OpenHealth Q&A

Get answered by medical professionals

Navigating Persistent Health Issues Without Clear Answers

3/30/2025, 4:20:25 AMMale25-34

I have been grappling with a series of unexplained health problems for the last eighteen months. Despite consulting numerous specialists and eliminating several potential diagnoses, I remain in the dark regarding the root cause of my symptoms. My condition appears to be systemic, as I am facing an assortment of interrelated issues. Some possibilities might point to stress or fibromyalgia, especially considering the considerable stress, particularly financial, that has accompanied the onset of my symptoms. Unfortunately, my ability to access proper healthcare has been hindered by my financial limitations. I have implemented various lifestyle adjustments that have brought some relief, yet I still find myself searching for answers. Consequently, I'm uncertain about how to proceed in my quest for specialized medical treatment. I realize this may be a long shot, but any insights or guidance on the next steps would be immensely appreciated! **Key Symptoms I’m Experiencing:** - **Dizziness, Flushing, and Overheating Episodes** – Triggered by stress or certain foods, these episodes include a surge in body temperature, excessive sweating, widespread pain, facial flushing, and an overwhelming sense of dizziness that impairs my ability to focus on simple tasks. - **Intense Foot Pain** – Potentially linked to unidentified plantar fasciitis, I notice this pain intensifies when I encounter specific triggers. For instance, when I was recently snacking on broccoli while standing, severe pain struck within ten minutes, leaving me feeling as though I were walking on shards of glass, prompting me to sit down immediately. - **Overall Weakness** – At just 28 years old, I experience debilitating weakness throughout my body. This isn’t mere tiredness; it’s a level of fatigue that makes even basic physical activities challenging, preventing me from handling moderately active jobs. - **Gastrointestinal Issues** – I alternate between constipation and diarrhea. After consuming trigger foods, I sometimes endure extreme bloating that necessitates a change of clothing. - **Psoriasis Flares on the Scalp and Hair Loss** **Identified Triggers** - Gluten - Stress - Various fiber sources - Sugary foods **Helpful Strategies Implemented** - Completely eliminating gluten from my diet - Stringently reducing fiber intake and adhering to a low FODMAP diet - Minimizing consumption of grains, starches, and even gluten-free bread - Taking salt tablets (500 mg daily), which were recommended by a family member during a dizziness episode, proving to be highly effective - Maintaining high hydration levels - Managing stress effectively - Using anxiety medication **Diagnoses Already Ruled Out** - Celiac disease (through blood tests, genetic testing, and biopsy) - Inflammatory bowel diseases like Crohn’s and Ulcerative Colitis - Helicobacter pylori infection - Autoimmune disorders including lupus - Thyroid issues such as Hashimoto’s disease and hypothyroidism - Scroggins Disease - Liver hepatitis - Kidney problems (via blood tests and ultrasound) - Rheumatoid arthritis - Type 2 diabetes (previously diagnosed but now in remission with normal A1C levels for the past year) **Current Diagnosed Conditions** - Obesity (while actively working on weight loss through lifestyle changes) - Polycystic Ovary Syndrome (PCOS) - Mild Non-Alcoholic Fatty Liver Disease (NAFLD) - Fibromyalgia - A significant amount of anxiety - Sleep apnea (currently using a CPAP machine) - Gluten intolerance

ArthritisLupusFibromyalgia

Answers (1)

Cony

3/30/2025, 4:20:44 AM

OpenHealth AI

Navigating complex health issues without clear answers can be incredibly frustrating and draining. Your symptoms and experiences suggest a multifaceted condition that likely involves several interrelated factors, including stress and potential syndromes like fibromyalgia. Let's explore some focused next steps and strategies to help you manage your symptoms and continue on your path toward finding relief.

Key Points:

  • It’s essential to manage stress and focus on symptom relief while you navigate your health challenges.
  • Understanding and controlling your triggers can significantly improve your quality of life.
  • Continue with supportive lifestyle changes and explore potential specialized therapies.

Explanation:

Your situation involves symptoms that may be interconnected, and addressing them holistically can sometimes yield positives results. The symptoms you described—such as episodes of dizziness, gastrointestinal issues, foot pain, and skin concerns—often require careful management and may also respond well to non-traditional therapies alongside conventional medical approaches.

Next Steps:

  1. Symptom Monitoring and Triggers:

    • Keep a detailed symptom diary that tracks when symptoms worsen and any potential triggers (food, stressors, activities). This can be invaluable for identifying patterns that you may discuss with healthcare providers or use to manage symptoms.
    • Consider potential food triggers further, and continue to refine your diet based on how you feel. The low FODMAP diet you've been following has been beneficial for many with gastrointestinal symptoms.
  2. Pain Management for Foot Pain:

    • Focus on supportive footwear and consider using anti-inflammatory medications like over-the-counter NSAIDs (if appropriate). Compression socks might also help provide support and alleviate symptoms.
    • Explore gentle stretches and physical therapy exercises specifically for plantar fasciitis to improve foot pain and overall mobility.
  3. Coping with Dizziness:

    • Alongside your salt tablets (which help retain fluid), ensure you’re consuming adequate fluids throughout the day, especially in warmer environments.
    • Techniques like mindfulness or breathing exercises may help manage dizziness when it occurs, especially if linked to anxiety or stress.
  4. Stress Management:

    • Engage in regular mindfulness practices, yoga, or light exercise. Even low-impact activities like walking can help boost endorphins and improve your mood, potentially alleviating some physical symptoms.
    • Continue utilizing any medication for anxiety that helps you, and consider speaking to a therapist or counselor about coping strategies. This might not only reduce anxiety but also help with chronic pain and fatigue.
  5. Lifestyle Adjustments:

    • Since you have already made significant dietary changes, think about incorporating foods that are high in omega-3s (like fish or flaxseeds) which may help with inflammation. Monitor how your body reacts to these.
    • Maintain consistent sleep hygiene practices to manage your sleep apnea better, as sleep quality directly impacts overall health.
  6. Consider Complementary Approaches:

    • Look into therapies such as acupuncture or chiropractic care, which some patients find beneficial for managing fibromyalgia and pain syndromes. However, seek practitioners who understand these conditions and can tailor treatment to your specific needs.
    • Explore support groups where you can connect with others who share similar experiences. This can help you feel less alone in your journey and could offer new insights.

Final Thoughts:

While finding answers can be an ongoing process, focusing on symptom management and self-care is essential. Remember, you're taking proactive steps toward improvement, and that is crucial. Stay hopeful and patient with yourself as you navigate these challenges, and keep documenting your journey. If you have changes in symptoms or new concerns arise, adapting your approach as needed is important. Let me know if you want to discuss any of these strategies further!

Related Questions

Concerns About My Toes

Age: 30, Female Currently, I am on the lookout for a reputable podiatrist in my vicinity. However, I've encountered a perplexing issue with my foot. Just last night, I noticed a growth on the side of my toe, something entirely new to me. I maintain a nutritious diet and have a demanding job that requires me to be on my feet quite often. My footwear includes brands such as Brooks Ghost Runners, Hoka Bondi 9’s, and Nike Motiva’s, and I don’t opt for restrictive socks. I also apply Vick’s Vaporub to my feet, a practice handed down from my family, and stick with simple, non-fragrant lotions like Vanicream and CeraVe SA Cream for my skin. In addition, I am curious about the my big toenail's change in color. What might be the underlying reasons for this? Also, I have these persistent dark spots on my toes that I've struggled with since my days on the runway. Despite my efforts, nothing has succeeded in lightening or diminishing their appearance. I'm just looking to determine if there might have been a factor from the past that could have contributed to these issues. I’m not sure what else to include, but I’m open to answering any questions you might have. Thank you for your attention! Best wishes from a worried soul!

ArthritisFibromyalgiaInternal Medicine
Male25-34
2 hours ago

Strange Jelly-Like Substance Observed from Wound

I’m a 21-year-old female living with an auto-inflammatory condition known as hidradenitis suppurativa (HS). Recently, I've experienced a concerning issue with one of my wounds. This particular wound causes significant pain and excessive bleeding. However, whenever I attend to it, I tend to find this unusual jelly-like substance present within it. Interestingly, this phenomenon has only occurred with this one wound and not any of the others I have. The bleeding seems to persist until I manage to remove this jelly substance, after which it typically slows down and comes to a halt completely. I’m seeking insights into what this might signify so that I can effectively discuss it with my healthcare provider.

ArthritisFibromyalgiaInternal Medicine
Male25-34
4 hours ago

Battling Chronic Nausea and Vomiting for Over Two Years

For the past two years, I (age 26, female) have been enduring an incredibly challenging health situation. I experience intense nausea daily and find myself vomiting numerous times, with almost nothing providing relief. To provide some background, I’m from West Texas and I currently weigh around 190 pounds, standing at 5’7”. Initially, my weight was about 211 pounds when these symptoms began, and it fluctuates frequently between 190 and 225 pounds. I engage in vaping and consume THC. Previously diagnosed with hypothyroidism, my condition seemingly resolved, according to my healthcare providers. Additionally, I have polycystic ovarian syndrome (PCOS). I have consistently faced irregular bowel movements, with stools that are loose and sometimes appear to have mucus. Compounding my struggles, I've also suffered from migraines. I have had an IUD for over five years, experiencing two insertions of the Kyleena device. In December 2022, my battle with health took a severe turn when I was diagnosed with stage 4 Hodgkin’s Lymphoma, requiring chemotherapy treatment, specifically AVBD (Apologies for not recalling the exact medication names). By July 2023, I had fortunately achieved remission. However, after reaching remission, my vomiting worsened, transforming from primarily white foam to a mixture of 80% bile, any food I attempt to consume, and still white foam. This intense vomiting, accompanied by significant pain in my upper back, escalated to more than eight episodes daily by November 2023. At that time, THC seemed to be the only avenue for me to retain any food. During this tumultuous period, I consulted various doctors who, after confirming I wasn’t pregnant, attributed my symptoms to Cannabinoid Hyperemesis Syndrome (CHS). Immediately, I ceased THC consumption for over six months, yet the vomiting continued unabated. Each time, doctors would prescribe ondansetron, regardless of my claims that it provided no relief. I experimented with various diets recommended by medical professionals, but there were no improvements in my condition. Eventually, I obtained a referral to a gastroenterologist who intended to perform an endoscopy. However, the procedure was prohibitively expensive even with insurance, and thus was never conducted. This doctor also ordered blood tests to rule out several gastrointestinal disorders, such as Crohn's disease, Irritable Bowel Syndrome (IBS), and gluten sensitivity, but all results came back normal. Afterward, I had another appointment with a different gastroenterologist, but the doctor failed to meet with me. Instead, a nurse informed me that the doctor had merely recommended promethazine without conducting any tests or scheduling further visits. When I mentioned the possibility of gallbladder issues, the doctor laughed dismissively at my suggestion. Discussing my situation with my oncologist, he suggested that my heightened sensitivity to food odors stemmed from my chemotherapy experiences while I was working in fast food. While food smells indeed affect me, I'm primarily triggered by medical scents such as rubbing alcohol and cleaning agents. This ongoing ordeal has been overwhelmingly distressing. I now experience episodes of vomiting accompanied by bright red blood, presumably due to a throat tear. When I first encountered this troubling symptom, I consulted a doctor who appeared unfazed and prescribed a promethazine suppository, which does help but makes me extremely drowsy. My nausea persists nearly around the clock, often feeling as if there’s a heaviness in the upper part of my abdomen. I frequent urgent care facilities when my symptoms intensify, only to be met with minimal assistance since this is a chronic issue. Currently, I lack a primary care physician. Whenever I sought one, I encountered skepticism regarding my condition, with some healthcare professionals implying that I was exaggerating my symptoms. Though many physicians who do take my situation seriously seem baffled, I've lost count of the diverse medical experts I've consulted about these ongoing issues. If anyone has insight or suggestions, I would genuinely appreciate it. I can share my latest bloodwork results if that would be helpful—just let me know!

LupusCrohn's DiseaseThyroid Disorders
Male25-34
4 hours ago

Strange Stomach Sensation Leading to Waking Up

Greetings. I'm a 36-year-old male, standing at 172 centimeters and weighing 90 kilograms. I don't take any medications, nor do I smoke. I've been living with diastasis recti for several years now, and I may also have irritable bowel syndrome (IBS). Additionally, I deal with fatty liver and kidney stones, though I assume these last two conditions are not related to my current concern. Occasionally, I experience a peculiar sensation that jolts me awake; it feels like a quick pulsing in my stomach. I’ve noticed it tends to affect the left side when I’m lying on my left side and the right side when on my right. Remarkably, it can occur even when I’m on my back. This strange feeling often escalates into a surge that fully rouses me. Alongside this, I sometimes feel prickling sensations throughout my body and fleeting lightheadedness. When this sensation disturbs my sleep while I’m turned to my side, shifting onto my back or the opposite side might alleviate it, but not always. In instances where I awaken while lying on my back, I discovered that gently pressing my hands on either side of my stomach can help, as can rising to a sitting or standing position. However, during my last two episodes—one a couple of weeks ago and another tonight—those techniques weren’t effective right away, which made me feel a bit anxious, prompting me to seek advice. Does anyone have insight into what might be going on? By the way, I’ve undergone routine ultrasound examinations of my abdomen by two different physicians during check-ups, both of whom assured me that everything appears normal, including my abdominal aorta and internal organs. They didn’t identify any issues at that time.

LupusCrohn's DiseaseRheumatology
Male25-34
5 hours ago

Healing Progress Post-GBS: Toe Concerns

I am a 28-year-old male, measuring 5 feet 10 inches and weighing 131 pounds. My current medications include Fomadatine and Zyrtec, prescribed due to my ongoing battle with Chronic Gastritis and SIBO. I maintain a healthy lifestyle, abstaining from both smoking and alcohol. My health concern revolves around the toe adjacent to my pinky toe on my left foot, as well as my pinky toe on the right foot. Since August of last year, I have been on the mend from Guillain Barre Syndrome. Recently, I've noticed that at night, the skin on my feet tends to turn a reddish pink, although this usually improves after I walk around. However, two of my toes have remained red, with one appearing slightly swollen. Generally, my pinky toes are quite thick, but the condition of my left foot's toe is worrisome for me. It seems that I'm unable to upload an image to illustrate my issue.

FibromyalgiaCrohn's DiseaseCOPD
Male25-34
6 hours ago