out for five hours daily. Among her unconventional health methods, she consumes naturopathic remedies, such as apricot seeds and methylene blue. Approximately seven months ago, my mother developed an all-over itchy rash, which I initially suspected could be measles. Unfortunately, she refused to seek medical attention from a qualified physician. Alongside the rash, she experienced jaw pain, extreme fatigue, inner ear complications, severe headaches, and persistent feelings of malaise. Last Saturday, she suffered a dramatic decline in her vision, losing roughly 80% of it in her left eye. After being taken to the hospital, she underwent a CT scan that excluded the possibility of a stroke. Medical professionals informed her that she had tertiary syphilis and required hospitalization, but she declined and opted for steroid eye drops instead, as she doesn’t trust conventional medicine. I am genuinely concerned about the potential life-threatening nature of syphilis, and I wonder how much time may remain for her without appropriate treatment. Subsequent medical evaluations confirmed the diagnosis of syphilis, identifying it as ocular syphilis. On the first day she started taking doxycycline orally, she went to bed and unexpectedly found herself on the opposite side of her room with no recollection of how she got there. This was followed by five hours of vomiting, along with persistent fogginess and headaches lasting two days thereafter. I fear she may be experiencing seizures when alone and not recalling these episodes. During her time as an addict, she suffered numerous seizures and even set up a camera to keep track of them for her safety. My concerns about the possibility of neurosyphilis are growing. Despite this concern, all she has been prescribed is four weeks of doxycycline, a cortisol steroid, and steroid eye drops, with a follow-up scheduled for August. She is severely fatigued, and her compulsive exercising—driven by OCD—has come to a halt. I have reached out to her doctors, yet none have responded to my inquiries. Am I being overly protective? Should I place my trust in their medical expertise? From my research, I do not grasp why they are not utilizing penicillin desensitization or suggesting further treatment options. Moreover, the doctors assured her that her eyesight would definitely improve, yet there have been no changes after a week. I acknowledge my limitations as a layperson, but based on my findings on syphilis, both ocular and neurological, the treatment plan she has been given seems inadequate. Additionally, given her history as a drug addict, I suspect she may not be receiving the appropriate level of care. She was a victim of sex trafficking around 15 years ago, potentially leading to her current syphilis infection. Her life has been exceedingly challenging, and my greatest fear is that she may pass away just as her condition appears to be improving. Please advise me: should I adopt a more assertive stance and advocate for better care on her behalf, or am I being too alarmist? Thank you for your insights.
Answers (1)
6/28/2025, 7:51:02 AM
OpenHealth AI
I understand your deep concern for your mother's health, especially given her complex medical history and current challenges. Managing a serious condition like ocular syphilis requires careful attention and sometimes urgent intervention. Here’s a structured response focusing on your immediate concerns and next steps:
Key Points:
- Ocular syphilis can lead to permanent vision loss if not treated adequately, and your mother's current treatment may be insufficient.
- Given her symptoms (e.g., severe fatigue, vomiting, potential seizures), her situation warrants further evaluation and potentially more aggressive treatment.
- It’s essential to be persistent in advocating for her care, especially considering her history and symptoms.
Explanation:
Ocular syphilis is a serious infection that can cause significant vision problems and may indicate broader neurological issues, especially considering her previous drug use and possible history of neurosyphilis. The last episode you described—where she experienced disorientation and vomiting—could indicate serious complications, and it is understandable that you worry about her wellbeing.
Doxycycline is a common treatment for syphilis, but penicillin is often the more effective standard for neurosyphilis and ocular syphilis. If she is not improving and her symptoms persist or worsen, it raises genuine concerns.
Recommended Next Steps:
-
Advocate for Immediate Medical Attention: Given your mother's deteriorating condition, it may be necessary to seek a more aggressive stand in her care. Consider requesting an urgent follow-up appointment with her healthcare provider or seeking a second opinion from an infectious disease specialist, particularly one familiar with ocular and neurological manifestations of syphilis.
-
Document Symptoms: Keep a detailed record of her symptoms, including any episodes of confusion, vomiting, or fatigue, and their frequency and duration. Share this information with her healthcare providers to convey the seriousness of her condition.
-
Explore Options for Hospitalization: Given her serious symptoms and past medical history, advocating for a reassessment of inpatient care may also be necessary. Hospitalization could provide a more comprehensive evaluation and immediate treatment possibilities.
-
Inquire About Penicillin Treatment: It's crucial to understand why penicillin hasn’t been suggested for her treatment. If she is open to it, ask if she could be a candidate for penicillin desensitization, given her health condition.
-
Support & Encourage: While advocating for her, ensure she feels supported. Encourage open dialogue about her concerns regarding conventional medicine and try to address those in discussions with her healthcare team.
Final Thoughts:
You are not being overly alarmist; it’s reasonable to worry about her health given the circumstances. Persistently seeking appropriate care for her is vital. Encourage her to work closely with trustworthy healthcare professionals who can guide her through this serious illness. Please keep your concerns documented, remain engaged, and be her advocate during this critical time. If there are any other specifics you'd like to address or clarify, feel free to ask.
Related Questions
Understanding My Experience with Overdose-Related Symptoms and Behavior
25 years old, 165 cm tall, and weighing 70 kg. Summary: After sharing a complaint about my interactions with paramedics, I've taken a moment to reflect on their feedback and review the situation through the footage. I recognize that my conduct during those moments was inappropriate, and I am filled with remorse. Subsequently, I have retracted my complaint and am now seeking mental health support. I desire to clarify certain aspects since my medical records do not completely align with what I went through. Below, I detail my symptoms. Yesterday, I made a post on the AskDoctors forum, hoping for insights regarding my condition. The advice I received prompted a self-realization that had evaded me until now. Initially, I was outlining a grievance against paramedics who doubted the legitimacy of my seizures and accused me of feigning the experience. My response was not only disproportionate but also hostile—I yelled, wept, and labeled them as heartless. Such reactions were completely unwarranted and unjustifiable. Ultimately, I was physically stable, with vital signs indicating no critical issues; there were only temporary fluctuations in my blood work, which shouldn’t have raised alarms. I feel profound regret over my conduct during that encounter. Watching the footage incites feelings of self-disgust. I’ve decided to withdraw my complaints and am committed to mental health resources. I opted to delete my previous post since it contained sensitive information about my professional and educational background; I was worried it might provoke disciplinary action from my university, which I cherish as my career gives my life meaning. I admit to feeling cowardly in this respect. The initial reason for my inquiry was a desperate need for clarity about the symptoms I experienced, as my discharge documentation omits much of what transpired in the hospital and the subsequent three days. I greatly value the input I’ve received and hope to gather more perspectives. I fully acknowledge my wrongdoings and find my previous behavior abhorrent. I understand how challenging it is for emergency personnel to fulfill their duties when faced with such a situation. I’ve discussed with family and friends the importance of exercising discretion when contacting emergency services and ensuring it’s truly necessary. I regret taking up valuable resources that could have been reserved for individuals in genuine need of urgent care. My actions were shameful, not just for me but also for my colleagues who work in emergency services; I genuinely believe the clinicians should have distanced themselves from my case entirely. I've canceled my appointment with the neurologist, but I would genuinely appreciate insights from others on this subject. Could excessive doses of sertraline, propranolol, promethazine, and alcohol induce psychological seizures? Is it possible for these seizures to recur? Were my hallucinations indicative of some kind of psychosis? During the episodes, I saw hair-like formations everywhere and everything seemed to emit a blue glow. In the hospital, I consistently perceived doctors passing by. At home, the LED lights appeared to move, and I often caught glimpses of faces in my peripheral vision. There were also auditory experiences, such as hearing things that weren’t present, as confirmed by my friend. Initially at home, I was unaware I was having seizures, although I did hear police officers numbering them and acknowledging them as such. I had three episodes where I was placed in the recovery position. In my medical notes, I mentioned experiencing ten seizures throughout the night, though I can’t verify this. I was seemingly in a continuous cycle of them. I recall at least once drooling uncontrollably and my hands looked peculiar; on one occasion, I screamed when I regained consciousness due to an awkward hand position. I also experienced significant neck pain and discomfort in my feet. I know I fell twice while hospitalized; fortunately, my mother was there to catch me each time, so I avoided serious injury. I was never alone in the facility. Everything seemed to settle down after approximately three days, right around my third visit. I recall a persistent ache at the nape of my neck that left me feeling drowsy, often drifting in and out of consciousness and repeatedly asking for the time. It was a never-ending ordeal, and although I had little appetite, I did not vomit at all. Reflecting on this whole episode leaves me feeling as if it were entirely fabricated. I struggle to articulate it. Conversations about care options unfolded around me, yet I grasped little of what was being discussed. I often replied with “yes” or sought validation from my mother. I remember thinking it was remarkable that my mum had glasses with water in them; I even imagined one of my cats perched on my aunt’s shoulder. Overall, it felt akin to a terrifying drug experience. I do have videos capturing my behavior at home, though I cannot recall anything from the hospital. I often awakened with either my mother, aunt, or medical staff restraining me. Could it all stem from psychological causes? Is it possible that the medications led to a psychotic episode where I convinced myself I was experiencing seizures and on the brink of death? After they subsided, I felt like an automaton for weeks, plagued by involuntary muscle jerks—primarily in my legs and neck. I sincerely hope these symptoms do not return. I intend to avoid emergency care unless it’s absolutely necessary. I seek nothing more than to comprehend what transpired. Thank you for your thoughts.
Understanding Recurrent Symptoms: Are They Histamine-Related?
Hello, health professionals, I am seeking your expertise regarding a variety of symptoms I have been experiencing intermittently over the years. While they appear linked, I'm having difficulty pinpointing their root cause. **Personal Summary:** - 27 years old, Female - Non-smoker (formerly vaped for about eight years, cessation initiated two years ago) - No diagnosed autoimmune conditions - Background of anxiety (which might exacerbate some symptoms, though it doesn't account for all) - Currently taking Flonase and a multivitamin **Skin Reactions:** - I've dealt with recurring itchy rashes and hive-like bumps since childhood. They manifest suddenly and usually resolve without intervention. - These rashes are often itchy, can be raised, and tend to appear sporadically without identifiable triggers. - Antihistamines provide consistent relief, leading me to suspect a role of histamines in these eruptions. - These episodes do not align with typical contact allergies or classic food allergies. - They can happen multiple times daily, and I've often dismissed them as merely anxiety-related rashes. - Sometimes the itching precedes the visible rash, while other instances present with a red, inflamed area that stirs inquiries about my well-being from others. **Foot Discomfort:** - Over the last few years, I’ve encountered severe itching on the soles of my feet. - These episodes typically include small pale or white spots with redness surrounding them, occasionally featuring a red center. - Itching intensity can be overwhelming, yet these lesions usually arise suddenly, - They frequently improve upon avoiding scratching and may resolve within a range of 30 minutes to two days. - The first episode was triggered after swimming in a freshwater lake, though I’ve also experienced it while wearing specific footwear like Crocs or boots, but not consistently. - Certain events coincide with my typical skin rash, hinting at a potential systemic condition rather than merely a localized issue. - The symptoms do not mirror those of warts, ringworm, or fungal infections. **Ear and Sinus Issues:** - Itchy ears have been a recurring issue for the past few years; I initially attributed it to overly aggressive cleaning with cotton swabs, which I realize is harmful. - I have a history of chronic sinus problems, including post-nasal drip and regular ear infections. - The inflammation appears to flare up sporadically rather than constantly. - Recently, I experienced a painful ear issue that began with what I thought was a pimple. The next day, my ear was swollen. After visiting a clinic, I was diagnosed with a double ear and sinus infection, treated with antibiotics. My pain persisted, leading to a follow-up with my primary care physician, who prescribed Flonase and noted ongoing nasal inflammation. Missing doses led to increased ear discomfort, prompting me to take Flonase more regularly. Unfortunately, a recent flare of swelling and discomfort in my ear led me to consider consulting an ENT specialist. **Gastrointestinal Symptoms:** - I was diagnosed with gastritis through an upper endoscopy procedure. - Testing for H. pylori returned negative. - I've since developed food sensitivities and gastrointestinal discomfort not previously experienced. - I saw significant improvement after removing gluten and dairy from my diet, with tests for celiac disease yielding negative results. - Symptoms tend to flare up in response to stress or specific food intake rather than being a constant presence. **Additional Context:** - A history of childhood asthma (now occurs infrequently) - Sensitivity to heat - Past instances of feeling lightheaded, resembling vasovagal symptoms, alongside vertigo - Symptoms across various systems often flare together, but not in every instance - While my anxiety can intensify symptoms, both antihistamines and diet modifications have had notable positive effects **My Inquiry:** While I don’t wish to self-diagnose, I'm curious if my range of symptoms might suggest: - Histamine intolerance - Mast-cell overactivity (not necessarily MCAS, but an increased reaction) - Physical or contact urticaria I'm primarily seeking: - Recommendations for a suitable specialist - Insight on whether this symptom pattern fits a recognized mechanism - A clearer understanding of what warning signs to be concerned about **Summary:** I contend with a long-standing pattern of episodic itchy rashes and hives, significant but transient foot itching along with bumps, persistent ear irritation coupled with sinus problems, and gastritis accompanied by food sensitivities that improved on an elimination diet. Antihistamines aid multiple symptoms. Could this suggest underlying histamine-related issues manifesting across multiple systems rather than in isolation?
Seeking Guidance on Persistent Chest Discomfort After Extensive Testing
I'm a 43-year-old male, standing at 5'11" and weighing 180 pounds. My journey began around March to April of 2025 when, despite regularly hitting the gym four times a week, I was struck by severe chest pain along with frequent belching and a tight feeling in my diaphragm. At times, the pain became so intense that I feared it might be a heart attack. **Medical History:** In May 2019, I received a diagnosis of **PVS** and have since been under the care of a cardiac electrophysiologist. Upon experiencing these new symptoms, I consulted my EP, who conducted an EKG right then and set me up with a 7-day heart monitor. The results showed no irregularities. Subsequently, I was directed to a cardiologist, who carried out both a **stress test** and an **echocardiogram**, both of which yielded normal findings. Afterward, I returned to my primary care physician, who speculated that my gallbladder might be involved. An **ultrasound** was performed but revealed no issues. I then requested a **chest X-ray**, which also came back normal. My PCP then considered the possibility of a **hiatal hernia** and referred me to a gastroenterologist; unfortunately, that appointment took almost **five months** to materialize. In the meantime, my symptoms persisted, prompting me to cease weightlifting and switch my focus to **cardio and running**. Surprisingly, these activities didn’t exacerbate my symptoms, though the chest pain remained constant. When I finally saw the gastroenterologist, they suggested an **upper endoscopy**, which took another roughly three months to arrange. During this procedure, I was diagnosed with **Eosinophilic Esophagitis (EOE)**, a condition I had not previously experienced. The doctors also placed a pH monitoring device for acid reflux assessment, which indicated **no unusual acid exposure**. Following this, I began a treatment plan that included a swallowed steroid inhaler and an increased dosage of **omeprazole**. Sixty days later, I underwent another endoscopy, which showed that the EOE had largely resolved, with minimal residual symptoms. Unfortunately, my chest discomfort persisted without any improvement. It has now been about **a year** since these issues emerged, and I still have not found substantial relief. A recent chest MRI completed at a dedicated imaging center revealed no abnormalities. I entertained the idea of **costochondritis**, but again, the MRI did not support that hypothesis. The only minor relief I find comes from consciously pulling my shoulders back and expanding my chest. I continue to experience discomfort around my **diaphragm** and tenderness in the area of the **xiphoid process**. My PCP prescribed a steroid pack, which was somewhat beneficial for the pain but failed to alleviate the pressure or constant discomfort. At this juncture, I feel quite lost and uncertain about my next steps. I would greatly appreciate any insights or experiences from others who have faced similar issues. Additionally, if there are any physicians here willing to offer advice, I am open to traveling to find the answers or relief I'm desperately seeking.
Concerns After Gallbladder Surgery (Three Weeks Post-Op) - Is It an Infection?
Profile: - Age: 35 - Gender: Female - Height: 5 feet 4 inches - Weight: 160 pounds - Ethnicity: Asian Duration of Symptoms: Last Three Weeks Location: United States Recent Medical History: Nearly three weeks have passed since my gallbladder removal surgery. Over the last few days, I've noticed a small amount of unclear fluid coming from the incision. I just observed what seems to be pus oozing from the surgical site. Although there is slight tenderness when I move or touch the area, it isn't painful. Thankfully, I haven’t experienced any fever or chills, and there’s no unpleasant odor emanating from the wound. Should I continue to clean it with soap and water, or is it necessary for me to visit the emergency room for further evaluation?
Exploring Inositol and CoQ10 for Managing PCOS Symptoms
As a 28-year-old female, I have faced the challenges of polycystic ovary syndrome (PCOS) since my teenage years. Starting from the age of 16, I have dealt with highly irregular menstrual cycles, occurring anywhere from three to eight months apart. My diagnosis has been substantiated through two ultrasounds and blood tests revealing elevated androgen levels. Despite maintaining a healthy diet and leading an active lifestyle—balancing my work as an environmental biologist with gym sessions alongside my husband—I continue to wrestle with weight management. Other symptoms impacting my daily life include significant hair loss, unwanted facial hair, and persistent fatigue. In my journey to manage PCOS, I previously sought counsel from a gynaecologist, who primarily suggested hormonal birth control as the main approach to alleviate my symptoms. Although I adhered to this recommendation for several years, the hormonal changes negatively impacted my mood, leading me to discontinue its use. Another alternative proposed by my gynaecologist involved androgen blockers, but these are not suitable for me since my husband and I plan to start a family in the next two to three years. Recently, my research led me to discover that supplements like Inositol and CoQ10 might effectively combat insulin resistance and lower androgen levels. They are purported to improve various symptoms associated with PCOS, including the regulation of ovulation, all while boasting minimal adverse effects. I am curious about the viability of these supplements as alternatives to hormonal birth control or androgen blockers in managing my PCOS symptoms.