Understanding Double Elevator Syndrome
Hello, I’m seeking advice regarding my daughter's condition, often referred to as a "lazy eye." Should I be worried about it, or is it something that can just be left alone? Here are some essential details: - **Age**: 3.5 years - **Gender**: Female - **Medications**: None; she takes a multivitamin and Vitamin D daily - **Weight**: 32 lbs - **Smoking Status**: Non-smoker (I hope!) - **Location**: Northeastern U.S. - **Allergies**: None - **Pre-existing Condition**: Laryngomalacia (which typically resolves by 12-18 months) - **Birth**: Full-term, met all developmental milestones. - **Behavior**: Stubborn and quite a handful. At approximately 8 months old, I observed something unusual with her left eye. While she was nursing or drinking from a bottle, I’d notice her right eye would roll up, but her left eye would remain fixed straight ahead. We underwent an MRI when she was about 18 months to rule out several serious concerns, and thankfully, the results were normal. However, her eye specialist seemed perplexed by the situation. Both of her eyes move properly side to side and downward, but the left eye simply will not move upward. I sense that this issue is becoming more pronounced; recently, she’s mentioned seeing two of me when she looks up. There’s no drooping; if anything, that eye appears more open. Nevertheless, I’ve detected that the upper left section of her face seems less expressive, a concern that neither her eye doctor nor the neurologist acknowledged. The eye doctor recommended follow-up appointments every six months, but managing this with my 1.5-year-old twins in tow for over an hour is quite the ordeal! During our last visit, she alluded to it possibly being "double elevator syndrome," yet I feel that the medical professionals are unsure about the exact nature of the issue. I’ve also been informed that because her gaze is straight, using an eye patch would not be beneficial for addressing this condition.
Answers (1)
3/27/2025, 1:50:39 AM
OpenHealth AI
Thank you for sharing your concerns about your daughter's eye condition, often referred to as "lazy eye" or, in this case, possibly "double elevator syndrome." It's understandable to feel anxious when unclear medical terms and recommendations are involved.
Key Points:
- Understanding Double Elevator Syndrome: This condition is characterized by the inability of one eye to move upwards, which aligns with your daughter's symptoms.
- Symptoms and Concerns: You reported that her left eye does not move up, and she experiences double vision when looking upward. The lack of facial expression and concerns raised are valid and important to monitor.
- Follow-Up Care: Regular appointments are essential for managing her condition, but I understand the challenges of attending them with young siblings.
Explanation:
Double elevator syndrome occurs when the muscle that raises the eye isn't functioning correctly. This may lead to issues like misalignment, double vision, and potentially impact visual development. Although there have been follow-ups twice a year, it's crucial to ensure her condition is thoroughly understood, as early intervention can be key in managing eye movement disorders.
Prioritized Next Steps:
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Keep a Symptom Diary: Given her recent complaints about seeing double, note when this occurs, activities involved, and any changes in her eye movement or facial expressions. This can help doctors understand her condition better at the next appointment.
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Focus on Communication: Discuss your observations with the eye specialist at your next visit, specifically the changes in her facial expressions and any concerns about double vision. This may help in determining if further evaluations or interventions are needed.
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Explore Alternative Follow-Up Options: If managing in-person visits is overwhelming, you might ask if virtual consultations are available. This could provide flexibility in discussing her condition without the logistical strain of bringing all the children to the office.
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Education and Support: Continue to educate yourself about her condition. Joining support groups for parents dealing with similar pediatric eye issues may provide both resourceful insights and emotional support.
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Contact Your Doctor if Symptoms Worsen: If her symptoms escalate—such as increased double vision, any discomfort in her eyes, or mobility issues—it would be prudent to seek care sooner.
Remember, staying organized and documenting changes can empower you to advocate effectively for your daughter’s health. It's important to remain proactive about her vision and any concerns you have. You're doing a great job monitoring her and seeking help where needed!
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