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Seeking Insights on My Condition After Weight Loss Surgery

4/4/2025, 4:40:36 PMMale25-34

**Gender:** Female **Current Weight:** 170 lbs **Height:** 5'9" I have a family background of kidney illness and I am diagnosed with Ehlers-Danlos Syndrome (EDS). **Symptoms Description:** Over a year has passed since I underwent weight loss surgery, and I’ve been experiencing significant challenges with my hydration. My thirst is excessive, impacting my ability to function effectively. At work alone, I consume more than 120 ounces of water, and at home, I find myself drinking between three to eight additional bottles. This constant thirst hampers my appetite; at times, I am only able to manage my protein shakes instead of other meals. My symptoms include frequent dizziness when I’m out, necessitating that I carry multiple bottles of water with me, or I begin to feel unwell. Symptoms like warmth, light-headedness, chest discomfort, and an uncomfortable dryness in my mouth become pronounced when I don’t stay adequately hydrated. It’s becoming increasingly difficult to sustain my water intake; despite drinking electrolytes and a protein beverage daily to mitigate my persistent throbbing headaches, my condition seems to worsen. I revisited my surgeon for evaluation, but after running tests, he indicated that everything appeared normal and was unsure of the underlying issue, recommending that I see my primary care doctor. At my appointment with the primary physician, I inquired about the possibility of having diabetes insipidus evaluated. However, following a finger-prick blood test, I received results pertaining only to my glucose levels, with no assessments related to my antidiuretic hormone (ADH) levels. Currently, I am in search of a new primary care physician and would appreciate any guidance on potential issues I might be facing, particularly if diabetes insipidus isn’t the cause.

LupusInternal MedicineRheumatology

Answers (1)

Cony

4/4/2025, 4:40:59 PM

OpenHealth AI

Understanding Your Hydration Challenges After Weight Loss Surgery

Your situation involves complex hydration issues, potential complications post-surgery, and your underlying conditions, such as Ehlers-Danlos Syndrome (EDS). It's commendable that you're seeking clarity on your symptoms, especially given that excessive thirst, dizziness, and difficulties with food intake can be challenging to manage.

Explanation

After weight loss surgery, many experience changes in their body's handling of fluids and electrolytes. This can be compounded by your EDS, which may affect connective tissue and vascular health, potentially leading to issues with blood circulation and volume regulation. Your excessive thirst and difficulty staying hydrated might indeed suggest an underlying condition, such as diabetes insipidus, but there could also be other factors like:

  1. Electrolyte Imbalances: Even if you’re drinking enough water, imbalances can affect your thirst and overall well-being.
  2. Malabsorption Issues: Post-surgery changes can hinder nutrient uptake, impacting energy levels and appetite.
  3. Other Hormonal Imbalances: Conditions affecting hormones responsible for regulating fluids (not just ADH) may also play a role.

Next Steps

  1. Monitor Symptoms: Keep a detailed log of your daily water intake, any food consumed, and a description of your symptoms (dizziness, thirst, etc.). Note any patterns or triggers that worsen your symptoms, which will be useful for any healthcare professional.

  2. Explore Further Testing: Since diabetes insipidus was not fully evaluated, consider requesting comprehensive tests that include:

    • ADH level assessment.
    • A more thorough evaluation of your kidney function and electrolyte levels.
    • A dehydration test, which is crucial to ruling out or confirming types of diabetes insipidus.
  3. Hydration Strategies: Engage in practical strategies to manage hydration:

    • Consider smaller, more frequent sips of fluid rather than large amounts.
    • Include electrolyte-rich fluids (like oral rehydration solutions) to help with hydration balance.
    • Evaluate your diet to incorporate foods with higher water content (e.g., cucumbers, oranges) that might be easier to manage.
  4. Seek a Specialist: Look for a healthcare provider who specializes in EDS or post-bariatric care, as they may have specific insights into your symptoms and treatments tailored for your condition.

  5. Healthy Eating: If solid food intake is limited, focus on balanced liquid nutrition options that can provide essential nutrients. Consult with a dietitian experienced in post-weight loss surgery care.

Conclusion

Your symptoms are concerning, and they merit a thorough investigation to identify potential sources and appropriate treatments. Utilizing these steps can help you advocate for your health as you find a new primary care physician. Remember, you’re not alone in this—many have navigated similar challenges, and resources are available to support you.

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