OpenHealth Q&A

Get answered by medical professionals

Concerns About a Friend's Mysterious Episodes

6/21/2025, 12:50:30 AMMale25-34

I have a close friend who often experiences what we describe as ‘blank moments’, during which she stares into the distance and does not respond to any stimuli—visual, auditory, or tactile. Some time ago, I discussed her condition with my father, who works as an EMT, and we considered that these episodes might be absence seizures or complex partial seizures. About a month ago, just before Memorial Day, she experienced these incidents repeatedly for roughly two hours, with each episode lasting several minutes. At one point, she even tumbled off a swing but remained unaware of her surroundings. That evening, I brought this concerning behavior up with her. On Memorial Day, while we were on a bus going to parades, she began zoning out in my arms, exhibiting closed, twitching eyes—possibly a sign of REM sleep—as she slumped against me. Adults nearby noticed and called for an ambulance, which resulted in the incident being classified as her passing out. Since that day, her episodes have intensified. It wasn’t until a week and a half ago that I reconsidered the Memorial Day occurrence, as she has increasingly been slumping forward with closed, twitching eyelids during these moments, often expressing that her eyes hurt afterwards. Earlier this week, she underwent an EEG, but the results came back normal, and the doctors had no additional insights. Unfortunately, her condition continues to deteriorate, and I’m honestly quite frightened. These episodes significantly disrupt her everyday life, happening more frequently and seemingly interfering with her ability to think clearly and recall information. I am genuinely concerned that she may be experiencing seizures or another health issue that could be detrimental to her well-being. Additional observations: - She can sometimes sense when an episode is about to occur (aura effect). - Regardless of what is attempted, nothing seems to bring her out of these states. - Her episodes have escalated from occurring 3–8 times daily to over 50. - The duration varies—some are just a few seconds long while others stretch to a few minutes. - Some episodes leave her feeling unwell afterwards. - She’s had these episodes since childhood. - While sitting is when they happen most often, she can occasionally be standing or walking during an episode. - To ensure safety, her close friends have started timing her episodes, especially if they exceed five minutes, prompting a call for help before the EEG results were available. - She often uses phrases like ‘out of it’ to describe her feelings during and after these episodes, along with referring to a sense of ‘brain fog’. - Additionally, she tends to blink excessively before and after an episode, indicating that she feels them starting. I am not well-versed in this subject matter, and I welcome any corrections or advice. I included these details to help clarify her situation. My main priority is her well-being, and I am terrified of the possibility of losing my best friend. Thank you for taking the time to read this post and considering our plight.

Multiple SclerosisCrohn's DiseaseThyroid Disorders

Answers (1)

Cony

6/21/2025, 12:50:45 AM

OpenHealth AI

Your concern for your friend's well-being is very understandable, and it is commendable that you are seeking guidance on this troubling issue. Based on the information you provided, it seems that your friend may be experiencing complex and potentially serious episodes that could indeed be related to seizure activity or other neurological issues.

Main Points

  1. Your friend's episodes resemble possible seizure activity, given the description of "blank moments," lack of response, and the noted aura she experiences.
  2. Given the escalation in frequency and intensity, along with the reported side effects afterward, it is crucial to take her symptoms seriously.
  3. Continuous monitoring and documentation of her episodes are essential, as well as support for seeking further medical evaluation.

Explanation

  • Seizures: The episodes you've described may often align with types of seizures, such as absence seizures or complex partial seizures, especially since she can feel an aura before they start. Seizures can vary in presentation, and some types may not always be detected on an EEG, particularly if they are infrequent or not induced during the test.
  • Impact on Daily Life: The frequency of her episodes affecting her clarity and ability to function suggests a significant impact on her daily living. This is a major concern that needs addressing.
  • Next Steps: Immediate action may help to determine the underlying problem and guide her treatment.

Actionable Guidance

  1. Emergency Protocol: Continue to time her episodes. If any episode lasts longer than 5 minutes or if she has repeated episodes without recovery in between, seek emergency medical attention.

  2. Documentation: Keep a detailed log of each episode, including:

    • Date and time
    • Duration
    • Description of the episode (such as physical appearance, any sounds made, and how she feels afterward)
    • Circumstances surrounding the episode (e.g., were there any specific triggers?)
    • Any accompanying symptoms like excessive blinking or changes in demeanor.
  3. Follow-Up with Neurologist: Since the EEG results were normal, it might be beneficial for her to see a neurologist specialized in seizure disorders. Ensure she discusses her increased episodes, the feelings of brain fog, and any recent changes in her lifestyle or stress levels.

  4. Consider Additional Testing: Ask about potential further investigations, such as MRI scans or advanced EEG modalities (like an ambulatory EEG), to explore possible structural or metabolic factors not captured in the initial EEG.

  5. Support Network: Encourage your friend to maintain a strong support network. Frequent monitoring and support from friends and family can help her stay safe during episodes.

  6. Lifestyle Modifications: Encourage her to manage stress, maintain a regular sleep schedule, and avoid potential seizure triggers like flickering lights, if applicable.

Reassurance

It’s completely natural to feel anxious about your friend's condition, especially as it evolves. Stand by her side, support her in maintaining good communication with healthcare providers, and remember that you are helping her by being proactive about her health. Always prioritize her safety first and don't hesitate to move forward with necessary medical evaluations. If you have more questions or need further support in navigating this process, feel free to reach out.

Related Questions

Understanding Recurrent Symptoms: Are They Histamine-Related?

Hello, health professionals, I am seeking your expertise regarding a variety of symptoms I have been experiencing intermittently over the years. While they appear linked, I'm having difficulty pinpointing their root cause. **Personal Summary:** - 27 years old, Female - Non-smoker (formerly vaped for about eight years, cessation initiated two years ago) - No diagnosed autoimmune conditions - Background of anxiety (which might exacerbate some symptoms, though it doesn't account for all) - Currently taking Flonase and a multivitamin **Skin Reactions:** - I've dealt with recurring itchy rashes and hive-like bumps since childhood. They manifest suddenly and usually resolve without intervention. - These rashes are often itchy, can be raised, and tend to appear sporadically without identifiable triggers. - Antihistamines provide consistent relief, leading me to suspect a role of histamines in these eruptions. - These episodes do not align with typical contact allergies or classic food allergies. - They can happen multiple times daily, and I've often dismissed them as merely anxiety-related rashes. - Sometimes the itching precedes the visible rash, while other instances present with a red, inflamed area that stirs inquiries about my well-being from others. **Foot Discomfort:** - Over the last few years, I’ve encountered severe itching on the soles of my feet. - These episodes typically include small pale or white spots with redness surrounding them, occasionally featuring a red center. - Itching intensity can be overwhelming, yet these lesions usually arise suddenly, - They frequently improve upon avoiding scratching and may resolve within a range of 30 minutes to two days. - The first episode was triggered after swimming in a freshwater lake, though I’ve also experienced it while wearing specific footwear like Crocs or boots, but not consistently. - Certain events coincide with my typical skin rash, hinting at a potential systemic condition rather than merely a localized issue. - The symptoms do not mirror those of warts, ringworm, or fungal infections. **Ear and Sinus Issues:** - Itchy ears have been a recurring issue for the past few years; I initially attributed it to overly aggressive cleaning with cotton swabs, which I realize is harmful. - I have a history of chronic sinus problems, including post-nasal drip and regular ear infections. - The inflammation appears to flare up sporadically rather than constantly. - Recently, I experienced a painful ear issue that began with what I thought was a pimple. The next day, my ear was swollen. After visiting a clinic, I was diagnosed with a double ear and sinus infection, treated with antibiotics. My pain persisted, leading to a follow-up with my primary care physician, who prescribed Flonase and noted ongoing nasal inflammation. Missing doses led to increased ear discomfort, prompting me to take Flonase more regularly. Unfortunately, a recent flare of swelling and discomfort in my ear led me to consider consulting an ENT specialist. **Gastrointestinal Symptoms:** - I was diagnosed with gastritis through an upper endoscopy procedure. - Testing for H. pylori returned negative. - I've since developed food sensitivities and gastrointestinal discomfort not previously experienced. - I saw significant improvement after removing gluten and dairy from my diet, with tests for celiac disease yielding negative results. - Symptoms tend to flare up in response to stress or specific food intake rather than being a constant presence. **Additional Context:** - A history of childhood asthma (now occurs infrequently) - Sensitivity to heat - Past instances of feeling lightheaded, resembling vasovagal symptoms, alongside vertigo - Symptoms across various systems often flare together, but not in every instance - While my anxiety can intensify symptoms, both antihistamines and diet modifications have had notable positive effects **My Inquiry:** While I don’t wish to self-diagnose, I'm curious if my range of symptoms might suggest: - Histamine intolerance - Mast-cell overactivity (not necessarily MCAS, but an increased reaction) - Physical or contact urticaria I'm primarily seeking: - Recommendations for a suitable specialist - Insight on whether this symptom pattern fits a recognized mechanism - A clearer understanding of what warning signs to be concerned about **Summary:** I contend with a long-standing pattern of episodic itchy rashes and hives, significant but transient foot itching along with bumps, persistent ear irritation coupled with sinus problems, and gastritis accompanied by food sensitivities that improved on an elimination diet. Antihistamines aid multiple symptoms. Could this suggest underlying histamine-related issues manifesting across multiple systems rather than in isolation?

FibromyalgiaCrohn's DiseaseThyroid Disorders
Male25-34
9 minutes ago

Seeking Guidance on Persistent Chest Discomfort After Extensive Testing

I'm a 43-year-old male, standing at 5'11" and weighing 180 pounds. My journey began around March to April of 2025 when, despite regularly hitting the gym four times a week, I was struck by severe chest pain along with frequent belching and a tight feeling in my diaphragm. At times, the pain became so intense that I feared it might be a heart attack. **Medical History:** In May 2019, I received a diagnosis of **PVS** and have since been under the care of a cardiac electrophysiologist. Upon experiencing these new symptoms, I consulted my EP, who conducted an EKG right then and set me up with a 7-day heart monitor. The results showed no irregularities. Subsequently, I was directed to a cardiologist, who carried out both a **stress test** and an **echocardiogram**, both of which yielded normal findings. Afterward, I returned to my primary care physician, who speculated that my gallbladder might be involved. An **ultrasound** was performed but revealed no issues. I then requested a **chest X-ray**, which also came back normal. My PCP then considered the possibility of a **hiatal hernia** and referred me to a gastroenterologist; unfortunately, that appointment took almost **five months** to materialize. In the meantime, my symptoms persisted, prompting me to cease weightlifting and switch my focus to **cardio and running**. Surprisingly, these activities didn’t exacerbate my symptoms, though the chest pain remained constant. When I finally saw the gastroenterologist, they suggested an **upper endoscopy**, which took another roughly three months to arrange. During this procedure, I was diagnosed with **Eosinophilic Esophagitis (EOE)**, a condition I had not previously experienced. The doctors also placed a pH monitoring device for acid reflux assessment, which indicated **no unusual acid exposure**. Following this, I began a treatment plan that included a swallowed steroid inhaler and an increased dosage of **omeprazole**. Sixty days later, I underwent another endoscopy, which showed that the EOE had largely resolved, with minimal residual symptoms. Unfortunately, my chest discomfort persisted without any improvement. It has now been about **a year** since these issues emerged, and I still have not found substantial relief. A recent chest MRI completed at a dedicated imaging center revealed no abnormalities. I entertained the idea of **costochondritis**, but again, the MRI did not support that hypothesis. The only minor relief I find comes from consciously pulling my shoulders back and expanding my chest. I continue to experience discomfort around my **diaphragm** and tenderness in the area of the **xiphoid process**. My PCP prescribed a steroid pack, which was somewhat beneficial for the pain but failed to alleviate the pressure or constant discomfort. At this juncture, I feel quite lost and uncertain about my next steps. I would greatly appreciate any insights or experiences from others who have faced similar issues. Additionally, if there are any physicians here willing to offer advice, I am open to traveling to find the answers or relief I'm desperately seeking.

FibromyalgiaThyroid DisordersInternal Medicine
Male25-34
39 minutes ago

Understanding Mild Uncomplicated Diverticular Disease

I am a 29-year-old female, standing at 5'7" and weighing 130 pounds. Recently, a CT scan revealed that I have mild diverticulitis. About a week ago, I experienced significant discomfort, particularly in the pelvic region, along with pain in my right leg and hip, and some mild discomfort on the left side. After undergoing a CT scan, which confirmed the presence of mild diverticular disease, I was surprised that no one from my medical team provided any follow-up or acknowledged the condition. My blood tests returned normal results, and I was discharged without further information. While the pain subsided after about three days, it has unfortunately reappeared four days later. Is this something I should be worried about? What does this mean for me? I had a colonoscopy around 11 months ago, which indicated no issues.

Crohn's DiseaseCOPDInternal Medicine
Male25-34
49 minutes ago

Understanding the Reality of End-Stage Pancreatic Cancer

Navigating the complexities of end-stage pancreatic cancer can be overwhelming, and I'm seeking clarity on what lies ahead. My mother, who is 59 years old and weighs about 115 pounds, received her diagnosis of terminal pancreatic cancer in October 2025. Unfortunately, she has largely rejected the option of chemotherapy and is consuming her pain relief medications—specifically oxycodone and morphine—at an alarming rate. While I’m not worried about the dosage, the severity of her pain has reached a level that is becoming unbearable. Despite this, she is adamant about avoiding any hospital treatment, even though that's where she would receive the most effective pain management. I’ve attempted multiple times to get her medical attention, calling both hospitals and emergency services. However, due to her refusal for assistance, they have also turned us down. It was explained to me that taking her against her will could be considered kidnapping. After consulting with various healthcare professionals, I have been informed that her time may be measured in days or weeks. There’s also a chance that she could slip into unconsciousness, leaving me deeply unsettled. I am already in a state of mourning, yet I am desperate to understand what to expect in the coming days. It is crucial for me to prepare myself—emotionally and mentally—so that I can help ensure her comfort in these final moments. Plans are underway to engage hospice care, but the uncertainty fills me with apprehension. This is my mother, and I want to alleviate my fear so I can provide her with the support she needs as she nears the end of her journey. I yearn to be present for her without being entirely consumed by grief before she passes away. Any guidance or insight you could provide would be invaluable. I'm at a loss for what steps to take next and truly desire to navigate this situation with as much grace and readiness as possible.

FibromyalgiaCrohn's DiseaseEndocrinology
Male25-34
1 hour ago

Concerns After Gallbladder Surgery (Three Weeks Post-Op) - Is It an Infection?

Profile: - Age: 35 - Gender: Female - Height: 5 feet 4 inches - Weight: 160 pounds - Ethnicity: Asian Duration of Symptoms: Last Three Weeks Location: United States Recent Medical History: Nearly three weeks have passed since my gallbladder removal surgery. Over the last few days, I've noticed a small amount of unclear fluid coming from the incision. I just observed what seems to be pus oozing from the surgical site. Although there is slight tenderness when I move or touch the area, it isn't painful. Thankfully, I haven’t experienced any fever or chills, and there’s no unpleasant odor emanating from the wound. Should I continue to clean it with soap and water, or is it necessary for me to visit the emergency room for further evaluation?

Multiple SclerosisLupusInternal Medicine
Male25-34
1 hour ago