Seeking Answers for an Unexplained Skin Condition
I’ve come back to share some additional information regarding my situation. I acknowledge that Reddit isn’t a platform for diagnosis, yet I've already visited an urgent care center and scheduled an appointment with my primary care physician, hoping to secure a referral to see a rheumatologist. Unfortunately, my appointment with the PCP isn’t until August, leaving me in a state of anxiety and uncertainty. During my urgent care visit, I was given Triamcinolone to alleviate the itching, but it hasn’t provided any relief. I’m a 27-year-old woman, standing at 5’3” and weighing 144 pounds. I do not take any medications and have a long history of smoking both cigarettes and marijuana for approximately 12 years. About two months ago, I developed an intensely itchy rash localized to the back of my neck. It occasionally feels like it’s burning, but I haven’t changed any of my personal care products, detergents, or soaps. Over-the-counter lotions, cortisone creams, and allergy medications have proven ineffective. My medical history includes the occasional polymorphic light eruption (PMLE), but no problems akin to eczema or other skin conditions prior to this. Additionally, I have swollen lymph nodes in the back and sides of my neck, as well as behind my ears. This is not a new occurrence for me; I’ve dealt with hard, swollen lymph nodes, including one on the left side of my neck that I first noticed about five years ago. The swelling in the neck nodes appeared after the rash developed. The rash is extremely uncomfortable, producing a burning sensation and considerable heat to the touch. I’ve also noticed several open sores forming in the rash area that seem unwilling to heal. Interestingly, my lymph nodes are itchy too, particularly the skin over them, even in areas without rashes. Before jumping to health conclusions based on Internet searches, I thought it wise to ask for insight from the Reddit community. Edit 1: In addition to the neck rash, a couple of months prior, I began noticing some circular, occasionally itchy patches on my legs and stomach, with one also appearing on my foot. These spots are persistent and do not seem to heal. Edit 2: I've documented several of these patches on my legs, three on my stomach, and one on my foot. Edit 3: I’ve included my most recent complete blood count (CBC) from October 2024, which indicated abnormal results. Edit 4: A basic metabolic panel from October 24 also showed abnormalities, including elevated D-dimer levels and a visibly swollen lymph node in my neck right now. Over the past couple of years, I’ve been plagued by swollen lymph nodes, fatigue, a general feeling of malaise, and a range of other health issues, all accompanied by an unintentional weight loss of about 100 pounds over this period. I am deeply concerned about the possibility of a slow-growing lymphoma. My appetite has diminished significantly; when I do feel hungry, it’s for a very brief window during which I must consume food quickly before the urge disappears again. On a fortunate day, I can manage to eat only once daily. Additionally, I have experienced polymorphic light eruption each summer for the last three to four years, but only on my arms. I have tested negative for HIV and had mono as a teenager, about ten years ago, which resulted in notably high levels of the Epstein-Barr virus at that time.
Answers (1)
6/22/2025, 4:40:46 AM
OpenHealth AI
It sounds like you are going through a challenging time with your skin condition and associated symptoms. Your concerns regarding the rash, itching, swollen lymph nodes, and overall health are completely valid, especially as you're experiencing significant discomfort and anxiety while waiting for further medical attention.
Overview
You are dealing with:
- An itchy rash that is burning and forming sores, primarily located on your neck, with additional patches on your legs and stomach.
- Swollen lymph nodes in your neck and behind your ears.
- A history of fatigue and unintentional weight loss.
- Concerns about possible underlying conditions, including lymphoma.
Explanation
The combination of symptoms you describe—persistent rash, swollen lymph nodes, and systemic symptoms like fatigue and weight loss—can be associated with various underlying issues. While the rash might not have responded to over-the-counter treatments, the lymph node swelling particularly raises the need for careful evaluation. Conditions like infections, autoimmune diseases (such as lupus), or even some cancers (like lymphoma) can result in similar symptoms.
Next Steps
-
Symptom Monitoring:
- Keep a detailed diary of your symptoms: note when the rash worsens, any new symptoms, and any potential triggers. This can provide helpful information for your upcoming appointments.
-
Skin Care:
- Avoid harsh soaps or skin products. Stick to gentle, fragrance-free cleansers and moisturizers to prevent irritation.
- If the burning sensation continues, consider using cool compresses to soothe the area.
-
Diet and Nutrition:
- Since you've noticed reduced appetite, try small, nutrient-dense meals or snacks throughout the day when you do feel hungry. High-protein, high-calorie options can be beneficial. Ensure you're staying hydrated.
-
Manage Stress:
- Consider coping mechanisms for your anxiety such as deep breathing exercises, meditation, or light physical activity, which can help you feel more grounded while you manage your symptoms.
-
Prepare for Upcoming Appointments:
- Write down all your symptoms, concerns, and any questions you have for your primary care physician or rheumatologist. Include your history of PMLE and details from your CBC and metabolic panel.
-
Urgent Signs:
- If at any point you experience significant changes such as sudden fatigue, excessive night sweats, new or rapid weight loss, or if the sores worsen, seek immediate medical attention.
Your feelings of uncertainty and concern for your health are understood, and it’s important to remain proactive about documenting your symptoms and preparing for your upcoming appointments. This effort will help you communicate effectively with your healthcare providers. Please focus on self-care as best as you can in this waiting period, and know that getting the right diagnosis and treatment is the next important step on your health journey.
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