Feeling Overlooked by Medical Professionals—Should I Advocate More for Myself?
I’m unsure if I’m posting in the right subreddit; please let me know if this isn’t the place for this discussion. I am a 15-year-old assigned female at birth, 165 cm tall and approximately 65 kg. For the past three years, I have experienced episodes where I collapse when standing. Initially, I faced dizziness that varied in severity before these episodes began. The intensity of my collapses ranges from simply falling to momentarily losing my vision—though my sight typically returns within about a minute. At times, I find myself unable to stand for 15 minutes, with my longest episode lasting around 30 minutes. When this issue first arose, I had mild dizzy spells, which both my physician and I attributed to my very heavy menstrual cycles. I was prescribed medication intended to reduce my menstrual flow (though I cannot recall the specific name, this was about four years ago), but it had little effect. Over time, my condition has worsened. The most definitive diagnosis I’ve received is a mild iron deficiency—something I learned in mid-2023 that has been reiterated at subsequent visits. The frequency of my collapses varies; there are months with only one incident, while in other weeks, it occurs every day. At my latest medical appointment, two weeks ago, my doctor suggested the issue stemmed from my menstrual cycle. I’ve been using Lucrin, a hormone blocker, for more than two years now. When I mentioned this, my doctor told me I simply needed more time for my body to rebuild its blood supply post-menstruation. I find this hard to accept, given the duration I’ve been on Lucrin. She also dismissed my concerns by stating that this is a frequent issue among young women and that I would eventually outgrow it. However, I have yet to meet anyone who experiences such frequent collapses as I do. Here are some additional details that might be relevant: - During more severe episodes, I sometimes experience difficulties speaking, including slurred speech or stuttering. - I can always sense my heartbeat in my head. - My heart rate increases significantly. - Depending on the severity of the collapse, I often feel disoriented afterward. Occasionally, I struggle to think clearly, which sometimes coincides with a temporary inability to move; though I don’t think this is directly related. - I reside in New Zealand. I apologize if my message comes off as a bit rant-like! It’s currently 2 AM, and I’m quite fatigued.
Answers (1)
6/20/2025, 2:30:56 PM
OpenHealth AI
I understand your concerns about feeling overlooked by medical professionals regarding your episodes of collapsing and dizziness. It’s important to advocate for your health, especially when you feel that your symptoms are not being fully addressed. Here's a structured approach to help you take effective steps.
Understanding Your Situation
Your symptoms, including episodes of collapsing, dizziness, and communication difficulties, can significantly impact your daily life. The fact that these episodes have persisted and even worsened over time warrants a comprehensive evaluation beyond what you've received so far. While iron deficiency may play a role, it's essential to explore other potential causes, especially given the severity and frequency of your symptoms.
Next Steps to Advocate for Yourself
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Keep a Detailed Symptom Diary:
- Track the frequency, duration, and circumstances of each episode, including what you were doing before they occurred, how you felt leading up to the collapse, and how long it takes you to recover. Include any changes in your menstrual cycle as well.
- Document any associated symptoms (like heart palpitations or difficulties in speech) to present a thorough picture to your healthcare provider.
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Research and Prepare for Your Next Appointment:
- Look into conditions such as orthostatic hypotension (a drop in blood pressure when standing) or other causes of syncope (fainting episodes). Understanding these may help you articulate your concerns better.
- List specific questions you want to ask about your symptoms and the link to your iron deficiency and Lucrin treatment.
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Seek a Second Opinion if Necessary:
- If you feel your concerns continue to be dismissed, consider asking for a referral to a specialist, such as a cardiologist or an endocrinologist. They can evaluate your symptoms with fresh eyes and may suggest additional tests.
- In New Zealand, you have the option to see another general practitioner (GP) for a second opinion, or ask your current doctor to refer you to a specialist.
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Plan for Each Visit:
- When visiting your doctor, be assertive about your experiences. Explain why you think more investigation is necessary. Bringing your symptom diary can help them see the patterns and severity of your situation.
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Support System:
- Share your situation with trusted family members or friends, or consider involving an advocate who can accompany you to medical appointments. Having someone else with you can provide emotional support and help reinforce your concerns.
Remember
Your health matters, and it’s crucial to be heard. Take action on what you can control while remaining proactive in seeking answers. You deserve to understand your body and receive the support needed to manage your health effectively. If you ever feel your episodes are becoming more severe or if you have alarming symptoms, such as persistent difficulties in breathing or chest pain, seek emergency medical help.
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