Desperate for Answers: Struggling with Incessant Hunger at 20
Five months ago, my life took a devastating turn. It all started when I indulged in an overwhelming quantity of carbohydrates. At that time, my parents were adamant about ensuring I ate enough since I had been classified as severely overweight. Ironically, I was quite thin due to my heavy involvement in running during that period. After six hours of consuming nothing further, I checked my blood sugar levels, which had spiked to 169 mg/dL. Compelled by an incessant hunger, I ate to my heart's content once more, stemming from the hyperphagia caused by hyperglycemia. My previous experiences with obesity in 2020 made me aware of this phenomenon; however, I’ve managed to remain quite lean over the past two years through proper diet and consistent daily running. Yet soon after eating again, I was struck by confusion, followed by nausea, which led me to vomit a couple of times. I also experienced an intense dry mouth and had to use the restroom excessively, around ten times an hour, for over six hours. That experience was peculiar, but it was only the beginning. From that day forth, I have suffered from relentless and unquenchable hunger, a condition known as hyperphagia. It appears this hunger is unending; no matter what I consume or how much food I take in, I cannot achieve a sense of fullness. I could eat an enormous feast that would satisfy ten ravenous lions combined and still feel unsatisfied. Since this issue arose, my weight has increased by 100 pounds. I used to weigh around 100 pounds at 178 cm height, which I realize was significantly underweight at the time — but that’s not the focus here. I am fully aware of what it means to overeat, and this situation feels entirely different. It’s as if my body has lost the ability to recognize satiety. Strangely, the sensations typically associated with overeating — like bloating, gas, or stomach pain — vanished overnight. One moment I was experiencing these symptoms, and the next, they completely disappeared. I’ve undergone comprehensive blood tests that examined hormones, glucose, and insulin levels, all of which came back normal. This weekend, I have an appointment for a pituitary MRI, but I am honestly terrified. I can’t shake the feeling that I’m dealing with something atypical that won’t show up on scans. I am at a loss. Recently, I considered reaching out to the Undiagnosed Diseases Network, but I discovered they typically don’t take on cases involving subjective symptoms. I’ve even pondered contacting the Endocrine Society, hoping they might connect me with a specialist willing to delve deeper, but I am skeptical about that too. What I truly seek is someone who is willing to investigate my situation thoroughly, although I recognize that finding such help might be improbable. If anyone has suggestions on where I might seek help or know of any resources I could tap into, I would sincerely appreciate it. At just 20 years old, I feel like I am at my breaking point. It’s disheartening when people dismiss my struggles, citing my past obesity and my current weight gain without acknowledging my hard work in maintaining and losing weight. I have repeatedly fluctuated between 145 pounds (my typical weight before this ordeal) and around 130-132 pounds over the past two years, and I am genuinely at a loss for how much longer I can endure this. Any guidance or recommendations would mean the world to me. Could consulting with a neurologist be a potential avenue? I’m not even sure if they handle such issues, but I’m desperate for assistance.
Answers (1)
6/17/2025, 6:10:46 PM
OpenHealth AI
Thank you for sharing your experience. It sounds like you are facing a challenging situation with your health and well-being. The sensation of relentless hunger and the significant weight gain can be distressing, especially when you feel you've lost the ability to find satisfaction from food. Here are some key points to consider moving forward:
Main Points:
- Persistent Hunger and Symptoms: Your experience of hyperphagia (persistent hunger) and related symptoms is concerning and warrants thorough investigation.
- Upcoming MRI: You have an MRI scheduled, which is a crucial step in understanding your symptoms, particularly regarding your pituitary gland.
- Seeking Support: Finding the right specialist who will thoroughly investigate your condition is essential.
Explanation:
Hyperphagia can stem from several sources, including hormonal imbalances, psychological factors, or even neurological issues. While your blood tests returned normal results, it’s possible that a more in-depth exploration is required. The fact that you experienced severe fluctuations in hunger and the dramatic changes in your eating patterns suggests that something may still be at play.
Actionable Steps:
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Prepare for Your MRI: Ensure you have a list of all symptoms, concerns, and any changes you've noticed leading up to the MRI. This information will help your doctor interpret the results accurately.
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Keep a Symptom Diary: Document your daily food intake, hunger levels, physical activity, and any emotional or psychological distress you experience. This can provide valuable insights for you and any healthcare providers.
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Consult with a Specialist: In addition to your endocrinologist, consider seeking a referral to a neurologist or a metabolic specialist who may provide a different perspective on your symptoms. Document your concerns about neurological or hormonal effects that might not have been investigated yet.
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Explore Support Networks: Look for local or online support groups for individuals facing similar issues with eating and weight management. Connecting with others can help alleviate feelings of isolation.
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Mindfulness and Stress Management: Since emotional factors can contribute to eating behaviors, consider incorporating mindfulness practices, such as meditation or yoga, to help manage stress and improve your relationship with food.
Additional Notes:
It’s understandable to feel overwhelmed, but taking proactive steps to address your symptoms can make a significant difference in your journey. You are not alone in this, and it’s commendable that you’re seeking the help you need. Stay persistent in your search for answers, and prioritize your mental and physical health as you navigate this challenging time.
Please let me know if you need further information or support.
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