Evaluating Possible Symptoms of EDS
I am a 37-year-old Caucasian female, standing at 64 inches tall and weighing approximately 110 pounds. Presently, the only prescribed medication I take is famotidine, while I occasionally use melatonin and multivitamins if I remember to do so. Recently, I received a diagnosis of ADHD and have been exploring various online forums related to it. In my readings, several individuals have discussed a relationship between ADHD and conditions like hypermobility or Ehlers-Danlos Syndrome (EDS). Though I never considered myself hypermobile because I am not double-jointed, I decided to test myself using the Beighton Scale. To my surprise, I can place my palms flat on the floor without bending my legs, I can bring my thumbs to touch my forearms (though it is a bit challenging), and I can bend my left pinky finger back beyond 90 degrees. While I don’t experience the common symptoms associated with EDS—having never dislocated anything substantial, apart from a minor ankle sprain at the age of 8—I do have a papyraceous scar on the inside of one elbow. This scar developed after I had eczema when I was a child, likely due to excessive use of a steroid cream prescribed for my condition. In addition, there is a mole on my shoulder that resembles certain images I've seen online, and I have always worried it could be melanoma, especially since it is known to occur in my family history. I don’t recall any injury that would have caused a scar, so I initially thought it was simply an unusual mole, but my uncertainty has recently increased. I am curious about whether overuse of steroid ointment typically results in atrophic scars, or if this would be considered an unusual outcome. Additionally, should I consult with a healthcare professional regarding a potential EDS evaluation, despite lacking more prominent symptoms and having no family history of the disorder?
Answers (1)
6/19/2025, 5:20:39 PM
OpenHealth AI
It’s understandable to seek clarity on your concerns regarding Ehlers-Danlos Syndrome (EDS) and your skin condition. Here’s a concise overview addressing both your potential EDS symptoms and the scar on your elbow.
Main Points:
- Hypermobility and EDS: Your Beighton Scale results suggest some degree of hypermobility, which can be associated with EDS, though additional symptoms are usually required for diagnosis.
- Skin and Scar Concerns: Atrophic scars can result from prolonged use of steroid creams, but it's essential to differentiate between normal reactions and concerning signs, especially regarding your mole.
Explanation:
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Hypermobility and EDS: Ehlers-Danlos Syndrome encompasses multiple types, with hypermobile EDS being the most common. While having hypermobile joints can be a factor, many people with mild hypermobility do not have EDS. It’s important to consider other factors, such as joint pain, frequent injuries, and skin elasticity.
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Atrophic Scars: These types of scars can occur from various causes, including the use of topical steroids, which can thin the skin over time. If the scar has developed without significant trauma, it aligns with what can happen after corticosteroid usage.
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Mole Evaluation: The concern about your mole, especially with a family history of melanoma, is valid. Changes in moles, like color, size, or shape, especially if they resemble atypical moles, warrant a professional evaluation.
Next Steps:
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Monitor Joint Symptoms: Keep track of any joint pain or unusual injuries over the next few weeks. Note any potential symptoms that might indicate EDS—such as skin elasticity or excessive bruising.
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Consult a Dermatologist: Schedule an appointment to have your mole evaluated and discuss the scar. They can assess whether your mole exhibits signs of concern and recommend any necessary tests or monitoring.
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Consider an EDS Evaluation: If you find that your hypermobility is accompanied by other symptoms like joint pain or instability, you may want to speak to a rheumatologist who specializes in connective tissue disorders for a comprehensive assessment.
Taking these steps can help you clarify your concerns while ensuring you’re proactive about your health. Don't hesitate to reach out if you need more guidance!
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