Struggling for Recognition in My Health Journey
As a 34-year-old woman, six months after my second cesarean section, I find the need to express my ongoing health challenges. I've contended with frequent illnesses since childhood, often facing ridicule and being labeled a hypochondriac, with others dismissing my symptoms as mere allergies. This perpetual belittlement has left me feeling like my genuine struggles are overlooked, contributing to a significant decline in my overall well-being. I feel lost in my pursuit for adequate support and treatment. Currently, I carry several diagnoses, including: - Long COVID - PTSD - Generalized Anxiety Disorder (GAD) - Attention Deficit Hyperactivity Disorder (ADHD, combined) - Depression - Obsessive-Compulsive Disorder (OCD) Additionally, I experienced gestational diabetes and mild preeclampsia during both of my pregnancies. Today, I reached out to my psychiatrist to discuss the possibility of reevaluating my current medication regimen, as I believe the combination I’m on may not be serving me well — though I acknowledge I'm not a medical professional. Presently, my medications include: - Lamictal 100mg - Wellbutrin 150mg - Adderall XR 30mg in the morning - Adderall IR 10mg in the afternoon - Clonazepam .5mg as needed for panic attacks - Recently added, Effexor, which I started at 75mg. However, for the first two weeks, I felt overwhelmingly intoxicated, and my OCD symptoms intensified, causing me to go several nights without sleep. After discussing my concerns with my psychiatrist, she increased my dosage to 150mg. It has now been over a month, and I fear I may be experiencing negative side effects from the Effexor. My energy levels are at an all-time low — my appetite has diminished, and it's only with the aid of clonazepam that I'm able to consume any food. Sleep eludes me for at least three nights each week, and I find myself consumed by incessant thoughts and compulsive behaviors, along with heightened anxiety that makes even stepping outside feel daunting. My symptoms frequently surface in episodes, particularly following a traumatic event in 2019 — the loss of my closest relative. My ongoing issues include: - Chronic respiratory infections - Recurrent white tongue and a swollen throat - Unexplained bruises on my body - Joint discomfort, especially in my hands - Persistent chest pressure and tightness - Difficulty taking deep breaths, at times feeling a lump in my throat - A continual urge to clear my throat - An inconsistent cough - Fluctuating heart rates that can surge from 66 to 140 within seconds - Often resting at an average heart rate of around 115 - An incessant feeling of a racing heart, which I have mentioned to various doctors, only to be attributed to "postpartum anxiety" — yet, I experience it consistently throughout my day. - Scalp flare-ups with scaly patches that sometimes bleed and itch intensely, making it one of my most distressing issues. - Dizziness and a lightheaded sensation, especially when standing - Challenges with swallowing - Pronounced fatigue and lethargy - Intense insomnia - Intolerance to both heat and cold - A persistent fogginess in my memory, frequently forgetting conversations shortly thereafter - Jaw pain and tension - Recurrent bladder discomfort. Despite multiple tests indicating normal lab results, I have identified recurring patterns and abnormal findings in my medical history. When I sought care for back pain at the ER, an X-ray was deemed normal, yet they noted fluid in my lungs without raising any concerns. Each time I seek help for respiratory illness, I receive a diagnosis of walking pneumonia and a prescription for antibiotics. I am reaching out for any advice or insights and would appreciate suggestions for specific tests or imaging I might request.
Answers (1)
6/26/2025, 5:10:52 AM
OpenHealth AI
Thank you for sharing your health journey and the challenges you’ve been facing. It's clear that you are experiencing a complex interplay of physical and mental health issues, which can feel overwhelming and isolating. Your determination to seek support and explore adjustment to your medication speaks volumes about your commitment to your health and well-being.
Main Points
- Multifaceted Health Challenges: You're navigating a variety of physical and mental health conditions that may be interconnected.
- Medication Concerns: You've noted potential adverse effects from your current medications, particularly Effexor, which warrant reevaluation.
- Symptom Management & Testing: There are specific symptoms and patterns you've described that may need further investigation.
Explanation
You have a significant history of both physical and mental health issues, and it’s understandable to feel frustrated when your symptoms are not fully acknowledged. Symptoms such as chronic fatigue, racing heart rate, respiratory issues, and psychological distress can often overlap, leading to complex diagnoses. Your current medications may need a careful review, especially since you've experienced side effects that affect your daily functioning and overall quality of life.
Next Steps
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Medication Review:
- Follow Up with Your Psychiatrist: Continue discussions with your psychiatrist about your current symptoms and their potential link to your medications. A gradual reassessment may lead to adjustments that improve your overall quality of life.
- Document Symptoms: Keep a detailed diary of your symptoms, noting when they occur, their severity, and any medications taken. This can provide valuable insight to your healthcare providers.
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Request Further Testing:
- Comprehensive Blood Work: Ask for a full panel of blood tests, including thyroid function tests, vitamin D levels, and inflammatory markers (like CRP). These can help investigate underlying issues like autoimmune conditions or deficiencies.
- Cardiac Evaluation: Discuss the fluctuations in your heart rate and request an evaluation that may include an electrocardiogram (EKG) or Holter monitor for closer observation of your heart’s rhythms and activity.
- Pulmonary Function Tests: Given the respiratory symptoms and past lung fluid findings, these tests can evaluate your lung health more thoroughly.
- Neurological Examination: If cognitive symptoms persist, consider consulting a neurologist for further evaluation, as neurocognitive aspects can overlap with other conditions.
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Support and Self-Care:
- Mental Health Support: Pursue therapy options that can support you in processing your previous trauma. Cognitive Behavioral Therapy (CBT) or mindfulness-based approaches can be particularly helpful for anxiety and OCD.
- Stress Management Techniques: Explore relaxation strategies like deep breathing exercises, gentle yoga, or mindfulness meditation that can ease anxiety symptoms.
- Healthy Lifestyle Choices: Focus on maintaining a balanced diet, staying hydrated, and incorporating light physical activity to support your overall health, as tolerated.
Your perceptions and experiences are valid, and advocating for yourself is crucial. Remember to seek support from trusted friends or groups who understand your struggles. Don't hesitate to reach out for the care you need. You're not alone in this journey. If you've further questions or need more information on any particular aspect, feel free to ask.
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