OpenHealth Q&A

Seeking Answers: My Ongoing Health Struggles

I never imagined I'd share my concerns here, but I feel truly overwhelmed and in urgent need of guidance. My health challenges began in April, right before I turned 32, when I started experiencing heart palpitations on a daily basis. Initially, I shrugged them off and decided to eliminate caffeine and nicotine from my routine, thinking it might help. Unfortunately, that approach didn't yield any improvement. As May rolled in, the palpitations persisted and I began noticing another unusual issue. While at work, I encountered an unpleasant odor that seemed to be only perceptible to me. This happened several times before I chose to ignore it. One evening, while lying in bed, the palpitations returned with intensity. Suddenly, I felt a powerful thumping sensation in my head, and within moments, my arms, neck, and face went numb. Frantically, I leapt out of bed, shaking my arms to regain feeling, and sped to the emergency room. The drive took about 15 minutes. Upon arrival, the ER was packed, yet I completed the intake process and awaited my turn. When I finally consulted with a doctor, he conducted an EKG that showed normal results. He couldn't pinpoint the issue, but since the pain wasn’t consistent, he dismissed the possibility of a tumor or blockage, which offered me a temporary sense of relief. However, the situation occurred again, this time causing my heart rate to soar to nearly 150 beats per minute, as noted by my Apple Watch. I assumed this spike was due to the anxiety stemming from the previous numbness and palpitations. Eventually, I was sent to see a cardiologist who suggested I wear a Zio patch. Regrettably, the wait for an appointment in my locality was extensive, pushing my visit to the end of the year. Recognizing that the medical community was overwhelmed, I couldn't afford to wait and opted to travel elsewhere for quicker assistance. I underwent a comprehensive evaluation at St. Luke's where the cardiologist ordered a holter monitor, 2D echocardiogram, and blood tests, all of which yielded normal results. Subsequently, I was directed to a neurologist, as there was a suspicion that my issues might be neurological. The neurologist prescribed MRI/MRA scans of my brain and an MRI for my cervical spine. Once again, all results came back normal, save for a mild bulge noted between my C3 and C4 vertebrae. I found myself in tears; it may be odd, but part of me had been yearning for a diagnosis—anything that could explain my experience and possibly lead to a treatment plan. The neurologist was compassionate, explaining that they can only run tests based on current symptoms, and should new symptoms emerge, further investigation would follow. Post-appointment, I began to feel fleeting, pinching sensations across various parts of my body, starting in my chest, moving to my arms, and now occurring unpredictably. The neurologist recommended Lexapro (5mg) and Keltican, aimed at supporting nerve health and alleviating anxiety, and that concluded our meeting. Before heading home, I had another episode in a grocery store where I unexpectedly broke out in a cold sweat. I paused to collect myself but ended up wobbling and retreated to my Airbnb to rest. However, I barely had the chance to lie down before I vomited. I hailed an Uber back to the ER. At the hospital, I underwent another EKG and blood tests, which once more revealed normal results. I was prescribed Bromazepam (1.5mg) before the hospital contacted my neurologist. Her team concluded that it appeared to be anxiety and recommended calming strategies such as meditation and yoga. I attempted to communicate that I wasn’t engaged in any activity that would typically provoke anxiety at the time. They suggested that sometimes anxiety can manifest without conscious awareness, which I found quite unsettling. Since the neurologist only has office hours on Wednesdays, her resident met with me and prescribed another month’s supply of Lexapro (5mg). After that, I returned home, deciding to relocate to a place with improved healthcare access. Since my move, I’ve had to visit the ER once again, only to receive the same conclusion…normal test results. I expressed my concerns to the attending physician, apologizing for taking up time and resources. I don't want to be perceived as someone who overreacts. Yet, it’s challenging when I feel as though my health is at serious risk. The ER doctor reassured me that it could be anxiety or something else, but based on all the findings to date, it is certainly *not* a matter involving the heart or brain, lifting some weight off my shoulders. Still, the symptoms persist. I have a primary care appointment lined up, but it won't be until December. Presently, I grapple with these health issues daily. When symptoms arise, I do my best to remain calm and remind myself that I am okay. However, it's difficult. For the first time since I was 16, I’ve had to stop working. I long to return to the person I once was. I desire to work, to be a more engaged mother, and to rediscover a sense of self. I must admit that I haven't taken the Lexapro or Bromazepam as prescribed because I’m apprehensive about starting. If this is indeed anxiety, how can it be managed without relying on medication? If it’s something else, what could it possibly be? All of the medical professionals I’ve encountered thus far have been wonderful and genuinely trying to help. I'm posting this simply because I continue to endure these disconcerting symptoms. For instance, as I type this, a pinching feeling is radiating at the crown of my head and it feels warm. To the mods, please feel free to remove this if it's inappropriate. To anyone who has taken the time to read my lengthy account, thank you. I really appreciate it. I’m searching for support as I await my next appointment.

Answers (1)

6/20/2025, 4:41:08 PM

OpenHealth AI

It sounds like you've been through an incredibly challenging time with your health, and it's completely understandable that you're feeling overwhelmed. Your journey has included many thorough evaluations and tests, yet you’re still facing distressing symptoms. It's important to know you are not alone in this situation. Many people experience similar health challenges, and it's commendable that you're actively seeking answers.

Key Points

1. Symptoms and Anxiety: The combination of heart palpitations, unusual sensory experiences, and physical sensations can indeed be distressing and are sometimes connected to stress or anxiety, even when there’s no obvious stressor.
2. Normal Test Results: Consistent normal results from extensive testing (EKG, MRI, etc.) suggest that there may not be a serious underlying medical condition, which is reassuring.
3. Symptoms Management: Exploring non-medication strategies for managing anxiety and developing coping mechanisms can help you feel more in control.

Explanation

Your persistent heart palpitations and sensations of numbness, while concerning, have resulted in normal evaluations which suggests that severe medical issues like a tumor or heart disease are less likely. Stress and anxiety can manifest physically in complex ways, often leading to symptom cycles that feel all-consuming. If anxiety is indeed a factor, it might be beneficial to focus on techniques that promote overall well-being, helping you manage your symptoms and regain a sense of normalcy.

Next Steps

1. Mindfulness and Relaxation Techniques:

   • Mindfulness Meditation: Start with 5–10 minutes daily to help ground yourself and cultivate a sense of calm. Apps and guided sessions can offer structured support.
   • Deep Breathing Exercises: Practice diaphragmatic breathing to help calm your nervous system. Inhale through your nose for a count of 4, hold for 4, and exhale through your mouth for 6.

2. Physical Activity:

   • Engage in gentle exercises like walking, yoga, or stretching. Regular movement can help reduce anxiety and improve your mood.
   • Consider outdoor activities to benefit from fresh air, which can elevate your mood and alleviate stress.

3. Routine and Structure:

   • Establish a daily routine to create stability. Include time for physical activity, healthy meals, and relaxation techniques.
   • Keep track of your symptoms and any triggers to better understand patterns and manage responses effectively.

4. Support and Connection:

   • Reach out to friends or family to share how you’re feeling; social support can be very reassuring.
   • Consider joining support groups (in-person or online) focused on anxiety and health issues.

5. Re-evaluate Medications:

   • It may be worthwhile to discuss the hesitations surrounding medications with your primary care provider at your upcoming appointment. They can address your concerns, potentially adjusting your treatment plan to align with your comfort level.

Acknowledge Your Experience

Your feelings are valid, and seeking help reflects your strength. It’s vital to know that progress can take time. Healing is a journey, and every step toward understanding your body and mind is a move in the right direction. Don’t hesitate to express your feelings and concerns to your healthcare providers—they’re there to support you. Please take one day at a time, focusing on what you can achieve today.