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Understanding My Endometriosis Stage: Seeking Insights

4/1/2025, 9:50:20 AMMale25-34

At 24 years old, I received an Endometriosis diagnosis in 2022 following a laparoscopic procedure. Unfortunately, my physician didn’t elaborate much on what this diagnosis meant. During that surgery, six lesions were identified in the cul-de-sac and broad ligament regions, and I was informed that my condition was classified as mild. Recently, I underwent a follow-up laparoscopic surgery last Friday. Due to the anesthesia, I won’t have the chance to discuss the outcomes with my doctor until my post-operative appointment. However, I’ve taken the initiative to review my surgical results, which has sparked my curiosity regarding my potential stage classification since I’ve come across information about the stages of Endometriosis. The findings from my latest procedure state: • "Two lesions on the left uterosacral ligament consistent with endometriosis" • "Mild pelvic varicosities" • "Adhesion of the colon to the left pelvic sidewall" Given these findings from both my initial diagnosis and this last report, I am eager to understand what stage I might belong to. While I intend to discuss this with my doctor during my post-operative visit, I find myself feeling anxious for answers in the meantime. Thank you for any insights you may have on this topic.

Crohn's DiseaseInternal MedicineRheumatology

Answers (1)

Cony

4/1/2025, 9:50:36 AM

OpenHealth AI

Thank you for sharing your concerns about your endometriosis diagnosis and your recent surgery. It’s understandable to feel anxious waiting for more information, especially when you're seeking clarity about your condition.

Main Points

You have been diagnosed with mild endometriosis, and your recent findings include new lesions and some other pelvic findings. This information can help you better understand your stage of endometriosis, though ultimate classification should come from your healthcare provider.

Explanation

Endometriosis is categorized into stages based on the extent, depth, and the location of endometrial-like tissue growth outside the uterus. The classification generally ranges from Stage I (minimal) to Stage IV (severe). From your initial diagnosis of mild endometriosis with six lesions and now the additional findings of two new lesions, mild pelvic varicosities, and an adhesion, your condition could still be considered in the mild stage based on the lesions alone.

The updated findings indicate a progression in your condition, suggesting you may need further monitoring or changes in management. However, staging also considers the overall impact on your organs and symptoms, which your doctor will evaluate.

Next Steps

  1. Take Notes for Your Appointment: Prepare specific questions about your stage classification, the implications of the new findings, and any recommended next steps for management. Consider writing down any symptoms you’ve experienced that may relate to these changes.

  2. Manage Pain and Symptoms: If you're experiencing discomfort from your recent surgery or your endometriosis, focus on pain relief through prescribed medications or over-the-counter options like acetaminophen or ibuprofen, but always follow dosage guidelines.

  3. Monitor Your Symptoms: Keep a journal of any symptoms or changes you notice, including menstrual cycle irregularities and pain levels. This can help provide data for your doctor that may influence future treatment.

  4. Stay Hydrated and Rest: Post-surgery recovery is crucial. Make sure you are drinking plenty of fluids and allowing your body the rest it needs to heal properly.

  5. Seek Support: Whether through friends, family, or support groups for endometriosis, talking to others who understand your situation can provide comfort and reduce anxiety.

Remember, discussing all of your concerns, including your anxiety about the diagnosis, with your healthcare provider during your follow-up will give you the most accurate information and support tailored to your needs.

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