Navigating My Complex Health Journey
At 33 years old, I measure 4’11” and weigh 160 lbs. My medical history is quite intricate, featuring significant neurological challenges such as a tumor, cerebral venous thrombosis, a shunt, intracranial hypertension, hemiplegic migraines, tremors, alongside cognitive and memory difficulties. I'm currently prescribed vyepti, ubrelvy, and nurtec to manage my conditions. In October 2024, I began experiencing a peculiar sensation I refer to as neurological itching—an itch that seems impossible to alleviate. Following this, one of my neurologists requested some laboratory tests that resulted in abnormal findings, specifically elevated levels of GGT at 82, ALP at 121, and ferritin at 208. Initially, they deemed it an isolated incident, but upon retesting in November 2024, the results showed an increase: GGT at 97, ALP at 132, and ferritin rising to 249, with iron binding capacity at 248. During this period, I also started experiencing epigastric pain. An abdominal ultrasound was performed, yet the results came back normal. Unfortunately, I lost access to my health insurance, halting further investigation despite the ongoing pain. By March 2025, the discomfort escalated significantly, making it difficult for me to stand or sit without distress. An EKG conducted during a doctor’s visit indicated a sinus rhythm with sinus arrhythmia and a potential right ventricular conduction delay, described as a borderline ECG result. Further tests showed my GGT had surged to 200, ALP was at 179, ALT at 48, and bilirubin at 1.2, though ferritin levels were not re-evaluated. Another abdominal ultrasound, this time incorporating a liver Doppler, again yielded normal results. I have a CT scan scheduled soon, but any insights would be appreciated. My case seems to always present complexities, and I suspect my latest hospital experience may even feature in medical literature as an illustrative example. Any assistance would be greatly valued.
Answers (1)
4/3/2025, 1:10:38 AM
OpenHealth AI
Thank you for sharing your complex health journey. It's clear that you have been navigating significant health challenges, and it’s understandable that you are seeking clarity and guidance. Here are the main points to consider and actionable steps to help you address your situation.
Main Points:
- Recent Laboratory Findings: Your liver function tests (elevated GGT and ALP) and rising ferritin levels need close monitoring.
- Symptoms: The epigastric pain and neurological itching are concerning, especially with such a complex history, and they warrant further evaluation.
- Access to Care: Finding ways to manage your symptoms without insurance is crucial, yet continued monitoring is essential.
Explanation:
The elevated GGT and ALP levels can indicate issues related to liver function or bile flow. Elevated ferritin can suggest inflammation or iron overload. While the normal ultrasound results are reassuring, persistent symptoms like pain and the unique sensation of neurological itching should not be dismissed. Your symptoms and lab findings suggest that a comprehensive approach to understanding their underlying causes is necessary.
Action Steps:
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Symptom Diary:
- Maintain a diary documenting your symptoms, including the frequency and intensity of pain, the timing of your neurological itching, and any potential triggers (e.g., diet, activity).
- Note any correlation between your medication and symptoms. This will help in discussing your case with healthcare providers.
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Nutrition and Managing Pain:
- Focus on a balanced diet rich in anti-inflammatory foods (fruits, vegetables, whole grains, lean proteins).
- Consider over-the-counter remedies (like antacids or pain relievers) for epigastric discomfort, but consult a pharmacist for advice based on your medications.
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Follow-up on Testing:
- Prepare for the upcoming CT scan by discussing any specific symptoms that are concerning with your healthcare provider to see if further imaging or testing might be warranted based on results.
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Explore Financial Resources:
- Look into local health clinics, non-profit care options, or sliding scale services that could offer continued care despite the loss of insurance.
- Organizations related to your neurological conditions may provide resources or support in finding affordable care.
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Reach Out for Support:
- Consider speaking with a patient advocate or a social worker who can provide guidance on navigating healthcare access and financial concerns.
Reassurance:
Your journey is indeed complex, and it’s important that you're seeking assistance. Every piece of information and symptom you provide helps paint a clearer picture. As you prepare for further investigation and continue to manage your symptoms, know that you deserve care tailored to your unique needs. If you have any further questions or need clarification, feel free to ask.
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