Feeling Overlooked by Doctors Amidst My Struggles
It feels as though my doctors aren't taking my newly emerged symptoms seriously, yet the reality is that I'm experiencing considerable discomfort. At the end of this message, I've detailed my existing health issues and the medications I am currently using. About three weeks ago, I began to notice a sudden onset of symptoms, starting with neuropathic pain that has since been joined by additional complaints, which have persisted for approximately four weeks. * The neuropathic pain in my feet has intensified, a symptom of my polyneuropathy. The discomfort radiates along the outer part of my foot, making it painful for me to apply any pressure. With every step I take, the ache increases, and there is a numbness that has begun to travel up my leg. This situation resembles what I experienced prior to starting Gabapentin. I'm also encountering mild cramping beneath my foot that affects my big toe, and occasionally my pinky. This cramping frequently occurs during rest, but not consistently. * Extreme fatigue has set in to such an extent that it hinders my ability to sleep. Additionally, there are days when I find myself sleeping continuously for an entire 24-hour period. I am utterly devoid of energy, with my limbs feeling utterly heavy. This fatigue is the most debilitating symptom of all. I often find myself in tears, unable to drift off to sleep despite feeling drained. * I’ve been grappling with joint pain located in my wrists, fingers, and knees. * Muscle pain has also emerged in my arms, legs, and along my upper back. * I am experiencing tenderness in my breasts, particularly the right one, which houses a painful gland without any observable irregularities. * Nausea seems to be a constant companion. My body temperature fluctuates between 37.1°C and 38.2°C. * My bowel habits have become erratic. I now frequently produce softer stools that require flushing multiple times, and I find myself needing to visit the bathroom daily. This issue began about a year ago; although tests done back then yielded no significant findings, the healthcare team seemed to lose interest. Now, my bowel movements are unpredictable and can suddenly shift toward constipation. Despite blood tests returning normal results, they neglected to check my ferritin levels, which I have since requested. I’ve had to reach out multiple times and secured an appointment, but it’s not until FOUR WEEKS from now. This waiting period is increasingly painful for me. Am I being too sensitive about their apparent lack of urgency and engagement? How would you have handled a situation like mine if you were in my place? Other health conditions I manage include bipolar disorder, polyneuropathy, restless legs syndrome, and chronic pain affecting my pelvic area, jaws, neck, shoulders, and lower back. Current medications include Lamotrigine, Gabapentin, B12 supplements, birth control, omeprazole, slow-release morphine, and folic acid. Occasionally, I take Zolpidem, Diazepam, Paracetamol, Klonopin, and stool softeners.
Answers (1)
6/20/2025, 4:50:52 AM
OpenHealth AI
I'm sorry to hear that you're feeling overlooked and are experiencing significant discomfort with your symptoms. Your concerns are valid, and it's important that your experiences are addressed seriously. Here’s a breakdown of your symptoms and some actionable steps you can take while you wait for your upcoming appointment.
Overview of Symptoms:
- Neuropathic Pain: Intensifying pain and numbness in your feet and legs.
- Extreme Fatigue: Severe tiredness affecting sleep and functionality.
- Joint and Muscle Pain: Pain in various joints and muscles.
- Breast Tenderness: Specific soreness without visible issues.
- Nausea and Temperature Fluctuations: Frequent nausea and mild fever.
- Bowel Issues: Alternating between consistency issues with stools.
Explanation:
Your symptoms, particularly the combination of neuropathic pain, extreme fatigue, joint and muscle discomfort, and irregular bowel habits, could stem from a range of causes including potential autoimmune conditions, medication side effects, or other underlying health issues. It’s notable that you’ve previously had normal blood tests but want a second look at your ferritin levels, which is a wise decision as low ferritin can contribute to fatigue and other symptoms.
Given your complex medical history, there may be interactions or symptoms related to your medications that need further exploration.
Immediate Steps to Take:
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Symptom Diary: Keep a detailed log of your symptoms, including their severity, duration, and any patterns you notice. This can help bring clarity during your next appointment.
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Hydration and Nutrition: Ensure you are well-hydrated and consider maintaining a balanced diet. Regular meals might help with energy levels and nausea management.
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Gentle Movement: While it may be difficult, try to incorporate gentle stretches or short walks. This can help manage muscle and joint pain.
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Pain Management: Besides your current medications, explore non-medical pain relief methods (such as heat packs or cold compresses) for acute pain.
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Sleep Hygiene: To address your fatigue and sleep issues, practice a calming bedtime routine. Consider limiting screen time before bed, ensuring a comfortable sleep environment, and perhaps trying relaxation techniques such as deep breathing or mindfulness exercises.
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Follow-Up on Appointments: Continue to advocate for yourself. If your symptoms worsen before your four-week appointment, reach out to see if an earlier visit is possible or if you can conduct a telehealth consultation.
Addressing Feelings of Overlooked Care:
It's completely natural to feel sensitive in this situation, especially when your quality of life is affected. If you feel persistently unheard, consider seeking a second opinion or discussing your feelings directly with your healthcare provider at your next appointment. Clear communication about how these symptoms are impacting your life can help them understand the urgency from your perspective.
Reassurance:
You are not alone in your struggles, and it’s important to keep pushing for the care you deserve. If any new symptoms arise or if you experience severe changes (like significant pain, difficulty breathing, or changes in consciousness), seek immediate care.
Your priority is getting effective management for your symptoms, so continue to express your needs and gather information while waiting for further evaluations.
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