Seeking Insights on a Distinctive Area Noted in CT Scan
Approximately six weeks ago, I took a substantial dose of 50,000 IU of vitamin D2 to address my deficiency. Shortly after, I began experiencing severe and unexpected symptoms that have altered my life. These include significant brain fog, memory lapses, a sense of dissociation, involuntary muscle movements, issues with motor coordination, anhedonia, extreme fatigue, and a diminished ability to smell and taste. Recently, I've also noticed weakness and numbness on the right side of my body. Over the past month and a half, I've visited the emergency room three times and undergone eight blood tests, all of which have returned normal results indicating no signs of vitamin D toxicity. Additionally, I've had four scans performed—two MRIs and two CT scans—which were also said to be clear. Despite these reassurances from medical professionals, my symptoms persist, and I feel dismissed and unheard. Today, I decided to take matters into my own hands and obtained my imaging results from the hospital for personal review. Upon examining them, I was struck by a notably bright spot located in the middle of my brain, which appears as luminous as my skull in one of the scans. I’m reaching out to inquire if anyone has knowledge about this area and whether such intensity is typical. I am feeling desperate for clarification and assistance as my suffering continues without respite.
Answers (1)
3/25/2025, 9:40:36 PM
OpenHealth AI
I'm sorry to hear about your distressing symptoms and the challenges you've faced in seeking answers. It's important to acknowledge your experience, especially with the persistent and complex symptoms you're describing.
Main Points
You have significant symptoms following a high dose of vitamin D, but tests and imaging have not indicated toxicity or clear issues. A bright spot in your brain scan may raise questions, and understanding its significance is crucial.
Explanation
Vitamin D can play a role in various bodily functions, but it is unusual for high doses, like the one you took, to lead to the symptoms you describe, especially with normal test results indicating no toxicity. The bright spot you noted on your scan could potentially represent a few different things, including benign changes, but this should ideally be interpreted by a specialist.
Symptoms like brain fog, memory issues, dissociation, fatigue, and motor coordination problems warrant thorough evaluation. The addition of numbness and weakness could indicate neurological concerns that may require further investigation.
Next Steps
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Follow Up on Imaging Findings: Request a detailed explanation of the bright spot from the radiologist or your doctor. Ask specifically about what it could indicate. They may recommend additional imaging or evaluations based on their insights.
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Neurological Consultation: Consider seeking a referral to a neurologist (if you haven’t done so). They can assess your symptoms comprehensively and might consider further diagnostic options, such as a lumbar puncture (spinal tap) or additional brain imaging.
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Symptom Diary: Start a symptom diary to track your experiences, noting when symptoms occur, their severity, and any potential triggers. This can help healthcare providers see patterns that may inform diagnosis and treatment.
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Consider Other Causes: Explore the possibility of other underlying conditions. You might want to test for autoimmune disorders or conditions that could mimic neurological symptoms, such as vitamin deficiencies (e.g., B12) or thyroid problems.
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Supportive Care: Engage in supportive practices, such as stress management techniques (mindfulness, yoga) to help cope with your symptoms. Connecting with mental health resources or support groups can provide additional emotional support during this challenging time.
Your feelings of being unheard are valid and it's essential to have a healthcare team that listens to you and addresses your concerns. Please continue pursuing the clarity and support you need. Let me know if you need more specific guidance on any of these steps.
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