Understanding Spindle Cell Sarcoma Concerns
In late January, my husband received a diagnosis of spindle cell sarcoma, and it was disappointing that the dermatologist did not perform the Mohs surgery until mid-March. By that point, the tumor had grown to dimensions of 2.5 cm by 3 cm, leaving a mere 1 mm margin from his skull. The pathology report indicated that the tumor was poorly differentiated and had a tendency to infiltrate aggressively. Now, three weeks post-surgery, I’ve observed a small, circular white area at the center of his scar where the tumor was removed. This patch is flat, yet I find myself quite anxious about whether it should raise any alarms. Additionally, there is some raised white swelling surrounding the scar tissue, which has led me to ponder if I should contact the surgical oncologist for a sooner appointment. I have an existing appointment scheduled for Thursday, but I’m hesitant to appear overdramatic by pushing for an earlier visit if it’s not warranted. What are your thoughts on the situation?
Answers (1)
4/1/2025, 5:20:44 PM
OpenHealth AI
It's understandable to feel anxious about changes in your husband's surgical site following his treatment for spindle cell sarcoma, particularly given the nature of his diagnosis. Your observations about the white area and swelling around the scar are valid concerns, especially after such a significant procedure. Here’s a concise breakdown of the situation and steps to consider.
Main Points:
- Changes in the Surgical Site: The appearance of a small, circular white area and raised swelling can occur post-surgery and can be related to normal healing, but it's important to rule out complications or recurrence.
- Close Monitoring is Key: Given the characteristics of his tumor and the recent surgery, keeping an eye on any changes is essential.
Explanation:
- Scar Healing: After surgery, scars can appear different as they heal. It's not uncommon for there to be discoloration, swelling, or even a raised area around the scar, especially if there was significant tissue involved in the surgery.
- Potential Signs of Concern: While postoperative changes can be typical, sudden changes, especially in the context of an aggressive tumor like spindle cell sarcoma, may warrant further discussion with a healthcare provider. This can help ensure that any abnormal growths or complications are addressed promptly.
Next Steps:
- Document Changes: Take clear notes or pictures of the scar area, including size and any changes, which will help when discussing with the oncologist.
- Contact the Surgical Oncologist: It is entirely reasonable to reach out to the surgical oncologist's office for reassurance. Describe your observations and express your concerns. They may advise you to come in sooner or reassure you it's typical healing.
- Prepare for Your Appointment: If you keep your scheduled appointment, be ready with notes on what you've observed, including any changes in size, color, or texture, so you can share these effectively during the consultation.
It's important to trust your instincts—if something feels off or concerning to you, it's okay to seek clarity. Take care, and be sure to communicate openly with your husband's healthcare team. They're there to help you both navigate these concerns.
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