OpenHealth Q&A

Desperate for Answers: My Ongoing Neurological Symptoms

I am feeling increasingly frustrated as I struggle to understand the root of my symptoms, having exhausted nearly all possible avenues for answers. Despite visits to several specialists and consultants, no one has successfully identified what’s causing my issues. Currently, my most concerning symptoms involve tingling and numbness on the left side of my face. This sensation shifts around, affecting areas such as my cheek, mouth, and near my ear, and I also experience a persistent ringing in the left ear. Notably, most of my symptoms predominantly affect the left side of my body. I have observed several other intermittent symptoms as well, including: - A warmth sensation localized to the left side of my face - Warmth felt in my left ear - A popping sound in the left ear - Pressure in the left ear similar to what one might feel when flying - Occasional headaches - Disruptions in my sleep due to these distressing symptoms - Multiple instances of waking up in the night while lying on my right side, with my entire left arm and leg feeling numb - Sharp, pin-like pain on the left side of my chest, near the heart - A recent two-day episode of warmth on the outer side of my left thigh - A sharp pain in my lower left back, situated just above the left buttock, which has occurred over a few days recently. I attempted to consult my NHS GP, but was directed to speak with a pharmacist instead. Although I am fortunate to have private health insurance, it hasn’t been particularly beneficial in this instance. As for the medical professionals I have seen and the scans I have undergone: - **General Practitioner**: After discussions with a private GP, a referral to a neurologist/brain specialist and an ENT was recommended. - **Neurologist**: Upon visiting a brain specialist, I underwent several assessments and an MRI of my brain, which I requested to extend to my neck, suspecting that potential nerve issues might be a factor. The specialist declared the results normal, with nothing alarming found, but did identify a significant sinus infection, leading to another referral to the ENT. - **ENT Specialist**: Following an evaluation, the ENT confirmed that my ear was functioning well and that my hearing was intact. He suggested that the ringing may be age-related since I am 45, implying that I would likely acclimatize to it over time. I clarified that the ringing isn’t constant; it occurs sporadically, increasing in pitch for brief intervals before subsiding. He seemed unconcerned and classified it as typical. He then recommended a CT scan for my sinuses, which I requested to include my inner ears. While the scans provided insights into my sinus concerns, they showed no signs of inner ear infection. His focus seemed to lean towards addressing my sinus issues, suggesting surgery to remove tissue for better drainage. When I inquired if my sinus problems could be related to my symptoms, he deemed that unlikely but suggested pursuing the operation nonetheless; I opted not to proceed. He prescribed a medication which is meant to "reset" the symptoms, recommending a trial of a couple of weeks, but I have yet to take it. - **Spine Specialist**: My next stop was a spine specialist to discuss whether the condition of my neck could be a contributing factor to my symptoms. After reviewing my MRI, he noted minor abnormalities on one of the discs, which he categorized as normal for my age. He also felt it was unlikely for my facial and ear symptoms to stem from neck issues, which left me feeling disheartened. I shared the ENT’s prescribed medication with him, and he felt I could try it, yet I haven’t taken it thus far. As my symptoms persist with fluctuating intensity—currently heightened as I write this at 1:50 am after a mere two hours of sleep—I find myself contemplating countless possible causes. - **Dentist Consultations**: I recall when the tingling began, roughly 3–4 years ago, coinciding with the deterioration of a dental filling in my upper left molars. After examining it, my dentist provided me two options: removal of the remaining filling or placing a new one on top; I chose the latter, but it fell out shortly after. This has led me to suspect that the tooth could be influencing my symptoms. I visited two dentists; the first barely entertained the issue, while the second, after reviewing my dental history, asserted that my tooth was unlikely to be the culprit but added he couldn't eliminate the possibility without opening it up. He warned me that doing so might necessitate tooth extraction instead of a replacement filling. Additionally, I have considered factors such as my mattress and pillow, both of which I have replaced, and my posture, as I am predominantly seated at a computer desk, where I have gotten a standing desk to alleviate potential strain. It’s worth noting that though my tingling symptoms initiated 3–4 years ago, the ringing only commenced about two years later. I distinctly remember it beginning following an episode of lower back injury during a DIY project, along with a severe sinus infection at the same time. My olfactory senses seemed altered as I perceived a foul odor that my wife claimed wasn’t there; I suspect this was tied to my sinus condition. I felt unwell for a few days and then experienced improvement, only to be left with lingering ringing in my ear. As it stands now, I find myself grappling with these perplexing symptoms without any clarity on their source. My sanity is waning, my sleep is compromised, and my overall quality of life has significantly deteriorated. I would immensely appreciate any recommendations for tests, follow-ups, or specialist consultations. Thank you for your assistance.

Answers (1)

4/3/2025, 1:41:00 AM

OpenHealth AI

Summary of Key Concerns

You’ve been experiencing persistent neurological symptoms, primarily tingling, numbness, and ear-related issues, with no clear diagnosis despite numerous consultations and tests. These symptoms have significantly affected your quality of life and sleep.

Explanation

Based on the details you've shared, it seems you are dealing with complex and potentially overlapping symptoms. The sensations of tingling and numbness, especially localized to one side, along with the tinnitus (ringing in your ear) and sinus issues, can sometimes point towards a variety of conditions. These could range from neurological issues, such as nerve compression or migraines, to less common disorders. It's also important to note that dental problems, like an infection or issues stemming from fillings, could sometimes contribute to nerve-related symptoms.

Given that various specialists have not provided definitive answers, here are some steps you could consider.

Actionable Next Steps

1. Trial the Prescribed Medication: If your ENT prescribed a medication aimed at addressing your symptoms, consider giving it a trial period as recommended. Monitor any changes closely, as this may provide insight into whether your symptoms are responsive to treatment.

2. Follow-Up on Dental Concerns: Given that your dental history coincides with the start of your symptoms, it may be worthwhile to see a specialist who focuses on oral and maxillofacial issues. They can assess whether the tooth could be impacting your nerves.

3. Symptom Diary: Keep a detailed diary of your symptoms, noting when they occur, their intensity, and any associated activities or triggers. This could help identify patterns that may lead to a clearer understanding of causation.

4. Neurological Assessment: If symptoms persist or worsen, seeking a second opinion from another neurologist may help exchange insights and explore conditions that haven't yet been considered. Neurosurgeons could also provide insight, particularly if there's any concern regarding nerve compression that wasn't captured in previous MRIs.

5. Sleep Hygiene Improvements: Since you mentioned disrupted sleep, focus on establishing a calming bedtime routine and optimizing your sleep environment. Consider strategies such as keeping your bedroom dark and cool and avoiding screens an hour before bed.

6. Physical Therapy: Engaging with a physical therapist specializing in neuromuscular conditions may provide exercises to enhance circulation and nerve function. They can also assist with posture correction given your work circumstances.

7. Manage Stress: Chronic unexplained symptoms can impact mental well-being. Techniques such as mindfulness, yoga, or counseling could help manage frustration and anxiety regarding your health.

8. Regular Follow-Ups: Continue regular follow-ups with your healthcare providers. Update them regarding your symptoms, especially any new developments or changes. Having open communication is crucial for coordinating your care efficiently.

Closing Thoughts

These symptoms can be incredibly distressing, and it's understandable to feel overwhelmed. You are doing the right thing by seeking answers and considering various avenues for diagnosis. With persistence, a clearer diagnosis may emerge. Please take care of yourself, both physically and mentally, as you navigate this challenging journey.