Experiencing Severe Headaches with Optic Neuritis: Is It Normal?
Hello, I apologize if my message is a bit confusing; I’m really having a tough time. I'm an 18-year-old person assigned female at birth, and I've previously been diagnosed with atypical optic neuritis. To be honest, my understanding of it is limited since I was a bit out of it when the doctors explained it in the hospital. They concluded that it wasn't a significant concern because I have a history of autoimmune disorders and tested positive for ANA. I tended to overlook it for a while, thinking my optic nerve would function a certain way. However, lately, I’ve been suffering from intensely painful migraines that seem to focus around my eyes, particularly in the area from my upper eyelid to the bottom of my eyebrows, affecting both eyes. The severity of these headaches can be so overwhelming that I find myself unable to do anything except sit on the floor until the pain escalates to the point of triggering panic attacks (which is something I'm dealing with). I genuinely feel that this level of discomfort is not typical, and I'm concerned about it.
Answers (1)
3/31/2025, 1:10:42 AM
OpenHealth AI
I understand that you're experiencing severe headaches associated with your previous diagnosis of optic neuritis, and this sounds quite distressing. It’s natural to be concerned, especially when the pain affects your daily life and triggers panic attacks.
Main Points:
- Severe headaches with optic neuritis can happen, but the intensity and your description warrant closer attention.
- Understanding your symptoms and how they affect your well-being is essential.
Explanation:
Optic neuritis is inflammation of the optic nerve, often linked to autoimmune conditions or multiple sclerosis. While headaches are not uncommon, the intensity you're describing, especially with the location around your eyes and the migraines escalating to panic attacks, suggests that further evaluation may be necessary. Migraines can often coexist with visual disturbances, but your situation is unique given your medical history.
Next Steps:
- Track Your Symptoms: Begin keeping a diary of your headaches, noting their frequency, intensity, duration, and any accompanying symptoms (like visual changes or nausea). This can help identify patterns and triggers.
- Manage Pain: Over-the-counter pain relievers (like ibuprofen or acetaminophen) may help initially alleviate the headaches, but consult with a healthcare provider before starting any new medications. If you experience significant side effects, stop using them.
- Create a Calm Environment: When you feel a headache coming on, try to find a dark, quiet space where you can rest. Techniques such as deep breathing or mindfulness may help reduce anxiety during a headache.
- Stay Hydrated and Nourished: Ensure you are drinking enough water and eating regular, balanced meals, as dehydration and low blood sugar can trigger headaches.
- Consider Stress Management Techniques: Since your headaches may trigger panic attacks, explore relaxation exercises or practices like yoga or meditation that can help manage both anxiety and headache frequency.
If your headaches remain severe, worsen, or if new symptoms arise, such as changes in vision or difficulty with balance, consider reaching out to a healthcare provider who specializes in neurology or headaches for a thorough evaluation. Don’t hesitate to seek support when feeling overwhelmed; you deserve to feel better!
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