OpenHealth Q&A

Seeking Insights on a Persistent Rash: Update and Test Results

I've revised this post to incorporate some crucial information. I am aware that Reddit isn't a platform for medical diagnosis. I've already visited urgent care and scheduled a meeting with my primary care provider in hopes of being referred to a rheumatologist, but my appointment isn’t until August. In the meantime, I find myself in a state of worry and uncertainty. The urgent care physician prescribed me Triamcinolone and advised that I see a rheumatologist as urgently as possible. However, the Triamcinolone hasn’t alleviated the itching at all. I am reaching out to see if anyone has had experiences similar to mine that led to diagnoses such as lupus, rheumatoid arthritis, or lymphoma. What might be happening with my body? During my urgent care visit, the staff mentioned that any of these three conditions could be possibilities, but they suggested starting with a rheumatologist for my skin issues. A little about me: I am a 27-year-old female, 5'3" tall, weighing 144 lbs, not currently on any medication, and I have been smoking cigarettes and marijuana for approximately 12 years. About two months ago, I developed an intensely itchy rash located on the back of my neck. It sometimes feels like it’s burning. I haven't changed any of my soaps, products, or detergents lately. None of the lotions, cortisone creams, or allergy medications have provided relief. My history with skin issues is minimal, aside from some polymorphic light eruption that developed in recent years, but no eczema. I've noticed swelling in the lymph nodes at the back and sides of my neck, as well as behind my ears. I have previously experienced hard, swollen lymph nodes, particularly on the left side of my neck, for about five years now. The swelling in the back of my neck's lymph nodes appeared after the onset of the rash. The area is incredibly itchy, occasionally burns, and feels warm to the touch. I now have open sores in the rash area that are refusing to heal. Additionally, I feel itching on the skin covering my lymph nodes, even in areas without any rash. Before I let the internet convince me that a minor rash could indicate something severe like lymphoma, I wanted to seek opinions here. In a follow-up note, I realized I also neglected to mention that a couple of months before this neck rash surfaced, I started experiencing circular, occasionally itchy patches on my legs and stomach, along with one on my foot. These new spots seemed to have a similar pattern, not healing or disappearing over time, and they itch, though not nearly as intensely as the rash on my neck. I've also observed several of these spots on my legs, three on my stomach, and one on my foot from the initial set of images I mentioned earlier. To make things clearer, I have included an update of my most recent CBC from October 2024, which was noted as abnormal. Additionally, my Basic Metabolic Panel taken on the same date showed abnormalities, along with elevated D-dimer levels and visibly swollen lymph nodes in my neck. For the past couple of years, I've been struggling with swollen lymph nodes, feelings of malaise, fatigue, and various other health issues, losing around 100 pounds in a non-deliberate manner. I'm increasingly worried that I might be facing some type of slow-growing lymphoma. My appetite has significantly declined; when I do feel hungry, I have a very brief window to eat before the urge diminishes. Often, I can only manage one meal a day, if I’m fortunate enough to have the appetite to eat at all. It’s worth noting that I've also dealt with polymorphic light eruption each summer for the past three to four years, which only appears on my arms. I have tested negative for HIV, Lyme disease, and my ANA is normal (below 1.8). My rheumatoid factor is <10, thyroid levels are 1.20 mcIU/mL, and my sedimentation rate is 13. My comprehensive metabolic panel has indicated trace protein in my urine, which sometimes appears foamy. I had a bout of mono in my teenage years about a decade ago, accompanied by exceedingly high levels of the Epstein-Barr Virus.

Answers (1)

6/22/2025, 5:50:38 AM

OpenHealth AI

I'm glad you reached out, as it's important to seek clarity and support regarding your concerning symptoms. You've been dealing with a persistent rash, lymph node swelling, and various discomforts, which understandably have left you feeling anxious about potential severe conditions.

Main Points:

1. Symptom Overview: You have a persistent itchy rash on your neck, additional skin lesions, swollen lymph nodes, and increased fatigue and appetite loss.
2. Immediate Priorities: While waiting for your rheumatology appointment, focus on self-care strategies to manage your symptoms and monitor any changes closely.

Explanation:

Your symptoms, including the rash, lymph node swelling, and general malaise, can indicate a range of conditions. The concerns from urgent care about possible autoimmune disorders (like lupus or rheumatoid arthritis) and lymphoma are rooted in the complex nature of your symptoms and their duration.

• Itching and Rash: The itchiness and burning sensation, combined with open sores, suggest that your skin may be reacting to something—possibly an autoimmune response or irritation.
• Lymph Node Swelling: Chronic lymph node swelling, coupled with your rash and systemic symptoms (like fatigue and appetite loss), can indeed be concerning and warrant thorough evaluation.

Next Steps:

1. Symptom Tracking: Maintain a daily log of your symptoms, including the severity of itching, any changes in the appearance of your rash, and notes on your energy levels and appetite. This can be vital for your healthcare providers to understand the progression of your condition.

2. Topical Care: Since Triamcinolone hasn’t helped, consider applying cool compresses to the affected areas to reduce itching and inflammation. Over-the-counter antihistamines (like cetirizine or loratadine) might also provide some relief from itching.

3. Hydration and Nutrition: Focus on staying well-hydrated and try to eat smaller, more frequent meals if large meals feel overwhelming. Nutrient-rich smoothies can be an easier alternative if you're struggling to eat solid foods.

4. Monitor for Changes: If you notice rapid worsening of any symptoms, such as increased size of lymph nodes, significant weight loss, or the development of new rashes or sores, you may want to seek more urgent care.

5. Support System: Talk to friends or family about how you’re feeling. Emotional support is crucial during times of uncertainty, and they can assist you in managing daily tasks.

6. Prepare for Your Appointments: When you see your primary care physician or rheumatologist, bring your symptom log, any recent test results, and a list of questions or concerns that you have—this will help guide the discussion.

While it's understandable to worry about the possibility of severe conditions, your commitment to following up with specialized care is the right approach. Keep advocating for your health, and take care of yourself in the meantime. If you have more questions or need additional support along the way, feel free to reach out again.