Debilitating Migraines and Suspected Functional Neurological Disorder
I’m a 36-year-old woman currently taking 30mg of Cymbalta to manage my symptoms. I have been experiencing prolonged numbness in my face and back, along with persistent chronic migraines that haven’t fully subsided despite various treatments. I’ve managed to bring the pain to a tolerable level, but alongside the headaches, I’m also battling mental outbursts due to my ongoing struggles with major depression, anxiety, and complex post-traumatic stress disorder, for which I am on sodium valproate and Sandomigrain. My health issues seem relentless. Additionally, I suffer from endometriosis and am suspected of having Functional Neurological Disorder (FND) and idiopathic hypereosinophilia syndrome. A slight herniation was noticed in one of my vertebrae during an endometriosis scan, although it went undetected by neurology. My brain scan, however, came back normal. I frequently find it difficult to breathe through my nose and have been forgetting things from days ago. Despite lacking a structured routine, my memory issues have been steadily worsening. My new neurologist keeps recommending VYEPTI infusions, and I have also tried various medications, including Botox. I feel utterly exhausted and burnt out from this ongoing battle, and I sense my caregiver is reaching their limit as well. Changes to my vision have added to my confusion. I constantly experience a pulsing sensation on the left side of my head, and although EMG tests have returned normal results, I am at a loss for what to do next. I also have numbness in my fingers and experience intermittent weakness in my legs, accompanied by a persistent pulsating feeling in my feet and legs. The numbness has extended to my face, and I’m faced with incontinence issues. At times, it feels like my eye is going to pop out of its socket. I sense pressure at the back of my head, which is also numb. Years ago, a C6 nerve issue was discovered in my neck, but no action was taken at that time. I am truly at my wit's end. My days seem to revolve around sleep; while I know excessive rest is not ideal for migraines, managing my illnesses and staying alert is a real struggle. I am already classified as disabled, and my symptoms continue to worsen, leading to mental strain over several years. If anyone has alternate perspectives or potential solutions, I would greatly appreciate it. My cognitive decline is a particular source of worry, and I’ve also found myself easily confused and questioning my perception of reality.
Answers (1)
4/3/2025, 3:31:25 PM
OpenHealth AI
I'm really sorry to hear about the overwhelming challenges and symptoms you're experiencing. It sounds incredibly frustrating and exhausting to manage such a complex mix of health issues. To address your concerns better, let’s break down the main points and focus on actionable steps.
Main Points:
- Chronic Migraines and Neurological Symptoms: You are dealing with debilitating migraines alongside various neurological symptoms.
- Mental Health Struggles: Your experiences with major depression, anxiety, and PTSD are adding another layer to your already challenging situation.
- Potential Functional Neurological Disorder: Given your symptoms and the neurological concerns, it could be useful to explore these further.
Explanation:
The combination of migraines, numbness, weakness, and other neurological symptoms can be overwhelming and tricky to navigate. Chronic migraines can often coexist with other conditions, including functional neurological disorders, which might require specific therapies not just for pain management but also cognitive therapies. Additionally, it’s important to consider that mental health can significantly impact and exacerbate physical health conditions. This cycle can lead to exhaustion, both physically and mentally.
Next Steps:
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Consider the VYEPTI Infusions: Since your neurologist has suggested VYEPTI infusions, it could be beneficial to explore these further. Research indicates that VYEPTI may help with chronic migraines and could be a valuable option to reduce the frequency and severity of your headaches.
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Cognitive and Physical Rehabilitation: Engage in cognitive behavioral therapy (CBT) or occupational therapy, which can sometimes help improve mental clarity and address cognitive decline. Physical rehabilitation may also be necessary to help with coordination and strength for your legs and fingers.
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Structured Routine: Developing a structured daily routine can be beneficial. Incorporate short periods of activity, along with scheduled rest. A consistent routine can help with mental clarity and provide a clearer framework to manage symptoms. You could also consider cognitive aids, like planners or reminders, to assist with memory.
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Manage Mental Health: Continue to prioritize your mental health alongside physical symptoms. Consider discussing with your healthcare provider about adjusting your current therapy options or exploring new approaches such as mindfulness techniques or stress management strategies to help with your depression and anxiety.
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Symptom Diary: Keeping a detailed diary of your symptoms—including onset, duration, and intensity—can help both you and your healthcare professionals identify patterns and guide treatment decisions.
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Evaluate Breathing and Vision Issues: Since you mentioned difficulties with breathing and changes in vision, these symptoms should also be monitored. If they worsen, flagging them with your neurologist might lead to a more comprehensive evaluation.
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Prioritize Self-Care: It’s crucial to allow yourself moments of self-care. Try to find small, achievable activities you enjoy, whether it’s light stretching, reading, or engaging with a hobby that gives you joy, to help improve your daily mood.
I empathize with the exhaustion and confusion you’re feeling right now. Please know that you are not alone, and it's completely valid to seek additional support and options given your complex situation. If there’s anything more specific that you’d like to know or discuss, don’t hesitate to ask. Your well-being is important, and finding the right path might take time, but progress is possible.
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