OpenHealth Q&A

Get answered by medical professionals

Understanding Possible POTS Symptoms

4/2/2025, 11:50:16 PMMale25-34

Are these symptoms indicative of POTS? - Experiencing a significantly elevated heart rate, ranging from 70-90 beats per minute while lying down, escalating to 130-140 when simply standing, and peaking at 170 during activity such as walking or climbing stairs. - Constant feelings of dizziness and vertigo that persist around the clock for years, even while resting. - Frequent sensations of near-fainting or pre-syncope without full loss of consciousness, yet always feeling on the verge of passing out. - These symptoms have been ongoing for several years. - A persistent feeling of weakness in my limbs, described as "jelly legs" where my body feels unstable even while resting, accompanied by a numbness in my legs at all times. - Experiencing visual disturbances, like visual snow. - Suffering from migraines that are accompanied by aura. - The presence of permanent blind spots with significant vision loss, double vision, and difficulty in coordinating eye movement, with noticeable yellow and black spots in both eyes. - Engaging in minimal activities results in a rapid increase in heart rate, reaching 120-130 simply from changing clothes. - Regular occurrences of heart palpitations, sometimes noticeably strong. - Ongoing symptoms of nausea, abdominal discomfort, and digestive issues, particularly severe upon waking. - Excessive sweating, especially in my extremities, alongside a cold sensation throughout my body and intermittent feelings of faintness since getting out of bed. - Experiences of tingling in my face, hands, legs, and lips almost daily. - Difficulty in breathing, frequently feeling pressure in my chest. - Episodes of faintness when attempting to rise from bed, resulting in an overwhelming weakness that necessitates remaining in bed. - Occurrences of sudden flashes of light in my vision, akin to gold hues appearing unexpectedly.

LupusCrohn's DiseaseRheumatology

Answers (1)

Cony

4/2/2025, 11:50:35 PM

OpenHealth AI

Your symptoms raise important concerns that may be associated with Postural Orthostatic Tachycardia Syndrome (POTS), which is characterized by an abnormal increase in heart rate upon standing, along with other symptoms like dizziness, weakness, and even nausea. However, due to the complexity and variety of your symptoms, it is crucial to approach these symptoms thoroughly.

Overview of Your Symptoms:

  1. Elevated Heart Rate: A significant increase when standing and during activities is typical for POTS.
  2. Dizziness & Pre-syncope: Constant feelings of dizziness and near-fainting are common in this condition.
  3. Weakness & Numbness: "Jelly legs" and numbness can indicate issues with blood flow and nerve responses, which link to POTS and potentially other underlying conditions.
  4. Neurological Symptoms: Visual disturbances, migraines with aura, and coordination issues are essential to monitor, as they may indicate related autonomic dysfunction.
  5. Gastrointestinal Symptoms: Nausea and digestive issues can accompany POTS due to autonomic nervous system involvement.
  6. Chest Pressure & Breathing Difficulty: These symptoms should be evaluated closer for any potential cardiac involvement or anxiety.
  7. Other Symptoms: Tingling, sweating abnormalities, and fatigue relating to minimal exertion all support the possibility of POTS.

Next Steps:

  1. Track Your Symptoms: Keep a detailed diary of your symptoms, noting when they occur, their intensity, and any triggers. This will help identify patterns and provide useful information for further evaluation.

  2. Increase Fluid & Salt Intake: Generally, increasing your fluid intake can help expand blood volume and improve symptoms. Adding salt to your diet can also assist; however, this is best done under guidance specific to your health situation.

  3. Gradual Position Changes: Practice slow maneuvers when changing positions (for example, sitting up slowly before standing), which may help manage symptoms.

  4. Compression Garments: Consider using compression stockings or abdominal binders to aid blood flow and reduce pooling in your legs when standing.

  5. Regular, Gentle Exercise: If tolerated, engaging in light exercise can improve symptoms over time. Focus on recumbent or seated exercises that avoid rapid changes in position.

  6. Monitor Severe Symptoms: If you experience severe symptoms such as significant chest pain, fainting episodes, or sudden changes in vision, it is essential to seek immediate medical attention.

Given the multifaceted nature of your symptoms, connecting with a healthcare provider who specializes in dysautonomia or autonomic disorders can provide a comprehensive evaluation and formulate a tailored treatment plan to better manage your symptoms. Always trust your instincts about your health and reach out for help when needed.

Related Questions

Understanding EEG Results for My 22-Month-Old Son: Insights Needed

Could someone help clarify this for me? My son, who is just 22 months old, hasn’t started walking yet, becomes tired easily, and has been experiencing behavioral outbursts. He had a febrile seizure in February 2025, followed by another unexplained seizure in April 2025, which led us to consult a neurologist. Since he was 3 months old, he has been receiving therapy from a physical therapist for torticollis. At birth, he spent five days in the NICU due to issues with meconium aspiration. A recent MRI showed normal results, and he also had a follow-up EEG after one conducted in July 2025. The results from this recent EEG were abnormal for a pediatric patient in awake, drowsy, and sleeping states. Notably, there were brief episodes of left frontotemporal delta slowing, which occurred mainly when he was awake and drowsy. There were no signs of epileptiform activity detected. In contrast, the EEG performed back on July 3, 2025, was deemed normal for both awake and drowsy states, again with no evidence of epileptiform irregularities, although it did not capture any sleep data. This examination was prompted by the child's existing history of febrile seizures. Importantly, he is not currently on any anti-seizure medications. The EEG procedure used standard electrode placements per the 10-20 system, conducted a single-lead EKG, and included continuous video monitoring. During the analysis, the background activity was symmetric, indicating some anterior-posterior (AP) organization, with a dominant rhythm of 50-80 microvolts at 7 Hz. His drowsy state was marked by a reduced amount of eye blink activity, less breathing motion interference, and a generalized slowing in theta/delta frequencies. Stage II sleep exhibited spindles and vertex waves patterns. Additionally, there were intermittent bursts of 250-300 microvolts in the left frontotemporal region with semi-rhythmic activity of 2-4 Hz, mostly observed during wakefulness and drowsiness. No definitive epileptiform discharge was noted. Photic stimulation during the test did not elicit a strong response, and hyperventilation was not conducted during this session.

Multiple SclerosisCrohn's DiseaseEndocrinology
Male25-34
47 minutes ago

INTENSE Spine Discomfort, Breathing Difficulties, Muscle Twitches, and Sweating

To elaborate on the situation mentioned in the title, I’ve been experiencing unusual muscle twitches and spasms for the past few days, along with some discomfort in my back. However, today, I felt an unexpected sharp pain shoot through my spine, which has left my legs feeling numb and made it impossible for me to sit up straight. Additionally, I’ve been dealing with cold sweats for the last hour and struggling to breathe properly. Perhaps I’m just overanalyzing things and it’s a common occurrence, but the intensity of the pain is overwhelming—it's truly unbearable. I’m shaking quite a bit, and unfortunately, my parents aren’t responding to my attempts to reach them for help. I have a history of a chronic heart condition and arthritis, yet I’ve never experienced pain this severe, especially in my spine. For context, I am nearly 15 years old and female. My current medications include pain relievers, anxiety medication, beta blockers, and some vitamins, though those specifics may not be particularly relevant. I don’t smoke; however, I have tried vaping a few times, which might not matter much, but I thought it was worth mentioning as it was requested.

ArthritisCOPDRheumatology
Male25-34
57 minutes ago

Understanding Atrial Fibrillation and Thyroid Issues: Variability in Cardioversion Decisions

Hello everyone, I’m reaching out for guidance regarding my mother’s current health situation, and I’d greatly appreciate any shared experiences or thoughts. **My mother's background:** - **Age**: 55 years - **Weight**: Recently dropped to 116 kg from 118 kg in just two days, likely due to diuretics. - **Health history**: Previously an underactive thyroid, undiagnosed and untreated, now presenting as overactive. - **Medications**: Currently taking thyroid medication and a beta-blocker (Rapiblock). **Current health status:** My mother has been hospitalized since Tuesday, experiencing **atrial fibrillation with heart rates exceeding 200** beats per minute due to her thyroid's hyperactivity. - The plan for cardioversion was initially settled on Tuesday. However, the following day, the medical team advised postponing it until her thyroid levels could be stabilized, believing that her heart rate would return to normal once her thyroid condition was managed. - Her **obesity** precludes her from undergoing a transthoracic echocardiogram, and due to her thyroid concerns, she cannot handle contrast dye (this has been a consistent issue for over four years). Therefore, the only feasible option was a **transesophageal echocardiogram (TEE)**, which has yet to be performed. - She has been prescribed various medications including beta-blockers and thyroid treatments in the past. - On Friday, a doctor proposed proceeding with cardioversion; however, the attending senior physician objected. - Today (Saturday), another clinician has expressed a desire to move forward with cardioversion, having initiated a new medication, as the senior physician is unavailable. - **Communication has been unclear**, as we were notified of developments by a nurse rather than the physician in charge, causing confusion and anxiety. - Currently, only a **chest X-ray** is scheduled, and the TEE remains unaddressed. **My inquiries are as follows:** 1. Is it common for medical professionals to have varying opinions and frequently revise medication or treatment plans like cardioversion? 2. Is it safe to conduct cardioversion in the absence of a TEE? I presumed that this was a standard procedure to exclude the presence of blood clots. 3. Is it usual practice to have only a chest X-ray prior to moving ahead with cardioversion? 4. How typical is it for patients or their families to not be directly informed about treatment changes and learn about them through nursing staff instead? I recognize that this cannot substitute for professional medical advice. I’m simply trying to discern whether these circumstances are typical or if we should express our concerns more assertively with the healthcare facility. Thank you for your insights!

Thyroid DisordersEndocrinologyRheumatology
Male25-34
1 hour ago

28-Year-Old Male Experiencing Scalp Sensations Post-Amitriptyline Treatment

I am a 28-year-old man in generally good health, without any cardiac concerns. Approximately a month ago, I encountered intense pain localized to one side of my head, which was unresponsive to paracetamol. However, a single dose of a migraine treatment provided substantial relief. Following that, I began a regimen of amitriptyline, starting at a nightly dose of 10 to 25 mg. While my head pain has diminished significantly—by about 90 to 95%—I now experience occasional uncomfortable sensations on my scalp. These feelings include pins and needles, a cooling sensation, and some crawling feelings near my hairline and ears. There are fleeting moments where I feel brief throbs lasting a second, but I do not have any persistent headaches. To clarify, I do not experience any of the following: - Nausea - Weakness in my limbs - Numbness - Changes in my vision - Coordination difficulties - Seizures The symptoms I have are transient, shifting around and often intensifying when I become conscious of them or as the day progresses. I would like to know: Is it common to experience these sensations during the recovery stage following episodes of neuralgia or migraine-like discomfort? Additionally, could the amitriptyline potentially be causing these temporary paresthetic sensations? I am seeking some reassurance or advice on what is typically observed during this healing process. Thank you.

Multiple SclerosisCrohn's DiseaseEndocrinology
Male25-34
3 hours ago

Battling Chronic Nausea and Vomiting for Over Two Years

For the past two years, I (age 26, female) have been enduring an incredibly challenging health situation. I experience intense nausea daily and find myself vomiting numerous times, with almost nothing providing relief. To provide some background, I’m from West Texas and I currently weigh around 190 pounds, standing at 5’7”. Initially, my weight was about 211 pounds when these symptoms began, and it fluctuates frequently between 190 and 225 pounds. I engage in vaping and consume THC. Previously diagnosed with hypothyroidism, my condition seemingly resolved, according to my healthcare providers. Additionally, I have polycystic ovarian syndrome (PCOS). I have consistently faced irregular bowel movements, with stools that are loose and sometimes appear to have mucus. Compounding my struggles, I've also suffered from migraines. I have had an IUD for over five years, experiencing two insertions of the Kyleena device. In December 2022, my battle with health took a severe turn when I was diagnosed with stage 4 Hodgkin’s Lymphoma, requiring chemotherapy treatment, specifically AVBD (Apologies for not recalling the exact medication names). By July 2023, I had fortunately achieved remission. However, after reaching remission, my vomiting worsened, transforming from primarily white foam to a mixture of 80% bile, any food I attempt to consume, and still white foam. This intense vomiting, accompanied by significant pain in my upper back, escalated to more than eight episodes daily by November 2023. At that time, THC seemed to be the only avenue for me to retain any food. During this tumultuous period, I consulted various doctors who, after confirming I wasn’t pregnant, attributed my symptoms to Cannabinoid Hyperemesis Syndrome (CHS). Immediately, I ceased THC consumption for over six months, yet the vomiting continued unabated. Each time, doctors would prescribe ondansetron, regardless of my claims that it provided no relief. I experimented with various diets recommended by medical professionals, but there were no improvements in my condition. Eventually, I obtained a referral to a gastroenterologist who intended to perform an endoscopy. However, the procedure was prohibitively expensive even with insurance, and thus was never conducted. This doctor also ordered blood tests to rule out several gastrointestinal disorders, such as Crohn's disease, Irritable Bowel Syndrome (IBS), and gluten sensitivity, but all results came back normal. Afterward, I had another appointment with a different gastroenterologist, but the doctor failed to meet with me. Instead, a nurse informed me that the doctor had merely recommended promethazine without conducting any tests or scheduling further visits. When I mentioned the possibility of gallbladder issues, the doctor laughed dismissively at my suggestion. Discussing my situation with my oncologist, he suggested that my heightened sensitivity to food odors stemmed from my chemotherapy experiences while I was working in fast food. While food smells indeed affect me, I'm primarily triggered by medical scents such as rubbing alcohol and cleaning agents. This ongoing ordeal has been overwhelmingly distressing. I now experience episodes of vomiting accompanied by bright red blood, presumably due to a throat tear. When I first encountered this troubling symptom, I consulted a doctor who appeared unfazed and prescribed a promethazine suppository, which does help but makes me extremely drowsy. My nausea persists nearly around the clock, often feeling as if there’s a heaviness in the upper part of my abdomen. I frequent urgent care facilities when my symptoms intensify, only to be met with minimal assistance since this is a chronic issue. Currently, I lack a primary care physician. Whenever I sought one, I encountered skepticism regarding my condition, with some healthcare professionals implying that I was exaggerating my symptoms. Though many physicians who do take my situation seriously seem baffled, I've lost count of the diverse medical experts I've consulted about these ongoing issues. If anyone has insight or suggestions, I would genuinely appreciate it. I can share my latest bloodwork results if that would be helpful—just let me know!

LupusCrohn's DiseaseThyroid Disorders
Male25-34
5 hours ago