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Navigating Self-Advocacy with a New General Practitioner

6/18/2025, 2:20:25 PMMale25-34

As a 22-year-old female, standing around 5 feet 4 inches tall and weighing approximately 68 kilograms, I come from Australia and face several significant health challenges. Specifically, I have been diagnosed with conditions including Scoliosis, Facet Joint Degeneration (specifically at L4/L5), Syringomyelia (affecting levels T7 to T10), and TMJ. Furthermore, an emergency room physician has raised concerns that I might be dealing with Intracranial Pressure. Recently, I made the important decision to stop smoking, and since then, I have seen a significant rise in both my pain levels and other related symptoms. I also stopped taking the medications that my previous general practitioner prescribed, as they did not provide any relief for my pain or improve my overall quality of life. Unfortunately, I had to relocate once again, marking my third move since last Christmas due to personal circumstances, which means I now need to find a new GP. I find myself quite anxious about this transition, particularly because my last GP was rather dismissive and unkind regarding my health concerns. My primary worry is how to communicate effectively with this new healthcare provider about my symptoms and the interconnectedness of my health issues without capturing the impression that I am overreacting or attempting to undermine their professional expertise. I have taken the initiative to study potential connections among my conditions through reliable medical literature, guided by results from various medical tests such as MRIs, CT scans, and blood work. This research serves as a foundation for our discussions, allowing us to explore possible diagnoses comprehensively. However, I feel apprehensive about sharing this knowledge with a new GP, fearing that it might lead to my insights being disregarded or to the impression that I am overstepping my role as a patient. Having experienced health challenges since my teenage years, I am growing weary and increasingly reluctant to voice my needs. It's been a long journey seeking clarity and support, yet I realize how crucial it is to stand firm and advocate for my health. I hope to find a way to engage constructively with my new GP, leading to better management of my health issues.

ArthritisCOPDInternal Medicine

Answers (1)

Cony

6/18/2025, 2:20:43 PM

OpenHealth AI

It's understandable to feel anxious about transitioning to a new general practitioner (GP), especially after a challenging previous experience. You have a complex health history, and advocating for yourself is crucial for effective care.

Key Points:

  1. Clearly outline your health history and symptoms.
  2. Focus on collaboration, not confrontation.
  3. Utilize your research to enhance discussions without overstepping.

Explanation

Navigating a change in healthcare providers can be daunting, particularly when you have multiple interconnected health issues. Your goal is to ensure your new GP understands your concerns and experiences, fostering a supportive relationship. It's positive that you are educating yourself about your health conditions; this knowledge can empower you in discussions.

Next Steps

  1. Create a Symptom Summary: Write down a concise summary of your health challenges, including the essential details about your conditions (scoliosis, facet joint degeneration, syringomyelia, TMJ) and any symptoms related to intracranial pressure. This will help communicate your situation clearly and efficiently.

  2. Set Up an Initial Appointment: When you see your new GP, explain that you are looking for a collaborative relationship where your input on your health is valued. Emphasize that you are hopeful for a fresh start and improved management of your conditions.

  3. Share Your Research Thoughtfully: When discussing your findings, consider framing them as questions or topics for exploration (e.g., "I’ve read that these conditions can be interconnected. What are your thoughts on how they might be affecting my symptoms?"). This approach invites dialogue rather than presenting yourself as an authority on your conditions.

  4. Express Your Goals: Be open about your experiences with previous treatment and your goals for pain management and overall health improvement. For instance, you might mention your experience with medications and express a desire for alternative approaches if necessary.

  5. Emphasize Advocacy: Remind yourself that it's okay to voice your concerns and seek clarity. Consider keeping a journal to track your symptoms and treatments. This can help you articulate your health journey during consultations and inform your new GP of relevant changes.

Approaching your new GP with this structured plan will help ensure that your voice is heard, and your health concerns are taken seriously. Remember, establishing a trusting relationship takes time, but your proactive approach will pave the way for better advocacy and care. If you ever feel dismissed or unheard, it's okay to seek a second opinion or find another provider who aligns better with your needs.

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We are located in Uzbekistan but are prepared to travel (to Turkey, Russia, South Korea, etc.)** --- ## ADDITIONAL INFORMATION - No family history of hepatic diseases - Pregnancy and delivery were normal - No additional congenital defects identified - Immunizations up to date - No history of bleeding disorders - No signs indicative of encephalopathy - Child is alert and engaged --- **I can supply actual MSCT images and comprehensive lab reports if they would be of assistance.** We sincerely appreciate any insights you can provide. We are striving to make the most informed decision regarding our daughter’s care and highly value expert medical opinions. **TL;DR:** 7-month-old diagnosed with Abernethy Type 2 malformation (9.9 mm portocaval shunt, patent portal vein). Liver functionality is improving (normalized ALT) while bilirubin remains elevated (242). Evaluating options between endovascular coil embolization and open surgery. 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