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Navigating Recovery After Unforeseen Surgical Complications

6/23/2025, 5:30:45 PMMale25-34

A 40-year-old woman, 5'4" and approximately 105 lbs, residing in the USA, was diagnosed with Graves' hyperthyroidism in July 2024, currently stabilized on a daily dose of 2.5mg methimazole. Her medical journey took a complicated turn due to an ovarian abscess of unknown cause—she had no previous infections such as PID or STDs. Despite a month-long course of antibiotics, the abscess did not resolve, leading to a bowel obstruction from the surrounding tissue. Consequently, she underwent laparoscopic surgery to alleviate the blockage and remove the impacted ovary. Post-surgery, she experienced a rapid onset of pain upon waking, an unexpected situation considering her prior experiences with two cesarean sections, where she was able to resume caring for her newborns within hours using only ibuprofen. In stark contrast, this time, even morphine was inadequate in managing her discomfort, and any slight movement became a laborious task accompanied by cries of pain. Both she and her partner became increasingly concerned as her situation worsened, yet the healthcare team seemed perplexed by her level of distress, attributing her pain to expected post-operative recovery while disregarding her requests for further assessment. This state of confusion persisted for five days, despite prior discussions about her potential discharge timeline. Ultimately, it was discovered that she had suffered a small bowel perforation that had gone unnoticed, leading to over three liters of bowel fluid contaminating her abdominal cavity. As a consequence, she required an open surgery for correction. This complication, a recognized risk outlined in her consent form, has left her feeling unsettled about her hospital experience, despite her willingness to trust the same surgeon for future care. The emotional aftermath of her extended hospitalization, which lasted 16 days, has prompted her to seek clarity on the treatment process. Specifically, she questions whether it is standard for a surgeon to postpone imaging when a patient reports persistent and escalating abdominal pain. Having experienced quality care in the ER, she wonders why the surgical floor did not follow assertive protocols. Furthermore, she is confused about the implications of having three liters of fluid drain from her abdomen; would earlier intervention have alleviated her suffering and fear, not to mention the additional two months of managing drains due to painful abscesses? At one point, she required a blood transfusion and faced a third surgery due to postoperative bleeding, but the explanations provided were minimal, suggesting complications simply occur sometimes—potentially a failure of a suture. In pondering her ordeal, she seeks to find a balance between understanding this as unfortunate luck—grateful for the hospital that ultimately saved her life—and grappling with the notion that a patient could endure five days of escalating pain post-laparoscopic surgery without clinical concern from their caregivers. Ultimately, it was revealed through a casual encounter with a surgeon, involved in her subsequent care, that the oversight of the perforation should have been anticipated; he noted that the residents' lack of experience may have contributed to this oversight. This leaves her questioning the accountability and vigilance of the attending physician overseeing their training.

Thyroid DisordersEndocrinologyRheumatology

Answers (1)

Cony

6/23/2025, 5:31:06 PM

OpenHealth AI

I'm sorry to hear about the difficulties you've faced during your recent surgical journey. It's completely understandable to have concerns and seek clarity after such a challenging experience. Let’s break down your situation and address your key questions.

Main Points:

  1. Experiencing Severe Post-Operative Pain: It is concerning that you faced such intensity of pain after your surgery, which led to a misdiagnosis of your condition.
  2. Imaging and Pain Management: There may have been missed opportunities for timely imaging or intervention when you reported your escalating pain.
  3. Fluid Accumulation and Follow-Up Care: Draining three liters of fluid points to a serious concern, and earlier intervention could possibly have mitigated your suffering.

Explanation:

  • Post-Operative Pain: While some discomfort is expected after surgery, especially one involving the abdomen, the degree of pain you experienced should prompt further evaluation. Persistent pain can signal complications, such as infections or perforations, that need immediate attention.

  • Imaging Delay: The decision to postpone imaging (like an abdominal ultrasound or CT scan) can be influenced by the clinical team's assessment, but in cases of severe or escalating pain, it is generally appropriate to investigate further. This oversight is certainly troubling, especially since it led to a delay in diagnosing your bowel perforation.

  • Fluid Drainage: The discovery of over three liters of fluid contaminating your abdominal cavity is significant. Accumulation of this magnitude can cause severe complications, including infection and prolonged recovery times. It stands to reason that taking action sooner could have lessened your discomfort and the need for subsequent surgeries.

Next Steps:

  1. Reflect on Care Experience:

    • Consider discussing your experience with a patient advocate or the hospital’s patient relations department. They can help address your concerns and improve care processes for future patients.
  2. Discuss with Your Healthcare Team:

    • Schedule a follow-up appointment with your surgeon. Prepare a list of questions regarding your care—like the rationale behind treatment decisions made during your hospital stay. Understanding their perspective can offer clarity and perhaps even peace of mind.
  3. Seek Emotional Support:

    • Given the emotional toll of your experience, talking to a counselor or therapist specializing in medical trauma might help you process the ordeal. It’s normal to feel unsettled after such events.
  4. Educate Yourself:

    • Learn about the typical recovery process after laparoscopic surgery and potential complications. Knowledge can empower you and help you recognize symptoms that require immediate attention in future healthcare encounters.

In summary, you’ve been through a complex and distressing medical experience, and it’s vital to seek both clarity and support as you navigate recovery. Please don’t hesitate to reach out if you have further questions or need additional assistance. Your health and understanding of your care are paramount.

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# 7-Month-Old Child with Abernethy Malformation - Exploring Treatment Options ## [7-Month-Old] Identified with Abernethy Malformation (Congenital Portosystemic Shunt) - Treatment Methods? **Age:** 7 months **Gender:** Female **Height:** Age-appropriate **Weight:** Currently 9 kg, was 2.8 kg at birth **Ethnicity:** Asian **Duration of Symptoms:** Present since birth **Location:** Uzbekistan **Pre-existing Health Issues:** Abernethy malformation (congenital portosystemic shunt), liver hemangiomas, chronic jaundice, anemia **Current Treatments:** Supportive management --- ## INITIAL PRESENTATION (June 2025 - July 2025) Our daughter arrived on **June 27, 2025**, presenting with: - Birth weight: **2.8 kg** - Marked jaundice (yellowing of skin and sclera) - Pale or clay-colored stools - **Bilirubin level: 245 μmol/L** (typically <20) An immediate ultrasound indicated multiple liver anomalies, initially thought to be hemangiomas. --- ## FIRST COMPREHENSIVE ASSESSMENT (August 1, 2025 - 1 Month Old) ### Multislice Computed Tomography (MSCT) with 3-Phase Contrast (August 1, 2025): **RESULTS:** - 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WBC: 5.8 × 10⁹/L (SHOWS IMPROVEMENT) - **RBC: 2.93 × 10¹²/L** (IMPROVED but still low) - **Hemoglobin: 72 g/L** (SHOWS IMPROVEMENT but still low) - Platelets: 223 × 10⁹/L (BACK TO NORMAL) - Neutrophils: 30.0% - Lymphocytes: 64.8% - Monocytes: 4.6% ### Biochemistry (January 28, 2026): - Total protein level: 67 g/L (slightly deficient) - Creatinine: 20.7 μmol/L - **Total Bilirubin: 242 μmol/L** (STILL HIGH - unchanged) - **Direct Bilirubin: 142 μmol/L** (VERY HIGH) - **ALT: 50 IU/mL** (DRASTICALLY LOWER from >1000!) --- ## OVERVIEW OF PROGRESS OVER 6 MONTHS | Parameter | August 2025 | January 2026 | Change | |------------------|-------------|---------------|--------------------------| | **Hemoglobin** | 69 g/L | 72 g/L | ↗ Slight improvement | | **RBC** | 2.1 | 2.93 | ↗ Improved | | **ALT** | >1000 | 50 | ✓✓ MAJOR IMPROVEMENT | | **Bilirubin** | 245 | 242 | → Unchanged (still elevated) | | **Portal vein** | 6.1 mm | 3.9 mm (US) | ↗ Decreased | | **Platelets** | 403 | 223 | ↘ Normalized | | **Shunt size** | 9.9 mm | 9.9 mm | → No Change | --- ## CURRENT SITUATION (February 2026 - 7 Months Old) - **Weight:** 9 kg (good growth rate in spite of condition) - **Jaundice:** Continues to be present (yellow skin) - **Stools:** Remain pale/clay-colored - **Development:** Achieving appropriate milestones - **Energy:** Appears to have a good energy level - **Feeding:** Normal appetite --- ## QUESTIONS FOR r/AskDocs We have been informed this is **Type 2 Abernethy malformation** (portal vein present). **Three treatment avenues have been proposed:** ### Option 1: **Endovascular Coil Embolization** (minimally invasive approach) - A catheter is inserted via the leg vein to access the shunt and deploy coils/plugs to close the abnormal vessels - Pros: No surgical incision, minimal discomfort, short hospital stay (2-4 days), no scars, enhanced safety - Duration: 1-2 hours - Recovery: 2-4 weeks for jaundice to show improvement ### Option 2: **Open Surgical Intervention** - An incision in the abdomen to ligate abnormal vessels and redirect blood to the liver - Pros: Direct visualization, effective results - Cons: Surgical scar, longer recovery time (7-14 days in hospital) - Duration: 2-4 hours ### Option 3: **Liver Transplantation** - We have been advised this is not necessary as the portal vein is functional and liver health is improving. --- ## SPECIFIC QUESTIONS TO CONSIDER: 1. **With a functional portal vein (6.1 mm) and improving liver function (ALT normalized), is it advisable to pursue endovascular closure as the preferred treatment?** 2. **Despite ALT levels improving, the bilirubin remains consistently high (242). Should this be a cause for concern? Is there a prospect for it to normalize post shunt closure?** 3. **Are the hemangiomas/nodules (11.6×20.7 mm) linked to the shunt? Will they likely resolve following shunt repair?** 4. **How urgent is the proposed intervention? Is immediate action required, or is there flexibility to wait a few months?** 5. **What complications should we be vigilant for during the waiting period?** 6. **Regarding endovascular closure - what is the average success rate for infants aged 7 months? Are there concerns regarding the shunt size (9.9 mm)?** 7. **The measurement of the portal vein has shown improvement from 6.1 mm to 3.9 mm; should this be perceived as a positive sign or a reason for concern?** 8. **Are there special directives (diet modifications, medications) we should consider while awaiting the procedure?** 9. **Post-procedure, how long should we expect it might take for:** - Normalization of bilirubin levels? - Return of stool color to normal? - Resolution of jaundice? - Regression of hemangiomas? 10. **Can you recommend any specialized centers for pediatric Abernethy malformation treatments? We are located in Uzbekistan but are prepared to travel (to Turkey, Russia, South Korea, etc.)** --- ## ADDITIONAL INFORMATION - No family history of hepatic diseases - Pregnancy and delivery were normal - No additional congenital defects identified - Immunizations up to date - No history of bleeding disorders - No signs indicative of encephalopathy - Child is alert and engaged --- **I can supply actual MSCT images and comprehensive lab reports if they would be of assistance.** We sincerely appreciate any insights you can provide. We are striving to make the most informed decision regarding our daughter’s care and highly value expert medical opinions. **TL;DR:** 7-month-old diagnosed with Abernethy Type 2 malformation (9.9 mm portocaval shunt, patent portal vein). Liver functionality is improving (normalized ALT) while bilirubin remains elevated (242). Evaluating options between endovascular coil embolization and open surgery. Seeking expert advice on optimal treatment strategy and timing.

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