Cervical Myelomalacia MRI Findings
My neurologist, specializing in multiple sclerosis, has not reviewed my radiology reports and has overlooked instances of myelomalacia at C6 along with disc herniation. To conceal this error, she turned down my request for a referral to a spinal surgeon and an EMG test. Recently, an MRI I had done privately revealed myelomalacia from C1 to C3 and disc protrusions at C5-6, which caused flattening of the spinal cord. I'm perplexed as to why no physician in British Columbia is directing me toward a spine specialist. They claim that the T2 hyperintensity lesions I have are solely due to MS, but my research indicates that such lesions can also arise from spinal cord injuries. Five physicians seem to be protecting my original neurologist from accountability. In 2022, I consulted a highly-rated neurosurgeon for $809, who dismissed my concerns about myelomalacia exacerbating my condition by asserting that it wouldn’t lead to further issues. His assessment feels deceitful; he even noted my use of forearm crutches and an AFO brace due to paralysis in my toes yet insisted that surgery wasn’t warranted as I reported no pain. However, it is important to note that disc herniation is not a byproduct of MS. Currently, my spinal cord continues to flatten. I have voiced my complaints to the College of Physicians. I did manage to find a telehealth doctor who submitted an urgent referral on my behalf, but I am skeptical about their acceptance given my status as a 63-year-old woman with mild relapsing MS, as it seems they may wish for my decline. Such are the grim realities of the healthcare system here in Canada. I’ve observed a neighbor who requires a new TAVI procedure, yet he was denied because he was considered too healthy, indicating a potentially ruthless approach to patient care that prioritizes financial constraints over health needs. It feels as if the ongoing negligence by medical professionals might be a strategy to lessen the burdens faced by the system, especially as more baby boomers and elderly individuals succumb to this care failure. I maintain that the quality of healthcare in British Columbia will not improve simply by increasing the number of doctors and nurses; instead, significant advancements in infrastructure are desperately needed. In contrast, Mexico's healthcare system operates at a commendable level while Canada appears to rank below that of many developing nations.
Answers (1)
6/25/2025, 7:40:45 PM
OpenHealth AI
I'm sorry to hear about the challenges you're facing with your healthcare. It sounds incredibly frustrating to feel neglected and unheard while managing complex health issues. Your concerns about cervical myelomalacia and its implications are valid, especially given the symptoms you're experiencing.
Main Points:
- Myelomalacia and cervical disc herniation can lead to serious complications.
- It's crucial to find a healthcare provider who takes your concerns seriously.
- Consider actively pursuing additional opinions and treatment options.
Explanation: Myelomalacia refers to softening of the spinal cord, which can occur due to various reasons, including injury or pressure from herniated discs. The T2 hyperintensity lesions identified in MRIs can suggest a variety of issues, not just those related to multiple sclerosis. Since your symptoms, including the use of forearm crutches and an AFO brace, suggest significant neurological involvement, it’s essential that you receive comprehensive and attentive care.
Your frustration with the healthcare response is understandable; feeling dismissed can lead to distrust. It's important to advocate for yourself while seeking further evaluations, even if previous encounters were disheartening.
Next Steps:
- Keep Documentation: Maintain organized records of all your MRIs, reports, and communications with healthcare providers. This will be invaluable for future consultations.
- Second Opinions: Try seeking a second opinion from a different neurologist or a specialist in spinal disorders who is open to discussing your concerns. Look for those with experience in treating patients who have both MS and spinal conditions.
- Follow Up on Referrals: Since you have a telehealth doctor who submitted an urgent referral, follow up to ensure it's being processed. Stay persistent with calls or messages.
- Explore Patient Advocacy Resources: Consider reaching out to patient advocacy groups in Canada specializing in MS or spinal health. They may help guide you in finding a suitable specialist who will take your concerns seriously.
- Consider Alternative Specialists: If access to spinal surgeons is limited, explore physiatrists (rehabilitation medicine specialists) who may offer alternative treatments and advice on non-surgical management of your symptoms.
I want to reassure you that seeking the right care can sometimes take time, but there are professionals out there who will listen to you and provide the support you deserve. Keep affirming your needs and advocating for your health; it’s your right as a patient. If you have further questions or need detailed guidance on specific topics, please feel free to reach out.
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